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Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
How - Joining Inspire is completely free and usually takes less than a minute. Join now!
Discussions
Where do I go from here?
- By jefnur · Posted November 8, 2009
- In My diagnosis · 3 replies
- I was referred to a rheumatology specialist at my request almost two years ago due to a family history of autoimmune diseases - the consultant said at the time she wasn't expecting any of my bloods to ...
Mouth Ulcers?
- By gourmet115 · Posted November 6, 2009
- In Symptoms · 4 replies
- My 12 yo son who has been diagnosed with a connective tissue disorder has been suffering from relentless mouth ulcers (canker sores). They are very painful, long lasting and often bleed profusely. Does ...
Scary TV Show
- By anncooper · Posted October 29, 2009
- In In the news · 0 replies
- I am one of those people who sleeps with the TV on and during the night I woke up and Dr. G. Medical Examiner was on -- it had two terrifying stories on, one about a woman who had severe Lupus and died ...
Anybody out there?
- By avasmama · Posted October 12, 2009
- In Living with a connective tissue disorder · 0 replies
- My daughter Ava was diagnosed with MCTD last month. Her symptoms were joint pain/swelling with a high fever. We were sent to Children's Hospital because our family Dr suspected JRA. The Rheumatologist ...
Intestinal upset
What Helps?
- By mystory · Posted September 8, 2009
- In Living with a connective tissue disorder · 3 replies
- Hello I am 25 years old and was diagnosed with UCTD about two years ago. I am still struggling with how to live with this disorder. I find that I am getting depressed a lot off and on and that I fear ...
will work for health insurance?
- By Jacquieness · Posted August 24, 2009
- In Living with a connective tissue disorder · 2 replies
- Does anyone out there with severe symptoms able to hold down a job? I am half way through my graduate studies and realized I am in the wrong field for someone with all my hand problems. I have never imagined ...
Local Support Groups
- By lioness_aurora · Posted August 19, 2009
- In Living with a connective tissue disorder · 7 replies
- Hello, I have had undifferentiated connective tissue disease for 7 years and I am ALWAYS in pain. I could really use an in-person support group, but can't seem to find one by searching the web. Does anyone ...
In need of some relief
- By taliamarie · Posted August 17, 2009
- In Symptoms · 5 replies
- Can anyone help me figure out what I can do about the pain in my feet??? I can handle the joint pain and fatigue but I cant walk without wanting just to give up!!! I will not see a Reumy for at leat another ...
Sideroblastic anemia and Connective Tissue Disorders
- By Lily52700 · Posted August 14, 2009
- In My diagnosis · 1 reply
- Has anyone out there with Ehlers Danlos Syndrome or any other Connective Tissue/Collagen defect been diagnosed with Sideroblastic Anemia? (Anemias that prevent iron from being utilized by red blood cells ...
Cytoxan
- By BlackConcours · Posted July 20, 2009
- In Treatment · 1 reply
- Has anyone had treatment with Cytoxan chemotherapy for Lupus glomerulonephritis? This is a pretty aggresive treatment and I'm not comfortable with the chemotherapy, especially with no cancer. I go into ...
Paraffin Spa
- By Katsdragn · Posted June 5, 2009
- In Living with a connective tissue disorder · 0 replies
- I bought a paraffin spa. The heat really helps with hand pain, the wax moisturized my skin and I got a real surprise when it pulled out a calcinosis bump I had on a knuckle. It is a real blessing when ...
MCTD Please help!!!
- By mrs_confused · Posted May 28, 2009
- In Living with a connective tissue disorder · 4 replies
- I am new here, I have been on a support group before for Lupus...I found it helpful. Last June I was diagnosed with Systemic Lupus, and Discoid Lupus. All my life I have had medical problems, been to ...
Got MCTD Diagnosis Today
- By Donnamcq · Posted May 27, 2009
- In My diagnosis · 3 replies
- I am new to Inspire and am glad that I found this support group. I was diagnosed with MCTD today by my rheumy after a series of blood tests. My RNP Antibodies is 1.5 (high), Antinuclear Antibodies Direct ...
Annie
Always cold
- By Emm · Posted May 19, 2009
- In Living with a connective tissue disorder · 1 reply
- Hi all, I have a connective tissue disease mainly with symptoms of of becoming very cold very quickly and losing all circulation and color in my hands and feet. I have endured cancer in various parts ...
MCTD in children
- By nzmum · Posted May 18, 2009
- In Family and friends · 1 reply
- Hi All My 11 eleven year old daughter has very recently been diagnosed with MCTD with Raynaulds & Sceloderma (?? spelling). We live in New Zealand where this is extremely rare and I am looking to make ...
SCLERODERMA FOUNDATION MEMBERS
- By deannagraham · Posted May 4, 2009
- In In the news · 1 reply
- ANY WORD ON WHEN WE GET OUR OWN GROUP ...
Pets...they are a great comfort
- By VB · Posted April 16, 2009
- In Living with a connective tissue disorder · 5 replies
- I notice that several members of the support group have pets. I have a cockapoo, Lucy, that will be four years old in June. She has a great personality and next to my husband, is my best friend. I am ...
Prednisone and weight loss
- By VB · Posted April 16, 2009
- In Living with a connective tissue disorder · 4 replies
- I've been taking Prednisone for nearly 10 years. I am on a relatively low dose 12mg a day but I have gained a huge amount of weight. I've tried going off the Prednisone numberous times, but each time ...
