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I'M GOING TO CHICAGO!!!

chantelr
  • By chantelr · New reply 1:29 pm
  • Journal · 14 replies
  • The book came in the mail the other day, "You Don't Look Sick" And I must say, I LOVED IT! I read it one day. Go figure. It's not hard to do. It's an easy read and I LOVED what the author Joy Selak was ...

Today is the day...*nervous wreck!*

chantelr
  • By chantelr · New reply 1:06 pm
  • Journal · 6 replies
  • Today is the day! In just under 2 hours Bob and I will venture down to Duluth and I will have my appts today for 1) Bone Density. Praying to God that pred hasn't eaten away at my bones to badly and 2 ...

"A wake-up call from a young e-patient: 'I need to be heard'”

John2
  • By John2 · Posted yesterday at 3:22 pm
  • Journal · 0 replies
  • From: John Novack, Communications Director, Inspire 4/15/14 Dear members, I am writing to share with you a new guest column in "Scope," the Stanford University School of Medicine's medical blog: "A wake-up ...

Decided to post my entire story (mostly)

kdg1213
  • By kdg1213 · New reply yesterday at 1:26 pm
  • Journal · 24 replies
  • I am a 23 year old girl who was overweight for most of her life. I lost a bunch of weight in an unhealthy way back in 2009. Then I decided to get healthy. In January of 2011 I started to develop a problem ...

Looking for answers, lots of questions!!!!

nikkilee23
  • By nikkilee23 · New reply April 14, 2014
  • Journal · 47 replies
  • Im slightly disappointed. As my first post received many replies and lots of help, not so much on my last post. I have some questions that ive done a little research on, but cant seem to find too much ...

Welcome back Monday! I MISSED YOU!

chantelr
  • By chantelr · New reply April 14, 2014
  • Journal · 6 replies
  • I think the Sunday Gods were smiling down on me last night when they had the Sandman come and drift me off to sleep at a very early 8 p.m. "You need all the rest you can my dear! Because Monday morning ...

yay

kdg1213
  • By kdg1213 · New reply April 14, 2014
  • Journal · 14 replies
  • Today was the firs time I really tested my heart since all these surgeries began, and I feel GREAT! I am so proud or myself ...

Clumsy, clumsy days

joylav
  • By joylav · New reply April 14, 2014
  • Journal · 12 replies
  • I don't know about anyone else, but I get days where I am so clumsy I could scream. I try to laugh it off, but sometimes I get angry that I can't seem to hang onto anything and I trip over my own feet ...

virtual support group

Jujuann
  • By Jujuann · Posted April 14, 2014
  • Discussion in Family and friends · 0 replies
  • The Northern California Chapter of the Scleroderma Foundation is pleased to announce that our monthly virtual support group will take place Wednesday April 16th, 7:00 – 8:00 pm PST. Our guest speaker ...

Skin

newcode
  • By newcode · Posted April 12, 2014
  • Discussion in My diagnosis · 0 replies
  • 23 year old, skin over my breast feel like, I am 85, anyone else has this problem. If thing get better for me, thinking about trying implants. Comments please ...

My grandma did it again!!

chantelr
  • By chantelr · New reply April 12, 2014
  • Journal · 4 replies
  • OKAY! So where did I leave off? OH yes... Awaiting on the van to get back basically. Well, the van returned and I told my grandma that I am going to head into town and get my grocery shopping done. (THANK ...

OMG!! A night to myself.. Maybe??

chantelr
  • By chantelr · New reply April 12, 2014
  • Journal · 3 replies
  • So how I went about doing this I have no idea! But I'm afraid to say this, I have a night to myself! Yes. To me!! Without my husband!! *gasp* I don't know how I managed this but I did. The only thing ...

Losing my personality

beachdog
  • By beachdog · New reply April 10, 2014
  • Journal · 56 replies
  • As I get weaker I don't have the energy to find interest in things so my world is shrinking. I'm doing so many things to keep healthy but the fatigue just won't let me go. When I have a bad few days I ...

Pulmonary Hypertension age 22

Chanel2010
  • By Chanel2010 · New reply April 9, 2014
  • Discussion in My diagnosis · 2 replies
  • My doc finally gave the word today. She believes I have PAH, though we have not confirmed with a right heart catheter, I have all the signs and symptoms. Shortness of breath, chest pain, tachycardia ...

Hair Loss

NJLinda44
  • By NJLinda44 · Posted April 9, 2014
  • Discussion in My diagnosis · 0 replies
  • Hi, I've been diagnosed with MCTD 3 years ago. My rheumatologist has stated it's very mild but sonthing is there. Some symptoms muscla pain, weakness, joint swelling,rash on face very dry skin welts and ...

Keep moving forward!

chantelr
  • By chantelr · Posted April 8, 2014
  • Journal · 0 replies
  • I am so flipping excited right now! OMG I can barely contain my excitement!! So not only am I a reading tutor, a youth leader, on the leadership board through work, and on the age to age committee that ...

I'm in a hurry!

chantelr
  • By chantelr · Posted April 7, 2014
  • Journal · 0 replies
  • My life makes me think of the song by Alabama, "I'm in a hurry." Because that's how I feel. "I'm in a hurry to get things done, oh I rush and rush until life's no fun! All I gotta do is live and die but ...

EHLERS DANLOS SUPPORT GROUP MEETING

lori326
  • By lori326 · Posted April 6, 2014
  • Journal · 0 replies
  • Central pa support group meets on April 19th 3-5 pm at the SUBURBAN OUTPATIENT PAVILION 2100 Harrisburg pike,lancaster pa 17604. 3rd floor conference room .Come share and make new friends. Lori ...

Just Diagnosed With Undiffferentiated Connective Tissue Disease

seal1986
  • By seal1986 · New reply April 5, 2014
  • Discussion in My diagnosis · 9 replies
  • I just got back from my first appointment with my new rheumatologist; I was referred by my primary care doctor because of a positive ANA test. The doctor just looked at my labs and the capillaries in ...

3 days post op

aprilsmith63
  • By aprilsmith63 · New reply April 5, 2014
  • Journal · 3 replies
  • I slept pretty good last night. I have been taking my pain medication and flexeril= faithly around the clock. I really hate take pain medications. I am a registered medical assistant and I seen how bad ...

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