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Hair Loss

  • By NJLinda44 · New reply 12:12 am
  • Discussion in My diagnosis · 1 reply
  • Hi, I've been diagnosed with MCTD 3 years ago. My rheumatologist has stated it's very mild but sonthing is there. Some symptoms muscla pain, weakness, joint swelling,rash on face very dry skin welts and ...

Pain is back

  • By aprilsmith63 · New reply April 22, 2014
  • Journal · 20 replies
  • These past few weeks have been rough mentally and physically. I am healing well from discectomy and my youngest daughter is taking steps to renew her life. I pray for the courts to be gentle on her. I ...

Decided to post my entire story (mostly)

  • By kdg1213 · New reply April 21, 2014
  • Journal · 27 replies
  • I am a 23 year old girl who was overweight for most of her life. I lost a bunch of weight in an unhealthy way back in 2009. Then I decided to get healthy. In January of 2011 I started to develop a problem ...


  • By kdg1213 · New reply April 20, 2014
  • Journal · 18 replies
  • Today was the firs time I really tested my heart since all these surgeries began, and I feel GREAT! I am so proud or myself ...

Seeking More Natural Therapies

  • By Hannah7287 · New reply April 19, 2014
  • Journal · 14 replies
  • As I fill up my daily medicine container for the week I am sickened by the number of pills I take. 17, plus 3 others on an "as needed" basis, then vitamins to top it all off. And the number of prescriptions ...

Back Pain Emergency

  • By Lucy_X_Yyvan · New reply April 19, 2014
  • Journal · 32 replies
  • How do you guys deal with the back pain the comes along with the winter cold? My entire back is inflamed and stiff, and it hurts to move or breathe, really. The pain is becoming unbearable, and I can't ...


  • By chantelr · New reply April 17, 2014
  • Journal · 19 replies
  • The book came in the mail the other day, "You Don't Look Sick" And I must say, I LOVED IT! I read it one day. Go figure. It's not hard to do. It's an easy read and I LOVED what the author Joy Selak was ...

Hello, my name is..

  • By chantelr · New reply April 17, 2014
  • Journal · 5 replies
  • Chantel Reynolds and I was finally diagnosed with Unconnective Tissue Disorder. :) Not that I am happy that I have something that is very vague when it comes to a diagnosis BUT I am happy I can finally ...

QSART test result

  • By BehcetsGirl · Posted April 17, 2014
  • Journal · 0 replies
  • I went to the Cleveland Clinic recently and they did a QSART test (aka Sweat Test). The doctor just sent me the results. She said "it was decreased in the arm but normal in the leg." She also said that ...

Today is the day...*nervous wreck!*

  • By chantelr · New reply April 16, 2014
  • Journal · 6 replies
  • Today is the day! In just under 2 hours Bob and I will venture down to Duluth and I will have my appts today for 1) Bone Density. Praying to God that pred hasn't eaten away at my bones to badly and 2 ...

"A wake-up call from a young e-patient: 'I need to be heard'”

  • By John2 · Posted April 15, 2014
  • Journal · 0 replies
  • From: John Novack, Communications Director, Inspire 4/15/14 Dear members, I am writing to share with you a new guest column in "Scope," the Stanford University School of Medicine's medical blog: "A wake-up ...

Looking for answers, lots of questions!!!!

  • By nikkilee23 · New reply April 14, 2014
  • Journal · 47 replies
  • Im slightly disappointed. As my first post received many replies and lots of help, not so much on my last post. I have some questions that ive done a little research on, but cant seem to find too much ...

Welcome back Monday! I MISSED YOU!

  • By chantelr · New reply April 14, 2014
  • Journal · 6 replies
  • I think the Sunday Gods were smiling down on me last night when they had the Sandman come and drift me off to sleep at a very early 8 p.m. "You need all the rest you can my dear! Because Monday morning ...

Clumsy, clumsy days

  • By joylav · New reply April 14, 2014
  • Journal · 12 replies
  • I don't know about anyone else, but I get days where I am so clumsy I could scream. I try to laugh it off, but sometimes I get angry that I can't seem to hang onto anything and I trip over my own feet ...

virtual support group

  • By Jujuann · Posted April 14, 2014
  • Discussion in Family and friends · 0 replies
  • The Northern California Chapter of the Scleroderma Foundation is pleased to announce that our monthly virtual support group will take place Wednesday April 16th, 7:00 – 8:00 pm PST. Our guest speaker ...


  • By newcode · Posted April 12, 2014
  • Discussion in My diagnosis · 0 replies
  • 23 year old, skin over my breast feel like, I am 85, anyone else has this problem. If thing get better for me, thinking about trying implants. Comments please ...

My grandma did it again!!

  • By chantelr · New reply April 12, 2014
  • Journal · 4 replies
  • OKAY! So where did I leave off? OH yes... Awaiting on the van to get back basically. Well, the van returned and I told my grandma that I am going to head into town and get my grocery shopping done. (THANK ...

OMG!! A night to myself.. Maybe??

  • By chantelr · New reply April 12, 2014
  • Journal · 3 replies
  • So how I went about doing this I have no idea! But I'm afraid to say this, I have a night to myself! Yes. To me!! Without my husband!! *gasp* I don't know how I managed this but I did. The only thing ...

Losing my personality

  • By beachdog · New reply April 10, 2014
  • Journal · 56 replies
  • As I get weaker I don't have the energy to find interest in things so my world is shrinking. I'm doing so many things to keep healthy but the fatigue just won't let me go. When I have a bad few days I ...

Pulmonary Hypertension age 22

  • By Chanel2010 · New reply April 9, 2014
  • Discussion in My diagnosis · 2 replies
  • My doc finally gave the word today. She believes I have PAH, though we have not confirmed with a right heart catheter, I have all the signs and symptoms. Shortness of breath, chest pain, tachycardia ...

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