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Surprised the Neurologist Today
- By M_McF_M · New reply yesterday at 9:44 pm
- Journal · 12 replies
- The last time I saw my neurologist, he offered me pain medication, when I hadn't complained of pain. The time before that, he told me I had a definitive diagnosis of FSH muscular dystrophy, and that physical ...
"HYPOKALEMIA OR LOW POTASSIUM"
- By mandyblue · New reply yesterday at 8:02 pm
- Journal · 31 replies
- I want to share this research information in "My Journal". This is a very long collection of articles, that explains in great detail, about Hypokalemia or Low Potassium. It is for anyone who needs help ...
Dentist appt.....Are you kidding me??!!!!!!
- By Terri9967 · New reply yesterday at 12:34 pm
- Journal · 21 replies
- Ok.....went to my new dentist yesterday. After sitting there for 45 min and not being called, I approached the front desk and ask how much longer it was going to be? She told me that the phone repair ...
Mouth Ulcers?
- By gourmet115 · New reply November 6, 2009
- Discussion in Symptoms · 4 replies
- My 12 yo son who has been diagnosed with a connective tissue disorder has been suffering from relentless mouth ulcers (canker sores). They are very painful, long lasting and often bleed profusely. Does ...
Out Damn Spot!
- By dizzybee · New reply November 4, 2009
- Journal · 6 replies
- have been having trigeminal neuralgia (fancy word for pain from Hades) since around Sept. 23 -- been to ER twice one shot of dilaudel and next time a shot of morphine. Finally got an MRI -- i basically ...
Flu Shot
- By Pawndy · New reply November 4, 2009
- Journal · 6 replies
- I have four doctors and so far I have called three of them and they do not have the flu shot medicine. They have told me that the government has made it to difficult to get it. Monday I geuss I will call ...
Peeling & Painful Fingers
- By mrsbubbles98 · New reply November 2, 2009
- Journal · 13 replies
- I have been dealing with peeling fingers that are very painful. I was wondering if anyone else has had this happen to them. This just started about 2 months ago and has gotten progressively worse. I am ...
Angela Martinez- "That's Who I Am"
- By angelacountrystar · Posted November 1, 2009
- Journal · 0 replies
- First of all I would like to introduce myself to everyone before I start telling you my story. Actually it's a continuing story because I am young and I have so much more to experience in life before ...
Why I haven't been here for awhile.
- By Terri9967 · New reply November 1, 2009
- Journal · 21 replies
- Hi everyone Sorry I have not been on in awhile. I have had a really bad reaction to the Mino 7 days after upping my dose to everyday. Ended up with massive welts and severe itching!! I thought I was going ...
Find A New Dr
- By jolenegs · New reply October 30, 2009
- Journal · 4 replies
- I've learned more about my disease from this site and everyone here than from my rheumotologist in the last year and half. I've noticed muscles or tendons or whatever tightening up in my mouth or cheeks ...
Scary TV Show
- By anncooper · Posted October 29, 2009
- Discussion in In the news · 0 replies
- I am one of those people who sleeps with the TV on and during the night I woke up and Dr. G. Medical Examiner was on -- it had two terrifying stories on, one about a woman who had severe Lupus and died ...
my NIH experience
- By dizzybee · New reply October 29, 2009
- Journal · 32 replies
- THIS IS MY EXPERIENCE -- I HAVE TRIED TO LEAVE THE DOCTORS' INVOLVED NAMES OUT SO AS NOT TO CAUSE ISSUES -- AGAIN, THIS IS WHAT HAPPENED TO ME. Well, where to start--nurse took my vitals and some allergy ...
Deleted journal entries
- By anncooper · New reply October 28, 2009
- Journal · 3 replies
- A day or two ago I became paranoid again that what I said on the computer would come back to bite me in the butt and so I deleted all of my journals. I have found so many friends on this website but I ...
No shoulder pain, the brown socks are gone
- By M_McF_M · New reply October 28, 2009
- Journal · 5 replies
- Having a dislocated shoulder for the last two years has been aggravating. Not only could I not use my arm well, everything I tried to do was excruciating. The neurologist told me in March that it was ...
believe whats inside not only the outside
- By nyitalian · New reply October 27, 2009
- Journal · 10 replies
- i really believe people just look at a person ,and, make judgement, well, they really dont look sick, but, they donot relize of the things they dont see,you cant judge a book by its cover, to all of us ...
Finally...SS approval!!!!
- By Yvonda · New reply October 26, 2009
- Journal · 20 replies
- I finally...after 2 1/2 years of fighting...got my disability approval last week!!! I am so glad the fighting is over...seeing SS doctors...going before judges....all over finally!!! All I can say is...if ...
will work for health insurance?
- By Jacquieness · New reply October 25, 2009
- Discussion in Living with a connective tissue disorder · 2 replies
- Does anyone out there with severe symptoms able to hold down a job? I am half way through my graduate studies and realized I am in the wrong field for someone with all my hand problems. I have never imagined ...
When do I get to 'normal?'
- By M_McF_M · New reply October 21, 2009
- Journal · 7 replies
- Every day that goes by, I notice little changes for the better. My fingers are squishier, my skin is softer, my swelling is smaller, my brown feet are fading. The biggie this week is that my shoulder ...
What Helps?
- By mystory · New reply October 20, 2009
- Discussion in Living with a connective tissue disorder · 3 replies
- Hello I am 25 years old and was diagnosed with UCTD about two years ago. I am still struggling with how to live with this disorder. I find that I am getting depressed a lot off and on and that I fear ...
New diagnosis
- By Yvonda · New reply October 20, 2009
- Journal · 5 replies
- Well, everything was great when I learned 2 weeks ago that my s s disability was finally approved. I was in really good mood for a change. Had to see the doc on Monday. Had an ultra sound of my legs and ...
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