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The living dead
- By SillySally · New reply 4:19 am
- Journal · 83 replies
- I feel I've reached the point of no return. I am totally bed bound. I have hair so long that I can sit on it! It's always been my pride and joy! but now, I can't brush it, can't wash it, have had it hidden ...
MTHFR C677T gene mutation
- By Cinderrella · New reply yesterday at 8:47 pm
- Journal · 7 replies
- I was just told that I have this. I've been weak & tired for 30 yrs. Wondering if anyone has heard of this. Seems I can't metabolize Folic Acid ...
Five million
- By Brian · New reply yesterday at 4:06 pm
- Journal · 205 replies
- Dear members, Yesterday, Inspire reached a milestone: five million posts written by members! Each of these posts, and the 700 million words they contain, are a simple measure of how much we all do to ...
What now?????
- By Suzyqz · New reply yesterday at 2:40 pm
- Discussion in Living with a connective tissue disorder · 8 replies
- Hello to everyone I haven't been on the site or the computer for a bit. My diagnosis is Undifferentiated Inner Connective tissue Disease and M.S. I would like to present a question or two and throw it ...
Stay Strong - Stay Connected For EDS Awareness Campaign
- By NadiaBodkin · New reply yesterday at 2:44 am
- Journal · 6 replies
- Hello Everyone, I am posting this journal entry on behalf of EDSers United's 2013 EDS Awareness Campaign Initiative. As of January 1st, 2013 we have officially launched the Stay Strong - Stay Connected ...
UGH
- By Nerdykat · New reply May 17, 2013
- Journal · 12 replies
- So the last four nights I have had a TON of esophageal spasms. Today I got up for work, no big deal. While I was getting ready I started feeling cloudy, and a little dizzy. Then I went to talk to a friend ...
searching for specialist in NYC or LI
- By positive4U · Posted May 17, 2013
- Discussion in My diagnosis · 0 replies
- Diagnosed with systemic sclerosis and newly diagnosed and treatment of autoimmune hepatitis...Not sure if it's scleroderma, lupus or mixed connective tissue disorder and searching for a specialist in ...
Another day
- By Hearttree · New reply May 17, 2013
- Journal · 5 replies
- Had a very bad emotional day yesterday. Seemed like I just couldn't handle it. Had a doctor's appointment yesterday with my RA and expressed my feelings. Had everything recorded about my physical problems ...
Where are the good rheumatologists?
- By PearlChanel · New reply May 16, 2013
- Discussion in Treatment · 4 replies
- I am going to be honest, I thought that maybe many of the negative comments about rheumatologists on this site were either misunderstandings, a rarity or slight exaggeration. I work in the medical field ...
High blood calcium
- By Cinderrella · New reply May 16, 2013
- Journal · 4 replies
- Has anyone had experience with blood work that showed high calcium levels that weren't related to parathyroidism or cancer? I just repeated the test but I'm pretty nervous about it ...
keystone tesing
- By lori326 · Posted May 16, 2013
- Journal · 0 replies
- Anyone know about the new keystone tesing in pa and how to deal with EDS/disability and needing to test at a different time/day than the rest. My daughter is having trouble getting there to take AND FEELING ...
MCTD and bladder.....
- By barelracer02 · New reply May 16, 2013
- Discussion in Living with a connective tissue disorder · 1 reply
- i have a dx of MCTD, given 2 yrs ago, after probable MS, fibro, lupus, etc., were all used. so far it has cause pelvic organ prolapse (had partial hysto as a result) interstitial cystitis, stroke, optic ...
HELP
Mothers
- By mechelle3 · New reply May 14, 2013
- Discussion in Family and friends · 1 reply
- Just wanted to say, Happy Mother's Day to all the Mothers ...
Acid test
- By Tinkersue · Posted May 14, 2013
- Journal · 0 replies
- Yesterday I went to the hospital to see the surgeon over my hiatus hernia, he has told me to loose more weight, about a stone and a half, which isn't a problem, as I have already lost a stone. Anyway ...
YOU WON'T BELIEVE THIS...
- By SillySally · New reply May 13, 2013
- Journal · 22 replies
- So, I was in so much pain (chest) couldn't breathe! cough was ridiculous, finally, when the pain felt like pleuricy, we rang an ambulance! In hospital I was really pleased that I would finally get sorted ...
Before the diagnosis.
- By kandyson · New reply May 12, 2013
- Journal · 9 replies
- My wild ride to crazy town began about 8 years ago. A journey that would cause me to doubt my sanity, boil in rage and cry like a little girl. I was diagnosed last week with EDS and my emotions are raw ...
dermatomyositis?
- By elizabeth_sterling · New reply May 9, 2013
- Discussion in Symptoms · 2 replies
- My mom has MCTD and dermatomyositis. Currently, I'm diagnosed with UCTD, FM and autoimmune hep. Over the past year, I've noticed symptoms of DM; purplish spots on my eyelids, kneecaps and elbows, and ...
any advice is appreciated
- By whiteindianchief · New reply May 9, 2013
- Discussion in Symptoms · 1 reply
- Hello, I have dermatomyositis(today that is until they change the dx to something else). I am on pred and immuran, along with a host of bp pills, antidepressent, and other stuff. I already take a prilosac ...
At last an appointment
- By Tinkersue · New reply May 9, 2013
- Journal · 1 reply
- I have finally got a date for my Hiatus Hernia, the last appointment was not for the type I have, good enough the surgeon who I seen has sent my case to the right department, the date is 21 May, if they ...
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