I'm new here and just thought I would ask if anyone else has been diagnosed with VPI and Apraxia and what the outcome was? My 6 year old daughter was diagnosed with Apraxia when she was 2 and has had speech therapy for the past 4 years. She continues to have therapy in school. Along the way she was also diagnosed with VPI (velopharyngeal incompetency). She sounds "nasal" when she speaks. She has had therapy for that as well, but she will have to have surgery. In the mean time her doctor wants to have her checked for neurofibromatosis. Based on the speech findings and a single cafe au lait. Anyway, my question is, has anyone had these two speech problems without having neurofibromatosis? Has anyone had the VPI surgery and was it successful? I'm hoping to hear from someone with some insight.
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VPI and Apraxia
- By Mama4
- Posted June 10, 2009 at 11:30 am · 2 replies
- In Living with a communication disorder
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- By mmom
- Posted June 22, 2009 at 10:27 am
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Our daughter has a simular story. She also has apraxia and will be having VPI surgery this week. She is six and was diagnosed with apraxia at age 2. She has had speech therapy at school as well as private for 4 and a half years with little improvement.
- By Mama4
- Posted June 23, 2009 at 11:17 am
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I was just giving up hope that I would find someone with the same story, and here you are. Thank you for responding to my post. You have no idea how much it means to me. I needed to hear that VPI and apraxia can coexist without neurofibromatosis.
My daughter will not have the surgery until neurofibromatosis is ruled out. We are confident that it will because she is not meeting any of the criteria for it. Her apraxia has cleared up significantly with speech therapy but the nasallity continues. I am sorry to hear that your daughter has not had much improvement. It is so difficult and frustrating for her and you, as her mother. We all want the best for our kids.
I will be thinking of your daughter this week and hoping that everything will go smoothly for her. What day is her surgery? Our doctor recommended some sort of sphincterplasty surgery, is this the same for your daughter? I am curious to know how she does.
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All the best and take care.
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