CLOVES Syndrome Community was developed with the understanding that when parents and loved ones are informed, empowered, and connected with others facing similar challenges, they will be better equipped to support their child's medical, emotional, and physical needs. Our mission is to support, educate, empower and improve the lives of those affected by CLOVES Syndrome. Our vision is an improved quality of life for people with CLOVES Syndrome. More about this group
Five million
- By Brian · New reply May 18, 2013
- Journal · 205 replies
- Dear members, Yesterday, Inspire reached a milestone: five million posts written by members! Each of these posts, and the 700 million words they contain, are a simple measure of how much we all do to ...
Welcome New Members!
- By KPDavis · New reply May 17, 2013
- Discussion in Introductions · 18 replies
- Please introduce yourselves here ...
A new Inspire report in collaboration with Stanford Medical School
- By Brian · New reply May 5, 2013
- Journal · 84 replies
- As many of you know, Inspire has a professional collaboration with the Stanford University School of Medicine. Inspire members have written personal stories for the Stanford Scope column. I am pleased ...
Scholarship for people with CLOVES
- By KPDavis · Posted April 28, 2013
- Discussion in Resources for kids and families · 0 replies
- Just a reminder about the CLOVES Family Scholarship program http://www.clovessyndrome.org/page.cfm?p ageid=49 This is a program to help people living with CLOVES offset some of the long term financial ...
New Research Opportunity at National Institutes of Health
- By KPDavis · Posted April 23, 2013
- Discussion in CLOVES research · 0 replies
- Dear Friends and Families with CLOVES Syndrome: CLOVES Syndrome Community is pleased to announce that the National Institutes of Health/NIH (the organization that studied and discovered the genetic mutation ...
The Inspire Q&A: Inspire talks with Deanna Attai, MD
- By John2 · New reply April 16, 2013
- Journal · 16 replies
- Dear members, We at Inspire are pleased to bring you the latest in a series of Q&A interviews with people who are making contributions to helping patients and caregivers worldwide. The people in this ...
The Inspire Q&A: Inspire talks with Lindsey Miller
- By John2 · New reply February 6, 2013
- Journal · 13 replies
- We at Inspire are pleased to bring you the latest in a series of Q&A interviews with people who are making contributions to helping patients and caregivers worldwide. The people featured in our Q&A series ...
We're hiring!
- By Walter · Posted January 22, 2013
- Journal · 0 replies
- Hello everyone, We have a position open with our engineering team at Inspire, and I'd like to share the job description with you in the event you know just the person we're looking for. We found our most ...
Tatum 5 Years old
- By SimoneR · New reply January 5, 2013
- Discussion in Introductions · 1 reply
- Hi All, My name is Simone Rowland My daugther Tatum was born on 07/03/2008 Such a beautiful little girl. I will upload a couple of photo's for you. People can be so cruel - asking questions (i dont mind ...
CLOVES Syndrome Community Mailing List
- By KPDavis · Posted December 27, 2012
- Discussion in Resources for kids and families · 0 replies
- To stay up to date on updates about CLOVES, sign up for our mailing list http://bit.ly/WJNSQK Best wishes Kristen Davis CLOVES Syndrome Community ...
Introductions!
- By KPDavis · New reply December 2, 2012
- Discussion in Introductions · 8 replies
- Hi all - please introduce yourself here, if you are a parent of a child /person living with CLOVES, as we've had several new members join - thanks ...
Genetic Mutation
- By GodsKid31162 · New reply November 14, 2012
- Discussion in CLOVES research · 2 replies
- If the cause of Cloves Syndrome is a genetic somatic, mosaic mutation, what does that mean for a parent that has/had a Cloves Syndrome child and is again pregnant. Is is likely she will give birth to ...
Welcome New Members!
- By KPDavis · Posted July 7, 2012
- Discussion in Managing CLOVES · 0 replies
- Thanks for joining!! Soon we will have a discussion called - Introductions - but for now, we can introduce ourselves here ...
CLOVES gene mutation found - what are your thoughts?
- By KPDavis · Posted July 5, 2012
- Discussion in CLOVES research · 0 replies
- On May 31, 2012 researchers at Boston Children's Hospital announced that they had identified the genetic cause for CLOVES Syndrome - a somatic, mosaic mutation. I have many questions about what comes ...
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The CLOVES Syndrome Community connects those affected by CLOVES syndrome for support, education, and inspiration. This community is sponsored by CLOVES Syndrome Community, an Inspire trusted partner.
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