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Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
How - Joining Inspire is completely free and usually takes less than a minute. Join now!
Journals
Music for change
- By essenia · Posted July 25, 2009
- 7 replies
- It brought tears when I listed to this great music video. It is just 5 minutes long. Ladies, I'm wondering what music, CD's or Dvd's you are finding wonderful to hear. Hope you can open this , encl. below ...
Travel Adventures/Suggestions for an Unexpected Trip to the ER
- By cherigit · Posted July 19, 2009
- 1 reply
- Last week, after returning from a fun vacation to see family, I headed out to travel for work. My cousin started getting sick the day before we left but I felt fine. Late Monday night I started to cough ...
Fahr's disease
- By DougB · Posted July 18, 2009
- 3 replies
- My grandfather was diognosed with Fahr's in the late 70's and lived another 12 years. He was in his early 70's when he passed. At the time he was diognosed, Mayo thought 50% of his downline, might get ...
June/July Issue of the Medical Heroes Newsletter
- By TeamCISCRP · Posted July 8, 2009
- 0 replies
- We just sent out the latest edition of the Medical Heroes Newsletter to view it click on this link http://tinyurl.com/MedHero2 ...
Share your story via video!
- By TeamInspire · Posted June 15, 2009
- 28 replies
- Sometimes the most powerful message each of us can share is our personal story -- our own experience. With upcoming healthcare legislation pending, one way we can be advocates is to share these stories ...
Follow Inspire on Twitter and Facebook!
- By TeamInspire · Posted June 10, 2009
- 32 replies
- We're happy to announce that you can now stay in touch with what's happening at Inspire by following us on both Twitter and Facebook. While Inspire communities are still the best places to connect with ...
Guestbooks are now live!
- By TeamInspire · Posted May 26, 2009
- 6 replies
- Hello everyone, Last week we mentioned that we'd be adding guestbooks to Inspire in the near future, and they are now live! We're very excited about this feature and hope you enjoy it. To check out your ...
Guestbooks - An exciting addition to Inspire
- By TeamInspire · Posted May 20, 2009
- 35 replies
- Hello everyone, We're writing to let you know about a great new feature we'll be adding to Inspire in the very near future: guestbooks. This is a feature that many of you have requested, and we're very ...
This Hannah...
- By StephLynStill · Posted May 14, 2009
- 0 replies
- This what infantile Lysosomal Disease does ...
Moms, you rock!
- By TeamInspire · Posted May 1, 2009
- 0 replies
- Looking for a unique and extraordinary way to say "thank you" to your mom? In honor of Mother's Day, good friend of Inspire Dr. Gwenn (of http://www.PediatricsNow.com and http://www.DrGwennIsIn.com) will ...
Dogs & Disorders
- By StephLynStill · Posted April 20, 2009
- 2 replies
- I had the opportunity to meet about 5 dogs with Lysosomal Disease (mps, I think), about a year ago. It was really an eye-opening and amazing experience. Now, I keep finding more and more articles about ...
Caregivers..........
- By HopeNskinny · Posted April 5, 2009
- 2 replies
- Never give up. I found that there is more to life then just living. Its called, "Love from a caregiver"! Many people toss out the word, "love" but no one knows the real meaning other then a true caregiver ...
Tell me.
- By cjolie · Posted March 18, 2009
- 15 replies
- tell me, where did it go, the hopes that i had the belief, that all would be well. when did it get replaced by memories, distant, not quite real, of rainbows and sunlight, stardust glittering on the snow ...
Reflections
- By cjolie · Posted March 14, 2009
- 5 replies
- an open book, a pool of water, a starry night, pale moonlight. a penny. a nickle. a dime. a glass of cold wine. seeing yourself in his eyes for the very first time. your firstborn son. grapes fresh off ...
Lyso-What?
- By StephLynStill · Posted March 9, 2009
- 4 replies
- Just in case you haven't seen it. ;) xoxo s **ps - that's my kiddo ...
Amazing Experience
- By StephLynStill · Posted February 24, 2009
- 5 replies
- I have been living in the "LysoWorld" now for about six years. I started very pinpointed with one particular disorder (there are over 60 - most w/ ridiculously hard names to pronounce). It took a long ...
Noscapine
- By StillBattling · Posted January 7, 2009
- 1 reply
- Came across this word yesterday and decided to research it. What I found was astounding. Noscapine is an old medicine found in cough syrup in Europe and Asia. Current clinical trials are on the effects ...
NIH news oct.30,2008
- By 1stukie · Posted December 5, 2008
- 0 replies
- title of page is Researchers Identify Mechanism and Possible Drug Treatment for Growth of Nerve Tumors in Neurofibromatosis. website is http://www.nih.gov/news/health/oct2008/n inds-30.htm . Probably ...
New group in Inspire: The National Body Challenge
- By Brian · Posted December 4, 2008
- 25 replies
- I am pleased to announce that today we added a new group to Inspire: The National Body Challenge. nationalbodychallenge We created this group in partnership with Discovery Health. The group focuses on ...
frustrating search
- By dragonfly44 · Posted November 27, 2008
- 9 replies
- NHIS dont acepted me in a trial....and in Peru if imposible to make the regulars test to determine if i have Isaacs, Stiff man. now tell me also Reynaud...tomorrow i dont.....better are make my bag to ...
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