My grandfather was diognosed with Fahr's in the late 70's and lived another 12 years. He was in his early 70's when he passed. At the time he was diognosed, Mayo thought 50% of his downline, might get Fahr's and only the men. Out of his 8 children, 6 have the Fahr's, 3 ladies & 3 men, one of the men has passed. The ages of the group that has the Fahr's is between 55 and 73. All are in wheel chairs. The progression of my family has went from using canes to walkers, then wheel chairs, then bed ridden. I'm not stateing these things to frighten anyone, but to explain the facts. We have been in a study of the disease since November 28th, 2000 with the Mayo Clinic.
http://www.ninds.nih.gov/disorders/fahrs/fahrs.htm
Not alot of progress has been gained in our studies, but they are doing gene studies that might be helpfull.
Dr J.L. Groudreau is the investigator that we deal with.
I have noticed with my mother, excercise seems to help with her motor skills.
Doug
Already a member? Sign in
Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
How - Joining Inspire is completely free and usually takes less than a minute. Join now!
Fahr's disease
- By DougB
- Posted July 18, 2009 at 7:23 am · 3 replies
- Shared with the public
0 Recommendations
Posted in:
