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All new and active discussions & journals
frustrating search
- By dragonfly44 · New reply 7:59 am
- Journal · 9 replies
- NHIS dont acepted me in a trial....and in Peru if imposible to make the regulars test to determine if i have Isaacs, Stiff man. now tell me also Reynaud...tomorrow i dont.....better are make my bag to ...
Share your story via video!
- By TeamInspire · New reply June 23, 2009
- Journal · 28 replies
- Sometimes the most powerful message each of us can share is our personal story -- our own experience. With upcoming healthcare legislation pending, one way we can be advocates is to share these stories ...
Save the Date! AWARE for All- Boston
- By TeamCISCRP · Posted June 17, 2009
- Discussion in What you need to know before participating · 0 replies
- AWARE for All- Clinical Research Education Day is an educational program that is free and open to the public for the purpose of providing education to help people make informed decisions about clinical ...
Save the Date! AWARE for All- The Triangle (Raleigh, Durham, Chapel Hill)
- By TeamCISCRP · Posted June 17, 2009
- Discussion in What you need to know before participating · 0 replies
- AWARE for All- Clinical Research Education Day is an educational program that is free and open to the public for the purpose of providing education to help people make informed decisions about clinical ...
Follow Inspire on Twitter and Facebook!
- By TeamInspire · New reply June 12, 2009
- Journal · 32 replies
- We're happy to announce that you can now stay in touch with what's happening at Inspire by following us on both Twitter and Facebook. While Inspire communities are still the best places to connect with ...
Guestbooks - An exciting addition to Inspire
- By TeamInspire · New reply June 9, 2009
- Journal · 36 replies
- Hello everyone, We're writing to let you know about a great new feature we'll be adding to Inspire in the very near future: guestbooks. This is a feature that many of you have requested, and we're very ...
CISCRP is on Twitter!
- By TeamCISCRP · Posted June 5, 2009
- Discussion in Support for clinical research participants and families · 0 replies
- CISCRP is now on Twitter and Facebook! We are looking to build our following and are asking you to join! Just search for CISCRP on the Twitter and Facebook site and request to be added. We will be updating ...
CISCRP's Medical Heroes Newsletter
- By TeamCISCRP · Posted June 5, 2009
- Discussion in What you need to know before participating · 0 replies
- Hi Everyone, In April, CISCRP, launched its new 'Medical Heroes' newsletter which is our new newsletter for the public and patients. The goal of the newsletter is to honor and educate the medical heroes ...
Looking for Medical Heroes to tell their story!
- By TeamCISCRP · New reply June 4, 2009
- Discussion in Support for clinical research participants and families · 3 replies
- CISCRP is looking for people who have previously participated in a clinical trial. Every month the DIA's Global Forum publication will feature one of CISCRP's Medical Heroes. To get an idea of what the ...
Guestbooks are now live!
- By TeamInspire · New reply June 3, 2009
- Journal · 3 replies
- Hello everyone, Last week we mentioned that we'd be adding guestbooks to Inspire in the near future, and they are now live! We're very excited about this feature and hope you enjoy it. To check out your ...
Dogs & Disorders
- By StephLynStill · New reply May 30, 2009
- Journal · 2 replies
- I had the opportunity to meet about 5 dogs with Lysosomal Disease (mps, I think), about a year ago. It was really an eye-opening and amazing experience. Now, I keep finding more and more articles about ...
CISCRP is on Facebook
- By TeamCISCRP · Posted May 27, 2009
- Discussion in Support for clinical research participants and families · 0 replies
- CISCRP has just developed its own Facebook page! This is just an additional social networking site that you can utilize to connect with other people who have questions about clinical trials or just want ...
Would like to speak with other healthy volunteers
- By Hgirl · New reply May 23, 2009
- Discussion in Why choose to participate? · 1 reply
- Hi - I'm writing a story for the Boston Herald about clinical studies and participating in them safely. I was wondering if someone who's been involved as a healthy subject in a longer-term study (such ...
This Hannah...
- By StephLynStill · Posted May 14, 2009
- Journal · 0 replies
- This what infantile Lysosomal Disease does ...
Moms, you rock!
- By TeamInspire · Posted May 1, 2009
- Journal · 0 replies
- Looking for a unique and extraordinary way to say "thank you" to your mom? In honor of Mother's Day, good friend of Inspire Dr. Gwenn (of http://www.PediatricsNow.com and http://www.DrGwennIsIn.com) will ...
Looking for new trials???
- By Thoreau85 · New reply April 11, 2009
- Discussion in How do clinical trials work? · 1 reply
- I know many people want to participate in clinical trials for whatever reason, but the task of finding the appropriate trials can be difficult. There are a variety of search engines/listing services that ...
Amazing Experience
- By StephLynStill · New reply April 10, 2009
- Journal · 4 replies
- I have been living in the "LysoWorld" now for about six years. I started very pinpointed with one particular disorder (there are over 60 - most w/ ridiculously hard names to pronounce). It took a long ...
Lyso-What?
- By StephLynStill · New reply April 9, 2009
- Journal · 4 replies
- Just in case you haven't seen it. ;) xoxo s **ps - that's my kiddo ...
Is it Safe to Go Under the Microscope?
- By TeamCISCRP · New reply April 8, 2009
- Discussion in What you need to know before participating · 1 reply
- Below is the link to a news report that ran on the local DC Fox station last night about clinical trials. While the story was teased as “a way to earn money in tough economic times” the report itself ...
Caregivers..........
- By HopeNskinny · New reply April 6, 2009
- Journal · 2 replies
- Never give up. I found that there is more to life then just living. Its called, "Love from a caregiver"! Many people toss out the word, "love" but no one knows the real meaning other then a true caregiver ...
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The Clinical Research Volunteers Community connects patients, families, friends and caregivers for support and inspiration. The Clinical Research Volunteers Community is sponsored by the Center for Information and Study on Clinical Research Participation in partnership with Inspire.