Clinical Research Volunteers Community

The Clinical Research Volunteers Community connects patients, families, friends and caregivers for support and inspiration... More about this group

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Inspire is hiring!

By Walter · New reply January 20, 2012
Journal · 15 replies
Inspire is hiring, and we're wondering if you know someone who would be the perfect addition to our team. Hello everyone, I'm Walter, one of Inspire's founders and the head of our technical team. I'm ...

trip to Colorado

By slee56 · New reply January 17, 2012
Journal · 4 replies
I went to the University of Colorado for an EUS one area looked abnormal on the porta hepta in my liver.Cytologist was present for biospy. Waiting for results and will deal with whatever at the time Worrying ...

glomus tympanicum

By myneurotica · Posted January 15, 2012
Journal · 0 replies
Just finished my radiation treatment for the glomus tympanicum tumor. I am wondering if anyone else out there has had this and/or the glomus juglare. I have had this on both sides, which I have been told ...

The Inspire Q&A--Inspire talks with Susan Grant

By John2 · New reply January 13, 2012
Journal · 26 replies
Dear readers, We at Inspire are pleased to bring you the latest in a series of interviews with people making contributions to helping patients and caregivers worldwide. We are posting these interviews ...

tinnitus

By mrfixit38671 · Posted January 8, 2012
Discussion in Why choose to participate? · 0 replies
I have been a long time suffering from tinnitus. it sounds like a computer monitor screaming in both ears 24/7 with no relief. sometimes its louder than others. I have been to shey clinic and about 5 ...

New CISCRP Newsletter

By janepublic · Posted January 3, 2012
Journal · 0 replies
The newest CISCRP newsletter is here! http://www.ciscrp.org/patient/medheroes/ newsletters/dec11/clinical-research-deme ntia-what-to-do.html. Also, if you join or mailing list, you will get the next newsletter ...

The Inspire Q&A--Inspire talks with Michele Baldwin

By John2 · Posted January 3, 2012
Journal · 0 replies
Dear readers, We at Inspire are pleased to bring you the latest in a series of interviews with people making contributions to patients and caregivers worldwide. We are posting these interviews in a Q&A ...

for my sister

By Bklynmike · New reply December 27, 2011
Journal · 4 replies
we, fly to honor her, perhaps to speak to her one more time, before leave taking, perhaps to whisper gently, I love you to her and kiss her, one more time, before she is gone, We go to honor her, we honor ...

The Car

By Mickeral · New reply December 27, 2011
Journal · 46 replies
Dear Fellow Travelers: Today's story is fresh. I was fortunate today to be able to help an elderly lady find her car in a Walmart parking lot. Probably nothing can be as exasperating as a lost car at ...

Fahr's Journal recognizing symptoms

By Dani-Sue · New reply December 25, 2011
Journal · 5 replies
My family has Fahr's disease. Two of my children were diagnosised a little over a month ago. We are still learning about the disease, symptoms, and progression. This is our story.. Almost 2 years ago ...

skin

By legbag33 · New reply December 21, 2011
Journal · 15 replies
is anyone haveing trouble with skin irratation under your pouch, if so i would like to hear and share what you do to stop skin from weeping and being irreated i will share what things i do. i use vinagar ...

thought I would post a joke of the day

By Bklynmike · New reply December 15, 2011
Journal · 2 replies
How many steroids does it take to change a light bulb? Light bulbs who needs light bulbs? I now have lazer eyes. i glow and can move objects by staring at them. talk about winninggggggggggggggggggggg ...

short biography.

By Bklynmike · New reply December 14, 2011
Journal · 1 reply
I am 61 and was born in Brooklyn, New York. I was lucky enought to be employed by a large telecommunications company and it allowed me to relocate to Texas back in the seventies. It is hard to believe ...

light at the end of the tunnel

By fahrs · Posted December 13, 2011
Discussion in How do clinical trials work? · 0 replies
Hi, I have been diagnosed with fahrs disease and wonder whether there are any trials for any drugs to help / stop the progression of the disease ...

looking back this year

By lubyloo · New reply December 8, 2011
Journal · 36 replies
i was in deep thought today,looking back this year,and my time with inspire,and how so much as changed ,there as been weddings births and loss of people we love,i have talked for hours about pain in our ...

Following: A new Inspire feature

By Walter · New reply December 5, 2011
Journal · 111 replies
Hello everyone, I'm writing to let you know about a new Inspire feature that we launched last night, designed to help you keep track of conversations you're interested in. We call it "following" and here's ...

how would we get involved with ivf trials

By momofmultiples · New reply November 11, 2011
Discussion in How do clinical trials work? · 1 reply
Yes I am a mother of twins and had another child after that. I did have a tubal but I have since remarried and my husband and I would absolutely love to have a child of our given that he does not have ...

November - Pieces of Eight

By Mickeral · New reply November 11, 2011
Journal · 45 replies
Now and then we had a hope that if we lived and were good, God would permit us to be pirates. Mark Twain I hope that those of you who read this post can stop for a moment and think about Twain's statement ...

NORD support for Fibromuscular Dysplasia

By FMDAdvocate · Posted October 18, 2011
Journal · 0 replies
Just want to say thanks to NORD staff who did such a great job organizing the 1st US Conference for rare diseases and orphan products last week. The Fibromuscular Dysplasia Society of America appreciates ...

Patient-driven research

By Brian · Posted October 13, 2011
Journal · 0 replies
I'd like to share with you a new Inspire report, The SCAD Ladies Stand Up: Stories of Patient Empowerment, which chronicles patient-initiated research in our community. This amazing patient-driven effort ...

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About this community

The Clinical Research Volunteers Community connects patients, families, friends and caregivers for support and inspiration. This community is sponsored by the Center for Information and Study on Clinical Research Participation, an Inspire trusted partner.