Clinical Research Volunteers Community

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And still we fight on

By StillBattling · New reply 12:45 am
Journal · 6 replies
Back home from the Cancer Centers of America, man was that a fiasco. I'm back under the care of a local Dr and I'm still fighting away. I start a new chemo regiment on the 27th. Its supposed to be a phase ...

A few more words about privacy

By Brian · New reply August 27, 2010
Journal · 76 replies
All of us at Inspire care a great deal about your privacy and work hard to ensure the information you trust us with is kept safe. We designed Inspire so that you have complete control over how your personal ...

anoxic brain injury

By viper · Posted August 22, 2010
Discussion in Support for clinical research participants and families · 0 replies
where do people's families turn to when if seems that every thing the doctors look at couldn't possibly help my wife, i asked , i looked into online and brought it to the attention to the doctors and ...

Port vs IV

By Chansen95762 · New reply August 20, 2010
Journal · 28 replies
Hi All, I hope this note finds you all well. I'm fairly new to all this and although diagnosed just a month ago with stage 4 ov ca I've already had four weekly chemo treatments. I have trouble with rolling ...

Shingles?? NOOOOOO, but

By LizardmyOli · New reply August 17, 2010
Journal · 4 replies
it was another infection even after my incision had completely healed!!!!! Talk about frustration and I am frustrated. I have now had my 6th open head/brain surgergy in 18 months!! It is the same bug ...

white coat syndrone

By ccgirl44 · Posted August 15, 2010
Discussion in Why choose to participate? · 0 replies
When I go to a screening my blood pressure is high, 150-160, but it is not like that at home or at my primary doctors. I am not getting into studies because of this, everything else is fine. It is called ...

MRI

By LizardmyOli · New reply August 13, 2010
Journal · 12 replies
You learn something new all the time with rare disorders. I thought I had a plastic plate in my head, but found out that it is titanium? I wondered why it was taking the local hospital so long to figure ...

SHINGLE again!!!!!!

By LizardmyOli · New reply August 5, 2010
Journal · 3 replies
I had shingles on my freakin head a few weeks ago, did not look like it to me, but it was, it cleared up with meds, and yesterday it is backagain??? My doctor is treating it again, but is postponing my ...

Diabetes Research Study

By G9 · New reply August 1, 2010
Discussion in Why choose to participate? · 3 replies
I have been asked to participate in a diabetes research study. I don't know any details yet. Some of my friends are adament that I should not enter the study. They fear it could be dangerous. I am undecided ...

Caring for your body armor -- skin care

By Mickeral · Posted July 30, 2010
Journal · 0 replies
I am attaching a link to a site that has a lot of good information that all of us should be aware of: Our skin is much more than something to tan, to bathe, and to apply makeup to--- it is literally the ...

Never try to do everything at once

By DragonFire · New reply July 29, 2010
Journal · 20 replies
OK, so I admit it, I'm one of those dopes who always tries his best to do more then he can, and then pays the price later. They say pride goeth before a fall and in this case they were right! I went home ...

Vitamin world

By LizardmyOli · New reply July 18, 2010
Journal · 2 replies
My doctor put me on 3,000 mg of Fishoil a day, then added vitamin D once a day, andI also recieve a B12 shot and take an iron supplement on top of that! I believe it is right to do what is best, and the ...

Dad's 60th Birthday, Creative Free Ideas

By renielou · New reply July 17, 2010
Journal · 23 replies
My Dad's 60th birthday is on July 16th and I am, pretty BROKE. I know the whole, oh "all I need is love" crap, but I want to do something special for him. He is letting me live with them [my folks] and ...

Today is.....

By LizardmyOli · Posted July 11, 2010
Journal · 0 replies
My 4th day of Temador for the 5 day cycle and then I read that they are recalling Temador??? Did anyone else hear this? I thought there were enough studies to justify its safety over, or in addition to ...

Long Day

By LizardmyOli · New reply July 8, 2010
Journal · 1 reply
We did it, we hit 100 degrees today and I was out in it with my hat, sunscree, and long jeans, worked in the morning, chased down prescriptions, and got my motorcyle to the new house!! ZOOOOOM, ZOOOOOM ...

Thinking of options

By noexcuse09 · Posted July 2, 2010
Journal · 0 replies
I would like to hear from some folks who have done the Lap Band... both good and bad. I'm starting to think it might be worth checking out... I had a good friend who passed away from complications of ...

To Know Or Not To Know About The Dangerous Actonel Drug/Procter and Gamble

By Helpfulness · New reply June 27, 2010
Journal · 1 reply
To Know Or Not To Know About The Dangerous Namely Actonel Drug/Procter And Gamble Behind Information Is Knowledge, as well as, in ones, brain. There are really people out there, who would rather know ...

A New Approach to Treating Cancer

By Chansen95762 · New reply June 26, 2010
Journal · 23 replies
http://www.ted.com/talks/william_li.html ?utm_source=newsletter_weekly_2010-06-08 &utm_campaign=newsletter_weekly&utm_medi um=email Let me know your thoughts ...

esophageal cancer

By cathibiv · Posted June 23, 2010
Discussion in Why choose to participate? · 0 replies
Esophagaus, liver, lung, stage 4 ...

Actonel/Procter And Gamble/Links That Makes A Differents

By Helpfulness · Posted June 22, 2010
Journal · 0 replies
To the Public Actonel/Procter And Gamble/Links That Make A Different, And Will Help You Understand What You Are Up Against. About, Actonel. Beware, what is really scary about Actonel is not even an X-ray ...

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The Clinical Research Volunteers Community connects patients, families, friends and caregivers for support and inspiration. The Clinical Research Volunteers Community is sponsored by the Center for Information and Study on Clinical Research Participation in partnership with Inspire.