The Clinical Research Volunteers Community connects patients, families, friends and caregivers for support and inspiration... More about this group
All new and active discussions & journals
Inspire members featured
- By Brian · New reply November 4, 2009
- Journal · 29 replies
- Today Massachusetts General Hospital's Proto Magazine published a wonderful profile of nine Inspire members. Each of these stories underscores what we all know to be true -- that Inspire is a special ...
anyone willing to share his/her experience
- By nwjourno · New reply October 26, 2009
- Discussion in How do clinical trials work? · 2 replies
- I am a journalism student covering health and science for Northwestern university. I am trying to do a story about clinical trials volunteers. If anyone on this forum would like to share his/her experience ...
California Medical Cannabis
- By LAsky26 · New reply October 24, 2009
- Journal · 11 replies
- Dealing with chronic pain and fibromyalgia for nine years plus. I have tried all the therapies, medications, biofeedback, you name it. Temporary to minimal relief. Long term pain medication management ...
hello
- By kellyjoe · New reply October 23, 2009
- Journal · 3 replies
- hello new to site kellyjoe ...
Medical Heroes Newsletter
- By TeamCISCRP · New reply October 22, 2009
- Discussion in What you need to know before participating · 1 reply
- CISCRP is in the process of putting together it's next Medical Heroes Newsletter geared towards participants and anyone interested in clinical trials. To read previous issues of the Medical Heroes Newsletter ...
CISCRP is helping me find trials!!
- By Thoreau85 · Posted October 22, 2009
- Discussion in How do clinical trials work? · 0 replies
- I just tried out CISCRP's service where they take down your information and do a search for clinical trials in your area. It was really easy, i gave them basic info about myself and the kind of trial ...
Fahr's disease
- By DougB · New reply October 21, 2009
- Journal · 3 replies
- My grandfather was diognosed with Fahr's in the late 70's and lived another 12 years. He was in his early 70's when he passed. At the time he was diognosed, Mayo thought 50% of his downline, might get ...
help
- By kellyjoe · New reply October 18, 2009
- Journal · 4 replies
- looking for help researching fahr's disease for loved one ...
Music for change
- By essenia · New reply October 15, 2009
- Journal · 7 replies
- It brought tears when I listed to this great music video. It is just 5 minutes long. Ladies, I'm wondering what music, CD's or Dvd's you are finding wonderful to hear. Hope you can open this , encl. below ...
Help
- By marcth · New reply October 5, 2009
- Journal · 1 reply
- Looking for docor/researcher interested in mosaicism/chimerism 46xy/46xx ...
Tell me.
- By cjolie · New reply October 4, 2009
- Journal · 15 replies
- tell me, where did it go, the hopes that i had the belief, that all would be well. when did it get replaced by memories, distant, not quite real, of rainbows and sunlight, stardust glittering on the snow ...
CT Scan - Hurray!
- By pleiades · New reply September 29, 2009
- Journal · 12 replies
- I am so excited to have gotten an "all clear" report from the doctor. My scan and blood work were great so I go back in six months. Whew! I am so glad that visit is over. Thanks for all of your good wishes ...
Long awaited CT day
- By pleiades · New reply September 28, 2009
- Journal · 3 replies
- Today's the day to find out what's going on in these lungs of mine! I feel that it's gonna be NED. Yay! However, I am prepared for whatever may be happening in there. I'll certainly be glad when this ...
Prolonged migraine aura without headache
- By perlina · New reply September 21, 2009
- Journal · 4 replies
- Along with my autoimmune problems, I have had migraines since I was 6 years old. First I had classic migraines (one side of head throbbing, photophobia, vomiting), then I entered a long stretch where ...
Depressed
- By ann042965 · New reply September 17, 2009
- Journal · 9 replies
- I really feel down and I just don't like it. I rather sleep and sometimes it gets in the way of taking care of my children. Like getting up in time to get them on the bus for school :( . Oh well that ...
Amazing Experience
- By StephLynStill · New reply September 6, 2009
- Journal · 5 replies
- I have been living in the "LysoWorld" now for about six years. I started very pinpointed with one particular disorder (there are over 60 - most w/ ridiculously hard names to pronounce). It took a long ...
RCR is in the news for H1n1 research!
- By AdamRCR · Posted September 3, 2009
- Discussion in Support for clinical research participants and families · 0 replies
- Check out this news report on Rochester Clinical Research's H1n1 studies: http://rochesterhomepage.net/content/vid eo/?cid=115511 ...
Guestbooks are now live!
- By TeamInspire · New reply August 15, 2009
- Journal · 6 replies
- Hello everyone, Last week we mentioned that we'd be adding guestbooks to Inspire in the near future, and they are now live! We're very excited about this feature and hope you enjoy it. To check out your ...
A MUST READ!
- By Rj · New reply August 14, 2009
- Journal · 16 replies
- This letter was posted as an open letter from an oncologist, but reveals much more ...
5 minutes on the lysosome. Because it's time we know.
- By StephLynStill · Posted August 13, 2009
- Journal · 0 replies
- So did you ever wonder what happens to the tadpole's tail? Does it just fall off? No actually. Lysosomes eat it. (autophagy: the cell's ability to eat itself...) And the webbing in our fingers and toes ...
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About this group
The Clinical Research Volunteers Community connects patients, families, friends and caregivers for support and inspiration. The Clinical Research Volunteers Community is sponsored by the Center for Information and Study on Clinical Research Participation in partnership with Inspire.