The Clinical Research Volunteers Community connects patients, families, friends and caregivers for support and inspiration... More about this group

Healthy Volunteers

buddyholt
  • By buddyholt · Posted April 14, 2014
  • Discussion in How do clinical trials work? · 0 replies
  • Hi! I have never done any clinical research studies but I am interested in getting started. I currently live in San Diego and have some free time. Where do I find clinical research studies for volunteers ...

The Inspire Q&A: Inspire talks with Don Dizon, MD

John2
  • By John2 · New reply March 19, 2014
  • Journal · 12 replies
  • The Inspire Q&A: Inspire talks with Don Dizon, MD Dear members, We at Inspire are pleased to bring you the latest in a series of Q&A interviews with people who are making contributions to helping patients ...

Our second annual report with Stanford Medical School

Brian
  • By Brian · Posted March 19, 2014
  • Journal · 0 replies
  • We just finished a brand new special report, “Experts by experience 2014: A compilation of patients’ stories”, in partnership with the Stanford University School of Medicine. It is a 31-page collection ...

Hitting a milestone -- 5,000 photos posted already

John2
  • By John2 · Posted March 18, 2014
  • Journal · 0 replies
  • From: John Novack, communications director, Inspire 3/18/14 Dear members, I'm writing to let you know that in a little more than a month, members here have posted more than 5,000 photos. Congratulations ...

Sources sought for article about co-insurance to pay for specialty drugs

John2
  • By John2 · Posted March 13, 2014
  • Journal · 0 replies
  • From: John Novack, Communications Director, Inspire 3/13/14 Dear members A healthcare journalist with the Associated Press (AP) is seeking more people to interview for an article she is researching on ...

Cirrhosis Stem Cell Therapy

Mel413
  • By Mel413 · New reply February 28, 2014
  • Journal · 7 replies
  • This sounds great, however I haven't seen much of the research done in the USA. Please read the insert from the Institute of Cell Therapy; The use of stem cells and tissue therapy due to the method of ...

The Inspire Q&A: Inspire talks with Kathy Nieder, MD

John2
  • By John2 · New reply February 23, 2014
  • Journal · 36 replies
  • The Inspire Q&A: Inspire talks with Kathy Nieder, MD By John Novack, Communications Director, Inspire Dear members, We at Inspire are pleased to bring you the latest in a series of interviews with people ...

cd47

joewilliebert7173

My Pain

pinkfaith1
  • By pinkfaith1 · Posted February 21, 2014
  • Journal · 0 replies
  • In 2005 right After I had graduated from high school I was diagnosed with Lupus. In February 2008 my Dr. Requested for me to get a kidney biopsy. Dr who did my biopsy ruptured two of my arteries and my ...

Any suggestions in Houston TX Healthy participants

jmack2009

Side effects

julieshrive
  • By julieshrive · Posted February 20, 2014
  • Journal · 0 replies
  • How does thyroxine & statins interact as getting acute bouts of excrutiating pain & spasicity relating to chronic utis - spina bifida occulta.Mother had PMR & suspect complications masked by multi infart ...

Why did A&E say Urology & Cardiology would investigate.This hasn't happened

julieshrive
  • By julieshrive · Posted February 18, 2014
  • Journal · 0 replies
  • Told I didn't have asthma before my MI- heart attack when died x3 with poor pumping of oxygen when haematura not investigated fairly .The same for borderline fibrillation & apnea since. Finally just been ...

Introducing Photos for Inspire

Walter
  • By Walter · New reply February 13, 2014
  • Journal · 180 replies
  • Hello everyone, Today at Inspire we’re excited to announce the launch of a new feature, and it’s one that many of you have requested -- the ability to upload photos to Inspire. You can now add photos ...

Any suggestions

ShareBear
  • By ShareBear · Posted February 9, 2014
  • Discussion in Support for clinical research participants and families · 0 replies
  • I have always had a fear of Clinical Trials, mainly becoming a guinea pig. I have been asked to participate in a Trial in St Louis, Missouri. What happens if the medicine does any harm to me, and even ...

friends

Monsae
  • By Monsae · New reply February 1, 2014
  • Journal · 17 replies
  • Greetings, I'm hoping everyone is doing well...I am having a middle of the night and can't sleep issue. Pain in the neck. Hope one and all have a beautiful day! And a Starry night.Take care. I'm thinking ...

Aware-For-All Seattle Clinical Research Education Day

lauramerc
  • By lauramerc · Posted January 27, 2014
  • Discussion in What you need to know before participating · 0 replies
  • If you live in the Seattle area, and looking for more information about participating in a clinical trial, please consider attending AWARE for All. AWARE is a neutral platform; we do not recruit for clinical ...

C677t

mcarolbabe
  • By mcarolbabe · Posted January 10, 2014
  • Discussion in What you need to know before participating · 0 replies
  • I am really looking for a doctor thru medical trial or one that takes Medicare. I suffer with hypogammaglobulinemia, c677t, and severe gastritis. Been to many doctors and due to my severe multiple chemical ...

home from my consultation

why-me
  • By why-me · New reply January 7, 2014
  • Journal · 12 replies
  • well home in Texas at my fabulous sister in laws. I just wanted to say after we finally got in to see the doctor it was well worth it. I am going to transfer to her as my primary onc. She gave me so much ...

krabbe and lingo-1

Andrea_map
  • By Andrea_map · Posted December 29, 2013
  • Discussion in Why choose to participate? · 0 replies
  • People with Krabbe disease lack an enzyme called galactocerebrosidase, this enzyme is essential for the maintenance of myelin — a fatty substance that insulates your nerve fibers Doctors sometimes refer ...

Pacitane how good it is for athetoid cp child

Psdevsehgal
  • By Psdevsehgal · New reply December 16, 2013
  • Journal · 5 replies
  • Hi Anyone who has tried this on their DS or DD. I was asked by a senior doc today to start this for my son aged 8 who is still unable to sit and walk. He has partial neck control She feels because of ...

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About this community

The Clinical Research Volunteers Community connects patients, families, friends and caregivers for support and inspiration. This community is sponsored by the Center for Information and Study on Clinical Research Participation, an Inspire trusted partner.