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How to respond to How are you Feeling?
- By Camellia41 · New reply 12:44 am
- Journal · 29 replies
- This attack on my body has been happening since early May and I have people asking me...How are you? How are you feeling? What is the best way to respond? I know that some people ask that because it is ...
I don't know what to do!
- By Camellia41 · New reply June 18, 2013
- Journal · 15 replies
- This is a journal entry of my thoughts so it is long and ranting. This is how I have always done my journaling, but have never shared it. I am sharing this because I know I am not alone in this. Maybe ...
Five million
- By Brian · New reply June 17, 2013
- Journal · 243 replies
- Dear members, Yesterday, Inspire reached a milestone: five million posts written by members! Each of these posts, and the 700 million words they contain, are a simple measure of how much we all do to ...
Devastated.
- By IAmJen · New reply June 17, 2013
- Journal · 21 replies
- The consultant I saw two weeks ago said that as my albumin was nearly at a normal level I could reduce my steroids by 10mg. I did this and was shocked at the suffering I went through to lower the dose ...
On being the CEO of your health
- By John2 · New reply June 11, 2013
- Journal · 4 replies
- From: John Novack, Communications Director, Inspire Dear members, I'm writing to share with you a link to a new column, "A moose no longer: How I faced down my fears of heart disease." The column is by ...
CVI
- By buddygirl · New reply June 4, 2013
- Discussion in Living with a circulatory disorder · 2 replies
- Does anyone have experience using compression pump therapy - sure would like to hear from you - I am getting info and will be ordering one (if my Doc oks it) many thanks Buddygirl ...
A new Inspire report in collaboration with Stanford Medical School
- By Brian · New reply May 5, 2013
- Journal · 84 replies
- As many of you know, Inspire has a professional collaboration with the Stanford University School of Medicine. Inspire members have written personal stories for the Stanford Scope column. I am pleased ...
JUST SO YOU'LL KNOW~~~~
- By mybutterfly · New reply April 21, 2013
- Journal · 168 replies
- I know nothing.....absolutely nothing!....except....Jesus never fails!! I may not understand His way....like when our loved ones have to leave.....or why life takes the crazy twists and turns it does ...
When you say nothing at all: Living with an invisible illness
- By John2 · Posted April 18, 2013
- Journal · 0 replies
- From: John Novack, communications director, Inspire Dear members, I'm writing to share with you a new column on the Stanford University School of Medicine "Scope" medical blog: "When you say nothing at ...
Cold Feet
- By teresalynwms · New reply April 17, 2013
- Discussion in Symptoms · 1 reply
- I'm not exactly sure what is going on. Has anyone else had any problems with their feet being abnormally cold? Friday night, my feet were freezing. I laid in bed with them propped up, a heating pad on ...
Day two of 40mg from 50mg.
- By IAmJen · New reply April 16, 2013
- Journal · 26 replies
- Well it's morning finally. I woke up several times in the night absolutely wide awake. This morning my heart is racing, I hate that feeling, especially when it feels like it's making my whole body convulse ...
The Inspire Q&A: Inspire talks with Deanna Attai, MD
- By John2 · New reply April 16, 2013
- Journal · 16 replies
- Dear members, We at Inspire are pleased to bring you the latest in a series of Q&A interviews with people who are making contributions to helping patients and caregivers worldwide. The people in this ...
My eyes...
- By Robbertse · New reply April 9, 2013
- Journal · 10 replies
- Hello to all, not having a nice day. I have Urticarial vasculitis, don't know what it causes. I put my name on the cancellation list at a Rheumatologist. Their next opening is only in April 2013. I woke ...
This is REALLY hard.
- By IAmJen · New reply April 5, 2013
- Journal · 12 replies
- I'm a bit of a 'battler', I'm a single parent to a 14 year old so I've never had time to be ill, I just couldn't afford the time because there is no one else to look after my daughter or earn money! Just ...
Vitamin D Level Question
- By kmomma · New reply April 1, 2013
- Journal · 13 replies
- Good afternoon! My midwife contacted me this a.m. and told me my vitamin D level is a 24 and she said this is a little low. I am already taking 2000 i.u. of D3/day at this point. She recommended increasing ...
Have any of you ever gone to an Integrative Medicine doctor?
What have I done?
- By IAmJen · New reply March 25, 2013
- Journal · 7 replies
- So having been up late last night at a concert we had to get up early to go to the doctors yet again. This time (for a change) it was for my daughter. My protein dipsticks arrived yesterday and I thought ...
Does anyone have Adult onset Still's Disease?
- By Robbertse · New reply March 25, 2013
- Journal · 3 replies
- Hi, i would like to know more about the symptoms of Still's Disease please. I am going to a Rheumy on 28 February and i see on the doctors letter, he asked her to test me for Still's Disease. It does ...
Do you feel lucky punk?
- By IAmJen · New reply March 22, 2013
- Journal · 1 reply
- Righty-ho! I hope this post makes sense, I'm having a G&T whilst writing it so bear with me... Two weeks ago I had a bit of a change of luck. I was waiting to pick my daughter up outside Scouts, listening ...
Never thought I'd spend Sunday morning bleaching my hands.
- By IAmJen · New reply March 22, 2013
- Journal · 28 replies
- I've never been particularly in to beauty. I like camping and festivals and walking my dogs. I'm not very glamorous. When I first started taking Prednisolone I got the usual symptoms, weak limbs, racing ...
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