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- By CanadaNuse · Posted November 17, 2008
- Journal · 0 replies
- A lot has been happening on the home front. Ash's medical team including mental health are changing her dosage of medications, times given etc. In hopes that the current combination of medications will ...
- By rhysmom · Posted November 12, 2008
- Journal · 0 replies
- HERE TO BE A FRIEND TO ANYONE WITH A CHILD WITH LEARNING DISORDERS; MY SON FINALLY HAS AN IEP,AIDE, WRAPAROUND,ETC ...
- By snugglebearsmom · Posted November 6, 2008
- Journal · 10 replies
- Tyler's transplant has been sucessful so far, all of the cells have been engrafted. Now it's just a matter of time to see if his body accepts them and the missing enzyme is replaced. We are being very ...
- By laurakennedy77 · Posted October 21, 2008
- Discussion in Illnesses · 0 replies
- At a Neonatal Follow up appointment this week, we discovered that my daughter (former preemie born at 26 week, 1 lb. 7 oz.) now 2 1/2 yrs old has high blood pressure. I suffer from this as well (since ...
- By sheila_r · Posted October 19, 2008
- Journal · 8 replies
- Just a lillte addition to my 1st journal post:.....don't know what else to TRY with my daughter....extremely frustrated and depressed!!!....this condition has caused her great depression and anxiety....now ...
- By sheila_r · Posted October 19, 2008
- Journal · 0 replies
- Just a little update; my daughter's condition is still the SAME!!! ......There has been NO relief since IT all started about 1 year ago....this condition (Tietze's Syndrome) has been as painful a condition ...
- By brian_josephs_mommy · Posted October 13, 2008
- Journal · 10 replies
- Just found out today that they will be giving Brian prednisolone intravenusly followed by cytoxan...They don't want him to start it during the cold season so they will start it in the spring I am told...Until ...
- By Collie · Posted October 8, 2008
- Discussion in Illnesses · 0 replies
- Hello, I just joined up on this site so I'm not sure if I'm posting in the correct forum, but my 22 year old son was diagnosed with osteosarcoma of the humerus (upper arm) in August, 2008. He was told ...
- By snugglebearsmom · Posted September 29, 2008
- Journal · 5 replies
- It's been a little bit since I've posted a journal entry, things have been really emotional around here. On Saturday September 27, 2008 Tyler and his Grandma traveled back to Duke University. We decided ...
- By KathyG · Posted September 9, 2008
- Journal · 6 replies
- Today we went to see his specialist. We found out today that he IS NOT going to send him to Duke University afterall. He is going to talk to a CF Pulmonary Doctor and try to get the DNA screening for ...
- By KathyG · Posted September 3, 2008
- Journal · 9 replies
- Today I had to take my 6 yr old grandson to the emergency dept. He has been sick for 2 days. In my earlier post I explained that he has a pancreas problem and is taking enzymes. About 5 weeks ago the ...
- By snugglebearsmom · Posted August 25, 2008
- Journal · 17 replies
- Today was a very emotional day, we decided that we are not going to have him go through the transplant. It was the hardest decision I have ever had to make in my life however I feel that it was for the ...
- By KathyG · Posted August 24, 2008
- Journal · 4 replies
- My 6yr. old grandson has been sick since he was 6 months old with respitory problems. He also developed a food allergy very young. Dr's said that he had Asthma. It kept getting worse over time and he ...
- By CanadaNuse · Posted August 21, 2008
- Journal · 2 replies
- There has been alot going on, since our last post, and honestly I don't know where to start. We had over TEN doctor visits and still not closer to anything. But we keep on getting more clinical DX for ...
- By sheila_r · Posted August 11, 2008
- Discussion in Illnesses · 0 replies
- Hello, I'm new here so please bear with me... i know that 17 years is much older but still young 'non-the-less'...(still likes her share of stuffed animals. etc,...) Really need answer for her condition ...
- By Walter · Posted June 10, 2008
- Journal · 14 replies
- Hello everyone. Just a quick note to let you know that the improvements to the message system that I wrote about previously are complete. You can check them out now. You'll notice that we've grouped your ...
- By Walter · Posted June 1, 2008
- Journal · 23 replies
- Hello everyone. I'm writing to let you know about some long overdue improvements that we'll be making to this site's messaging system later this week. The messages section is the most frequently visited ...
- By Brian · Posted April 11, 2008
- Journal · 124 replies
- When we started this community, each of us faced important health issues in our lives. Some of us have family members with medical conditions. Many of us have medical conditions of our own. All of us ...
- By treesa · Posted April 3, 2008
- Discussion in Growth and development · 1 reply
- ok my son is 22months (20 months adjusted ) he is 21 lbs and 32 inches tall and has been this way since 13 months old was wondering if anyone else has this problem and if they thought it might be from ...
- By TeamInspire · Posted March 13, 2008
- Journal · 35 replies
- Hello, old friends and new. Today is a big day for us! We have made numerous improvements to your community, most that were suggestions from you. As you can see the site is very different then before ...
