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Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
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Active journals
Update on Tyler
- By snugglebearsmom · New reply 7:47 am
- 1 reply
- Tyler recently returned from his 1 year checkup at Duke with Dr. Prasad (October). There aren't any signs of further progression, same as his 9 month checkup. He is off of most of the meds, including ...
The pain of Loss & the Joy of New Life!
- By barbshealthier · Posted October 24, 2009
- 0 replies
- I know the pain that bites you in the deepest part of your being when you loose a child. I delivered our first son on June 22, 1972; stillborn. Then we lost another child in an automobile accident on ...
depressed/ stressed out
- By sexymomof2 · New reply October 17, 2009
- 5 replies
- i'm supposed to be happy, but everyday it seems like life is getting harder. i haven't had food to put on the table to at least feed my 3yr. i rather strave then let my lil 1 go hungry but yet i am pregant ...
Caitlyn
- By mnelson · New reply October 12, 2009
- 14 replies
- Caitlyn passed on sept. 8 after a 3 year battle with brain cancer. The last days were difficult may god bless all those struggling with cancer ...
HI/HA TWINZ
- By Lyrix · Posted October 7, 2009
- 0 replies
- lastnight greg was playin up real bad and jerkin his body like he wanted to up and go I wasnt sure what was going on but I thought that he might have had colic or wind but the nurse came in after two ...
Hyperinsulinism
- By Hyperinsulinism · Posted October 7, 2009
- 0 replies
- What is Congenital HI? Congenital hyperinsulinism (HI) is a disorder in which the insulin cells of the pancreas (beta cells) secrete too much insulin and at the wrong time. Excess insulin causes low blood ...
Caitlyn
- By mnelson · New reply October 7, 2009
- 10 replies
- Caitlyn is not doing well today. Each day gets a little bit worse. I am glad that she does not seem to be in much pain. She is so much stronger than me ...
HI/HA Twinz..
- By Lyrix · New reply October 6, 2009
- 1 reply
- First entry... Mac and Greg back in hospital again.. So over it.. me and the dad fighting again.. so over that too. greg not doin to well but he will be ok just hate being here and not being able to spend ...
Alicia Journey with Congenital Hyperinsulinism
- By Hyperinsulinism · New reply October 6, 2009
- 2 replies
- Congenital hyperinsulinism (excessive insulin production) is the most common cause of persistent or recurring hypoglycemia (low blood sugar) in infancy. Many infants and children affected with any of ...
Almost Three
- By IanMommy · New reply October 5, 2009
- 2 replies
- Well I just can't beleive it we have made it this far. I remember the day he was born like it was yesterday. I still go over it in my head sometimes wondering if I could have done anything to stop the ...
Finding info.
- By wigglemommy · Posted October 1, 2009
- 0 replies
- I would love to hear from anyone who has a child with a genetic disorder especially a chromesone deletion ...
Mommy come with me in Heaven
- By Cherime · New reply September 22, 2009
- 8 replies
- After treating several chemotheraphy and radiation, Charles body will just rest for two months, then after that, the cancer cell will grow again to liver, bone.... Still fighting the beast for three years ...
Good News About Frankie
- By FrankiesAuntie · New reply September 21, 2009
- 3 replies
- Hey every one I visited with my nephew Frankie yesterday he is looking good considering all he has gone through. Frankie got moved out of ICU today & moved to another floor. We are so thrilled. Praise ...
2 kids and another on the way
- By sexymomof2 · Posted September 20, 2009
- 0 replies
- my life seems so complcated right! i decided to quit my job last month and started going to school! so right now i don't have an income, but that is besides the point. my 3 yr old is getting a little ...
Update On Frankie.
- By FrankiesAuntie · New reply September 19, 2009
- 4 replies
- Frankie is still in ICU fighting it has been a battle but he is stong. "Frankie can do all things through Christ who strengthens him" Phillipians 4:13 I visited Frankie this past Monday, he no longer ...
my son,Evan Michael Stephens
- By krystel · New reply September 18, 2009
- 2 replies
- my son Evan has a rare bone disease called "Langerhans Cell Histiocytosis.and im trying to find other familys with children with the same disease.Evan is three years old,we fond out last january and i ...
New again
- By Nekashell · New reply September 9, 2009
- 8 replies
- I've decided that I want to start this over again and stick to this I need to be a new healthier me! Its not going to be easy, Hopely I will meet some people on here that will be inspiring, and share ...
Amazing Experience
- By StephLynStill · New reply September 6, 2009
- 5 replies
- I have been living in the "LysoWorld" now for about six years. I started very pinpointed with one particular disorder (there are over 60 - most w/ ridiculously hard names to pronounce). It took a long ...
Life Goes On
- By Cherime · New reply September 4, 2009
- 5 replies
- Charles Being diagnose of stage 4 Neuroblastoma at the age of 4, was very hard physically, emotionally.... and the only thing that He told me " Mommy we have to pray more". He is strong than I am, thats ...
ns
- By agapi · New reply August 24, 2009
- 5 replies
- today was the hardest day of my life.as i said my 5 years old boy was daignosed with ns in december 2007,we took predisolone for some time and we were in remission for 10 months with no pills.after 10 ...
