Umm... Hello. I am sixteen years old, a seemingly average girl-next-door, but I was diagnosed with CMT when I was thirteen. Living as a teen with a disorder like this is hard, expecially in the spring when I start wearing my leg braces with shorts. My friends all accept me, thought some students steer clear for some reason, but I never really ever talk about it with anyone which makes me feel really.... well, alone.
My friends are really supportive most of the time when they see I am having trouble walking. They help get across uneven ground, and I would not have survived on our class trip to france if they had not been there to help me up and down the staircases. I just feel that I can't share the truth with anybody, because it is such a burden.
So when I saw this website, I decided that maybe I could give it a try, and talk about my concerns and fears for the future.
I'm afraid of the future. What do I tell my new employers when I move into the city? What and how can I tell my boyfriend when I get one? And what about my children when I have them? Will they get it too? Everything is so uncertain, and it makes me overwhelmed. Sometimes I feel like I won't make it until 18 years. Is that normal?