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Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
How - Joining Inspire is completely free and usually takes less than a minute. Join now!
New
Back on the road
- By yesshecan · Posted November 9, 2009
- Journal · 6 replies
- There was a moment of complete joy. Running with old friends. Warm sun burns through self consciosness as I re enter the group I left a year ago. People hug and comment. On my hair. On their pleasure ...
Inspire members featured
- By Brian · Posted October 28, 2009
- Journal · 29 replies
- Today Massachusetts General Hospital's Proto Magazine published a wonderful profile of nine Inspire members. Each of these stories underscores what we all know to be true -- that Inspire is a special ...
Home again
- By yesshecan · Posted September 19, 2009
- Journal · 5 replies
- Dropping a daughter off at college for the first time is a bit like moving an army, and a bit like allowing a piece of your heart to take root elsewhere. Exhausting preparations, packing, shopping ,and ...
getting ready
- By yesshecan · Posted August 29, 2009
- Journal · 13 replies
- Driving through misting splatters of rain, then realize I'm all hunched up and tilted forward. Defensive posture. Tight. Take a few deep breathes and uncoil. Trying for lighter, softer strength. Strength ...
the internet
- By yesshecan · Posted August 21, 2009
- Journal · 11 replies
- So I'm trying to be a good consumer and check everything out. I google and avoid sites that don't have reputable sources. Then I get scared. So I walk outside with the dog.Or I go read a good book. Or ...
5 minutes on the lysosome. Because it's time we know.
- By StephLynStill · Posted August 13, 2009
- Journal · 0 replies
- So did you ever wonder what happens to the tadpole's tail? Does it just fall off? No actually. Lysosomes eat it. (autophagy: the cell's ability to eat itself...) And the webbing in our fingers and toes ...
can't get there from here
- By yesshecan · Posted August 11, 2009
- Journal · 15 replies
- The house will empty out in September as youngest daughter leaves for college. I'll take her there, and dread coming home to the dog, the cat, and the quiet. I have been parenting solo for the last sixteen ...
Scheduled maintenance this evening
- By TeamInspire · Posted August 10, 2009
- Journal · 13 replies
- All, Inspire will be performing database updates this evening starting at 8:00 Eastern. We expect the updates to take no more than 2 hours and the site will be unavailable at this time. We thank you for ...
Lysosomal Disease and Alzheimer's
- By StephLynStill · Posted July 27, 2009
- Journal · 0 replies
- Hi, Here is another little boy affected with Lysosomal Disease, Dillon. The correlations between Lysosomal Disease and much more well-known issues like Alzheimer's are being uncovered every day. With ...
Share your story via video!
- By TeamInspire · Posted June 15, 2009
- Journal · 28 replies
- Sometimes the most powerful message each of us can share is our personal story -- our own experience. With upcoming healthcare legislation pending, one way we can be advocates is to share these stories ...
Follow Inspire on Twitter and Facebook!
- By TeamInspire · Posted June 10, 2009
- Journal · 32 replies
- We're happy to announce that you can now stay in touch with what's happening at Inspire by following us on both Twitter and Facebook. While Inspire communities are still the best places to connect with ...
Guestbooks are now live!
- By TeamInspire · Posted May 26, 2009
- Journal · 6 replies
- Hello everyone, Last week we mentioned that we'd be adding guestbooks to Inspire in the near future, and they are now live! We're very excited about this feature and hope you enjoy it. To check out your ...
Guestbooks - An exciting addition to Inspire
- By TeamInspire · Posted May 20, 2009
- Journal · 35 replies
- Hello everyone, We're writing to let you know about a great new feature we'll be adding to Inspire in the very near future: guestbooks. This is a feature that many of you have requested, and we're very ...
This Hannah...
- By StephLynStill · Posted May 14, 2009
- Journal · 0 replies
- This what infantile Lysosomal Disease does ...
Moms, you rock!
- By TeamInspire · Posted May 1, 2009
- Journal · 0 replies
- Looking for a unique and extraordinary way to say "thank you" to your mom? In honor of Mother's Day, good friend of Inspire Dr. Gwenn (of http://www.PediatricsNow.com and http://www.DrGwennIsIn.com) will ...
Dogs & Disorders
- By StephLynStill · Posted April 20, 2009
- Journal · 2 replies
- I had the opportunity to meet about 5 dogs with Lysosomal Disease (mps, I think), about a year ago. It was really an eye-opening and amazing experience. Now, I keep finding more and more articles about ...
Lyso-What?
- By StephLynStill · Posted March 9, 2009
- Journal · 4 replies
- Just in case you haven't seen it. ;) xoxo s **ps - that's my kiddo ...
Cherry Red Spot is a telltale sign...
- By StephLynStill · Posted March 4, 2009
- Journal · 7 replies
- Today I returned a telephone call to a woman who's cousin's 7 month old son, Ben, has been displaying possible symptoms of a neurometabolic disease. You know, darting eyes, not rolling over, trunk weakness ...
christmas update
- By Pmorris · Posted December 20, 2008
- Journal · 12 replies
- i know the last time i wrote i was just starting college. since then i got really sick in october and missed a month of school but when i came back they were so nice to me and said if i passed they wouldnt ...
NEED HELP
- By gators · Posted December 7, 2008
- Journal · 1 reply
- I need a buddy to help me lose weght ...
