Chai Lifeline Support Community

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Just Because

By yesshecan · New reply February 5, 2010
Journal · 27 replies
Two years ago I ran the Boston Marathon. Now I am signed up to run the Boston Marathon again. Just because. Because I don't want this cancer to define and limit who I am and what I plan . I have a PET ...

Back on the road

By yesshecan · New reply January 31, 2010
Journal · 7 replies
There was a moment of complete joy. Running with old friends. Warm sun burns through self consciosness as I re enter the group I left a year ago. People hug and comment. On my hair. On their pleasure ...

Inspire members featured

By Brian · New reply November 4, 2009
Journal · 29 replies
Today Massachusetts General Hospital's Proto Magazine published a wonderful profile of nine Inspire members. Each of these stories underscores what we all know to be true -- that Inspire is a special ...

Home again

By yesshecan · New reply September 24, 2009
Journal · 5 replies
Dropping a daughter off at college for the first time is a bit like moving an army, and a bit like allowing a piece of your heart to take root elsewhere. Exhausting preparations, packing, shopping ,and ...

getting ready

By yesshecan · New reply September 2, 2009
Journal · 13 replies
Driving through misting splatters of rain, then realize I'm all hunched up and tilted forward. Defensive posture. Tight. Take a few deep breathes and uncoil. Trying for lighter, softer strength. Strength ...

the internet

By yesshecan · New reply August 31, 2009
Journal · 11 replies
So I'm trying to be a good consumer and check everything out. I google and avoid sites that don't have reputable sources. Then I get scared. So I walk outside with the dog.Or I go read a good book. Or ...

can't get there from here

By yesshecan · New reply August 26, 2009
Journal · 15 replies
The house will empty out in September as youngest daughter leaves for college. I'll take her there, and dread coming home to the dog, the cat, and the quiet. I have been parenting solo for the last sixteen ...

Guestbooks are now live!

By TeamInspire · New reply August 15, 2009
Journal · 6 replies
Hello everyone, Last week we mentioned that we'd be adding guestbooks to Inspire in the near future, and they are now live! We're very excited about this feature and hope you enjoy it. To check out your ...

5 minutes on the lysosome. Because it's time we know.

By StephLynStill · Posted August 13, 2009
Journal · 0 replies
So did you ever wonder what happens to the tadpole's tail? Does it just fall off? No actually. Lysosomes eat it. (autophagy: the cell's ability to eat itself...) And the webbing in our fingers and toes ...

Scheduled maintenance this evening

By TeamInspire · New reply August 12, 2009
Journal · 13 replies
All, Inspire will be performing database updates this evening starting at 8:00 Eastern. We expect the updates to take no more than 2 hours and the site will be unavailable at this time. We thank you for ...

Lysosomal Disease and Alzheimer's

By StephLynStill · Posted July 27, 2009
Journal · 0 replies
Hi, Here is another little boy affected with Lysosomal Disease, Dillon. The correlations between Lysosomal Disease and much more well-known issues like Alzheimer's are being uncovered every day. With ...

Share your story via video!

By TeamInspire · New reply June 23, 2009
Journal · 28 replies
Sometimes the most powerful message each of us can share is our personal story -- our own experience. With upcoming healthcare legislation pending, one way we can be advocates is to share these stories ...

Support your group and raise awareness with badges

By Walter · New reply June 22, 2009
Journal · 39 replies
Hi everyone. We added a new feature today that you can use to support your groups and the organizations that sponsor them, and get the word out about the causes that are important to you. If you visit ...

Follow Inspire on Twitter and Facebook!

By TeamInspire · New reply June 12, 2009
Journal · 32 replies
We're happy to announce that you can now stay in touch with what's happening at Inspire by following us on both Twitter and Facebook. While Inspire communities are still the best places to connect with ...

Guestbooks - An exciting addition to Inspire

By TeamInspire · New reply June 9, 2009
Journal · 35 replies
Hello everyone, We're writing to let you know about a great new feature we'll be adding to Inspire in the very near future: guestbooks. This is a feature that many of you have requested, and we're very ...

Dogs & Disorders

By StephLynStill · New reply May 30, 2009
Journal · 2 replies
I had the opportunity to meet about 5 dogs with Lysosomal Disease (mps, I think), about a year ago. It was really an eye-opening and amazing experience. Now, I keep finding more and more articles about ...

This Hannah...

By StephLynStill · Posted May 14, 2009
Journal · 0 replies
This what infantile Lysosomal Disease does ...

Moms, you rock!

By TeamInspire · Posted May 1, 2009
Journal · 0 replies
Looking for a unique and extraordinary way to say "thank you" to your mom? In honor of Mother's Day, good friend of Inspire Dr. Gwenn (of http://www.PediatricsNow.com and http://www.DrGwennIsIn.com) will ...

It's just getting so overwhelming.

By Pmorris · New reply April 25, 2009
Journal · 22 replies
Being 18 and only 7 months in having membranous nephropathy, it is hard. All of the medications seem to have stop working now. My condition has gotten even worse than when I first started. So now I'm ...

Lyso-What?

By StephLynStill · New reply April 9, 2009
Journal · 4 replies
Just in case you haven't seen it. ;) xoxo s **ps - that's my kiddo ...

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The Chai Lifeline Support Community connects patients, families, friends and caregivers for support and inspiration. The Chai Lifeline Support Community is sponsored by Chai Lifeline in partnership with Inspire.