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Share your story via video!

By TeamInspire · New reply June 23, 2009
Journal · 28 replies
Sometimes the most powerful message each of us can share is our personal story -- our own experience. With upcoming healthcare legislation pending, one way we can be advocates is to share these stories ...

Support your group and raise awareness with badges

By Walter · New reply June 22, 2009
Journal · 39 replies
Hi everyone. We added a new feature today that you can use to support your groups and the organizations that sponsor them, and get the word out about the causes that are important to you. If you visit ...

Follow Inspire on Twitter and Facebook!

By TeamInspire · New reply June 12, 2009
Journal · 32 replies
We're happy to announce that you can now stay in touch with what's happening at Inspire by following us on both Twitter and Facebook. While Inspire communities are still the best places to connect with ...

Guestbooks - An exciting addition to Inspire

By TeamInspire · New reply June 9, 2009
Journal · 36 replies
Hello everyone, We're writing to let you know about a great new feature we'll be adding to Inspire in the very near future: guestbooks. This is a feature that many of you have requested, and we're very ...

Guestbooks are now live!

By TeamInspire · New reply June 3, 2009
Journal · 3 replies
Hello everyone, Last week we mentioned that we'd be adding guestbooks to Inspire in the near future, and they are now live! We're very excited about this feature and hope you enjoy it. To check out your ...

Dogs & Disorders

By StephLynStill · New reply May 30, 2009
Journal · 2 replies
I had the opportunity to meet about 5 dogs with Lysosomal Disease (mps, I think), about a year ago. It was really an eye-opening and amazing experience. Now, I keep finding more and more articles about ...

This Hannah...

By StephLynStill · Posted May 14, 2009
Journal · 0 replies
This what infantile Lysosomal Disease does ...

Moms, you rock!

By TeamInspire · Posted May 1, 2009
Journal · 0 replies
Looking for a unique and extraordinary way to say "thank you" to your mom? In honor of Mother's Day, good friend of Inspire Dr. Gwenn (of http://www.PediatricsNow.com and http://www.DrGwennIsIn.com) will ...

It's just getting so overwhelming.

By Pmorris · New reply April 25, 2009
Journal · 22 replies
Being 18 and only 7 months in having membranous nephropathy, it is hard. All of the medications seem to have stop working now. My condition has gotten even worse than when I first started. So now I'm ...

Lyso-What?

By StephLynStill · New reply April 9, 2009
Journal · 4 replies
Just in case you haven't seen it. ;) xoxo s **ps - that's my kiddo ...

Cherry Red Spot is a telltale sign...

By StephLynStill · New reply March 9, 2009
Journal · 7 replies
Today I returned a telephone call to a woman who's cousin's 7 month old son, Ben, has been displaying possible symptoms of a neurometabolic disease. You know, darting eyes, not rolling over, trunk weakness ...

New group in Inspire: The National Body Challenge

By Brian · New reply January 12, 2009
Journal · 25 replies
I am pleased to announce that today we added a new group to Inspire: The National Body Challenge. nationalbodychallenge We created this group in partnership with Discovery Health. The group focuses on ...

christmas update

By Pmorris · New reply December 22, 2008
Journal · 12 replies
i know the last time i wrote i was just starting college. since then i got really sick in october and missed a month of school but when i came back they were so nice to me and said if i passed they wouldnt ...

NEED HELP

By gators · New reply December 7, 2008
Journal · 1 reply
I need a buddy to help me lose weght ...

letting go....

By DragonflyDream · New reply November 21, 2008
Journal · 17 replies
Finally at age 47 I let go of my desire/need for my mother's approval. I let my husband hear 27ish years of pent up hurt, disappointment, pure pain come streaming out and the next day I felt so much better ...

bad news.....

By DragonflyDream · New reply October 6, 2008
Journal · 36 replies
Well as life will have it, of fate, or whatever, I had my latest cat/PET scan on Monday and the Cancer Institutes phone lines have been down and are still down today. This means I have not been able to ...

The New Face of Cancer

By DragonflyDream · New reply October 3, 2008
Journal · 41 replies
Okay, since the other day when I was so bummed and upset about a comment made by someone who has no clue what it is to FIGHT everyday for one's life I decided that since I "looked so good" that I should ...

Sometimes I just wonder.....

By Bittersweet · Posted September 25, 2008
Journal · 0 replies
Sometimes I just wonder why it is that when I tell someone I am fighting cancer they have to say that their so and so DIED of CANCER.... That's just want I want to hear right?!!!! NOT!!!! Okay so I have ...

can't sleep

By Bittersweet · Posted September 9, 2008
Journal · 0 replies
Is it me, or is it the cancer, I just can't seem to sleep a whole heck of a lot recently..... I just have so much I want to do. I know I am not alone in this ...

Privacy and control

By Brian · New reply September 1, 2008
Journal · 48 replies
At Inspire, we think about privacy all the time. Virtually every web site has a privacy policy; you can read ours here: http://www.inspire.com/about/privacy/. But simply following the letter of a privacy ...

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The Chai Lifeline Support Community connects patients, families, friends and caregivers for support and inspiration. The Chai Lifeline Support Community is sponsored by Chai Lifeline in partnership with Inspire.