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Raising a child with cerebral palsy

Cerabral Palsy

Amarinderpal
  • By Amarinderpal · Posted November 21, 2009
  • 0 replies
  • Hi, My Son is 5 years+, he is born with Cerebral Palsy, we are having his treatment since he was 3 months old. he is continuously on physio therapy. this has help in maintaining physically but his brain ...

How does it take until age 12 to be diagnosed?

stormymom02
  • By stormymom02 · New reply November 18, 2009
  • 5 replies
  • My 12 yr old son was recently diagnosed after being sent to a "boot camp" for behavioral disorderd kids. I had been telling doctors for years that there was something very wrong with my son, and they ...

Please help

JJG1023
  • By JJG1023 · New reply November 9, 2009
  • 3 replies
  • My wife and I recently found out that our one year old has very mild cerebral palsy, centered around his right leg and hip. He has always been a little behind on some of his developmental milestones ...

Suddenly having trouble with leg

Bklynmom
  • By Bklynmom · Posted November 1, 2009
  • 0 replies
  • Hi! I have been a member of the preemie inspire group for a while, now my daughter has been diagnosed with CP so I joined this group as well. It's so nice to talk to people who "get it"! Zoe has been ...

Riding horses

pepperann26
  • By pepperann26 · New reply October 26, 2009
  • 12 replies
  • I wanted to let you know that riding horses is a good thing to strengthen leg muscles. Its what helped me to walk. I was born with mild cerebral palsy, I am 27 years old now ...

H1N1 and CP

lalacakes
  • By lalacakes · New reply October 20, 2009
  • 5 replies
  • I just read an article about H1N1 and children with CP. Here is the link: http://www.kare11.com/news/health/takeka re/takekare_article.aspx?storyid=823638& catid=20 I don't really understand why there ...

H1N1 vaccine

halog
  • By halog · Posted October 19, 2009
  • 0 replies
  • Where we live, the Nasal form of the H1N1 vaccine is available for my son. He is 12 with very mild CP. He can run, swim, rides his bike, etc. Just not as well as others. He has a shunt. I am conflicted ...

Speech development in children with CP

Dancie
  • By Dancie · New reply October 19, 2009
  • 3 replies
  • Hi Guys I said I would never do this again!!! That I would just wait for the milestones and celebrate them when they came, but I find myself impatient to know about what my child's speech development ...

Parents with young C.P child..have a look

Mlissa
  • By Mlissa · New reply October 17, 2009
  • 5 replies
  • Hi, here is a really good site i found. have a look http://www.dinf.ne.jp/doc/english/global /david/dwe002/dwe00211.html ...

Hippotherapy?

Mlissa
  • By Mlissa · New reply October 16, 2009
  • 3 replies
  • Hi, I am just looking into this horse riding therapy for my daughter, does anyone have any info on this? Is it good if you have tried it ...

new to group

meggs2003
  • By meggs2003 · New reply October 16, 2009
  • 5 replies
  • Hello everyone! My name is Megan, I had my son 5/31 at 30 weeks 3 days. He had a head ultrasound at 10 days and discovered a grade III IVH w/ hydrocephalus. He had a resirvoir placed, and a few weeks ...

Lokomat Therapy ...??

GavinsMama
  • By GavinsMama · New reply October 14, 2009
  • 9 replies
  • Has anyone heard of this therapy? I just read about it on a forum from someone in Europe. Looks very interesting!! "The Lokomat provides "gait training" by moving the legs in a normal physiological pattern ...

dorsal rhizotomy

Mlissa
  • By Mlissa · Posted October 3, 2009
  • 0 replies
  • Hi everyone. I have been looking a up stuff as always trying to get more info on whats available and i came across this - SELECTED DORSAL RHIZOTOMY what is this... well here is some info on it.. What ...

If I start a local support group...

socsmurf
  • By socsmurf · New reply September 16, 2009
  • 7 replies
  • My son has mild CP he wears an afo and an insert has tone in his foot and ankle mainly impacted on his left side. He was in speech and now just pt he has some very infrequent choking issues. My concern ...

to the parrents of children with cerebral pausy

shae21
  • By shae21 · Posted September 11, 2009
  • 0 replies
  • keep up the excellent work you are doing with your child and never give up it will get tough but its going to be a long road ahead you have to work as a team when it comes to a child with cerebral pausy ...

Mild Cerebral Palsy

Karlenep
  • By Karlenep · New reply August 13, 2009
  • 1 reply
  • In June 08 I had twins and mine were 38 weeks scheduled c-section. Everything went great until the second day in the hospital when the lactaid nurse noticed Ethan's (Baby A) hand moving in a repetative ...

walkers and activities

twinsmama
  • By twinsmama · New reply July 21, 2009
  • 5 replies
  • Hi everyone! I am mommy to a beautiful 22 mo old girl who has mild CP. She has AFOs and we just got a front walker for her a few weeks ago and she is taking off. She's super active and loves doing everything ...

2 yr old with mild CP and AFO trouble

twinsmama
  • By twinsmama · New reply July 15, 2009
  • 19 replies
  • Hi! How do/did you get your 2 yr old to wear their AFOs? Maile was wearing hers most of the night about mo ago. Then, she learned how to undo the velcro and remove her socks so she could get out of them ...

Hyperbaric Oxygen Therapy in Cerebral Plasy

Mathavan
  • By Mathavan · New reply July 9, 2009
  • 7 replies
  • Is HBOT is really effective in improving child ability affected by PVL brain damage ...

Parents support group CP

My_Angel
  • By My_Angel · Posted June 26, 2009
  • 0 replies
  • HI, If anybody be interested to join a group, especially bangaloreans( i am from bangalore), it will be of a great help and support for all of us ...

Group leaders

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