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The News

JJG1023
  • By JJG1023 · Posted November 5, 2009
  • Journal · 1 reply
  • Jack has always been a little behind in his developmental milestones, and fussy to boot. But lately, around the time he turned 1, his fussiness really got bad. He was very, very needy and cried most of ...

Please help

JJG1023
  • By JJG1023 · Posted November 5, 2009
  • Discussion in Raising a child with cerebral palsy · 2 replies
  • My wife and I recently found out that our one year old has very mild cerebral palsy, centered around his right leg and hip. He has always been a little behind on some of his developmental milestones ...

Suddenly having trouble with leg

Bklynmom
  • By Bklynmom · Posted November 1, 2009
  • Discussion in Raising a child with cerebral palsy · 0 replies
  • Hi! I have been a member of the preemie inspire group for a while, now my daughter has been diagnosed with CP so I joined this group as well. It's so nice to talk to people who "get it"! Zoe has been ...

cerebal palsy

ticha
  • By ticha · Posted October 30, 2009
  • Discussion in Treatment · 5 replies
  • my daughter is 18 years old and has cp. I have been researching stem cell therapy to see if it could help her. Sound like it might but would like some more information. Please help ...

H1N1 vaccine

halog
  • By halog · Posted October 19, 2009
  • Discussion in Raising a child with cerebral palsy · 0 replies
  • Where we live, the Nasal form of the H1N1 vaccine is available for my son. He is 12 with very mild CP. He can run, swim, rides his bike, etc. Just not as well as others. He has a shunt. I am conflicted ...

Speech development in children with CP

Dancie
  • By Dancie · Posted October 18, 2009
  • Discussion in Raising a child with cerebral palsy · 3 replies
  • Hi Guys I said I would never do this again!!! That I would just wait for the milestones and celebrate them when they came, but I find myself impatient to know about what my child's speech development ...

dorsal rhizotomy

Mlissa
  • By Mlissa · Posted October 3, 2009
  • Discussion in Raising a child with cerebral palsy · 0 replies
  • Hi everyone. I have been looking a up stuff as always trying to get more info on whats available and i came across this - SELECTED DORSAL RHIZOTOMY what is this... well here is some info on it.. What ...

Parents with young C.P child..have a look

Mlissa
  • By Mlissa · Posted September 29, 2009
  • Discussion in Raising a child with cerebral palsy · 5 replies
  • Hi, here is a really good site i found. have a look http://www.dinf.ne.jp/doc/english/global /david/dwe002/dwe00211.html ...

Ethan's story and Duke University to follow

Karlenep
  • By Karlenep · Posted September 29, 2009
  • Journal · 7 replies
  • In June 08 I had twins and they were 38 weeks scheduled c-section. Everything went great until the second day in the hospital when the lactaid nurse noticed Ethan's (Baby A) hand moving in a repetative ...

Hippotherapy?

Mlissa
  • By Mlissa · Posted September 28, 2009
  • Discussion in Raising a child with cerebral palsy · 3 replies
  • Hi, I am just looking into this horse riding therapy for my daughter, does anyone have any info on this? Is it good if you have tried it ...

Early Intervention Services

PrayElijah
  • By PrayElijah · Posted September 27, 2009
  • Journal · 1 reply
  • I have started the journey to fight for special education services for my son. I have located an advocate to help me navigate thru the special education maze. Today, we had a meeting concerning transition ...

7 weeks corrected

meggs2003
  • By meggs2003 · Posted September 25, 2009
  • Journal · 1 reply
  • Yesterday Everest was 7 weeks corrected age, and Tuesday he was home for 6 weeks. We had him evaluated by EI on Monday, and he qualified for therapy. We chose to do therapy twice a month at this point ...

Treatment for Spastic Diplegia

MSA
  • By MSA · Posted September 23, 2009
  • Discussion in Treatment · 7 replies
  • Hi, I am a 25 yr old , diagnosed with Mild CP during my Birth. As a result I have become spastic(spastic dipelegia), affecting my lower limbs,(more my right limb). Hence I walk on my toes, ever since ...

Feldenkrais Method

Mlissa
  • By Mlissa · Posted September 22, 2009
  • Discussion in Treatment · 2 replies
  • Hi, I have a 3 year old beauitful daughter who was diganosed with Spastic Diplegia C.P when she was 2 years old. We live in Ireland. And there is not much info given to parent about this. I had to find ...

New therapy technologies being used for CP

PMRDOC
  • By PMRDOC · Posted September 16, 2009
  • Discussion in Assistive technology and equipment · 0 replies
  • I have a new center in San Diego with a lot of technologies that may help CP from pediatric through adulthood. www.MRKLab.com ...

Stem cell therapy at Duke University

Karlenep
  • By Karlenep · Posted September 15, 2009
  • Discussion in Treatment · 1 reply
  • I have twin boys Ethan and Owen born June08. Ethan had a seisure on his second day of life but was fine until 10 months when he was diagnosed with mild CP due to stiffness on his right side. He has been ...

new to group

meggs2003
  • By meggs2003 · Posted September 15, 2009
  • Discussion in Raising a child with cerebral palsy · 5 replies
  • Hello everyone! My name is Megan, I had my son 5/31 at 30 weeks 3 days. He had a head ultrasound at 10 days and discovered a grade III IVH w/ hydrocephalus. He had a resirvoir placed, and a few weeks ...

to the parrents of children with cerebral pausy

shae21
  • By shae21 · Posted September 11, 2009
  • Discussion in Raising a child with cerebral palsy · 0 replies
  • keep up the excellent work you are doing with your child and never give up it will get tough but its going to be a long road ahead you have to work as a team when it comes to a child with cerebral pausy ...

H1N1 and CP

lalacakes
  • By lalacakes · Posted September 4, 2009
  • Discussion in Raising a child with cerebral palsy · 5 replies
  • I just read an article about H1N1 and children with CP. Here is the link: http://www.kare11.com/news/health/takeka re/takekare_article.aspx?storyid=823638& catid=20 I don't really understand why there ...

Stem cell treatment in Germany.

mikeyan
  • By mikeyan · Posted September 2, 2009
  • Discussion in Treatment · 1 reply
  • Hi can you please help us out . We would like to take our little girl 4 years old for stem cell treatment in Germany. At the Excell clinc at Duessoldolf. sorry about the spelling. very soon' can any give ...

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