Hi, I am a 25 yr old , diagnosed with Mild CP during my Birth. As a result I have become spastic(spastic dipelegia), affecting my lower limbs,(more my right limb). Hence I walk on my toes, ever since I started to walk. All the other motor functions are quite normal, I have undergone 5 surgeries on my limbs since by birth to correct the gait. Unfortunately the old gait has recurred each time after the surgery and I still walk on my toes. PhysioTherapy too was done but it was more sporadic you can say..Partly due to my own negligence :-( ....but the pain was intolerable...
I recently heard many good things about stem cell therapy...and would like to know more about it(treatment, cure, benefits etc) ...in treating spasticity.
Also any other useful information too with regards to treating spasticity and CP would be great..
Looking forward to hearing from you...Thanks a lot! ..
Already a member? Sign in
Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
How - Joining Inspire is completely free and usually takes less than a minute. Join now!
Treatment for Spastic Diplegia
Explore topics in this discussion:
7 replies
- Oldest first
- Newest first
- By Mlissa
- Posted September 24, 2009 at 9:52 am
- Report post
Hi,
Its so nice to hear from an adult with the same Spastic CP as my 3 year old daughter. She walks on her toes and uses a kaye walker as she cannot walk by herself.
I was just wondering, if you dont mind sharing other info about yourself. What age did you walk by yourself? Does it hurt alot to walk on your toes. As this is the way my daughter walks when not wearing her Splints.
I hope someday she willl walk as now she only uses her walker and is restricted.
Thanks so much.
Have you looked into feldenkrais method?
- By MSA
- Posted September 24, 2009 at 10:45 am
- Report post
Mlissa, I'm hearing about feldenkrais for the first time..need to find more info about it...Other than that, I am hearing lot of nice things about stem cell therapy nowadays..and wanted to know whether it might help in treating spasticity and CP...
I started to walk at the age of 2, if i remeber correctly...long time ago... :-). I have got so used to walking on the toes, that it hurts me more if I try to walk straight..
- By Mlissa
- Posted September 24, 2009 at 4:27 pm
- Report post
Hi,
Thanks so much for your info.
Its nice to have someone who knows what its like, whereas my daughter right now doesnt realise she cannot walk like all the other. She is very happy. Which makes me happy.
If you type in Anet Baniel method into google. You will find her site and amazing video's too.
We are going to bring our daughter for her 1st feldenkrais session soon.
ALl the best
- By cworwa
- Posted September 25, 2009 at 8:17 am
- Report post
Have you ever tried AFO's? They might help your feet out.
- By MSA
- Posted September 27, 2009 at 1:27 am
- Report post
whats an AFO?????...thats new to me...
- By cworwa
- Posted September 27, 2009 at 11:37 am
- Report post
AFO = Ankle Foot Orthotic
You can see one on my right leg.
- By Mlissa
- Posted September 27, 2009 at 4:24 pm
- Report post
Hi,
Yes my daughter wears her AFO's when she is using her walker, they help her stand straighter. She needs them alot. They are a great help.
Add to the discussion