I have twin boys Ethan and Owen born June08. Ethan had a seisure on his second day of life but was fine until 10 months when he was diagnosed with mild CP due to stiffness on his right side. He has been getting home therapy and doing pretty well.
I started looking into what this stem cell therapy is I have been seeing and I was amazed at what I found. We saved the boys cord blood so Duke University was an option for us. I contacted Duke to see what we had to do and the cost. I had the cord blood bank send Ethan's report to Duke and his stem cell count in his cord blood was low which was not uncommon in twins. So here we think we can do this and then another let down. She asked his weight and turns out since he is still young and small there is enough cells to do the therapy. We should be getting our definate date tomorrow and doing the procedure no later than end of October. Another point of possible good news after talking to the lady in the insurance billing dept at Duke said 80% of insurance companies pay for this because of the way they bill it.
Still no guarantees this will work but its a chance for an easier life for Ethan. Has anyone else had this therapy at Duke and what can we expect? Thanks.




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