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New to Botox. Can you give some advice?

ElliotsNanna
  • By ElliotsNanna · New reply 8:56 am
  • Discussion in Raising a child with cerebral palsy · 1 reply
  • Elliot (5) has dyskinetic/dystonic cerebral palsy, but does scissor when he walks in his walker (so we use leg straps too). Also if we try 'assisted walking' just for very tiny distances, eg to the bathroom ...

Essential oils

pazzymom
  • By pazzymom · New reply yesterday at 11:45 pm
  • Discussion in Treatment · 27 replies
  • Our family and a few of our friends with cp have started using young living essential oils. We are seeing great results with spasticity, seizure control and overall wellness. Have any if you tried it ...

Curious About The benifits Of Coconut Oil

Duvie
  • By Duvie · New reply yesterday at 11:27 pm
  • Journal · 323 replies
  • This past week I've been hearing about coconut nut oil having a lot of great benefits on the body. Can anyone say for sure that coconut oil actually is working for some patients? Thanks for any responses ...

balance and weight shifting

Nicole
  • By Nicole · New reply yesterday at 9:54 am
  • Discussion in Treatment · 6 replies
  • Hello - I need to regroup my thoughts on what is the best couple of things to help my son (almost 7, walking with a walker at therapy, not yet at school) with balance which I understand is all about learning ...

Boost VHC Drink - 530 Calories

Duvie
  • By Duvie · New reply April 22, 2014
  • Journal · 72 replies
  • Thanks to a lovely lady battling ALS, I have found out about this new Boost high- calorie drink to pass on to those struggling to maintain or to gain weight. Check it out online. Take special notice to ...

spastic diplegia and sudden paralasys

jmath101
  • By jmath101 · New reply April 22, 2014
  • Discussion in Treatment · 6 replies
  • Hi everyone, I live with spastic diplegia since birth. It mainly affects my lower limbs. For about two years, when I go through emotions such as stress, anger, when I feel people looking at me, etc ...

More news on Baclofen Pump

toughlove
  • By toughlove · New reply April 22, 2014
  • Discussion in Raising a child with cerebral palsy · 13 replies
  • In a couple of days my DS will have his whole baclofen pump and catheter replaced .A new larger size pump and catheter will be put in. He was rushed by ambulance to hospital unable to breathe -we had ...

Deep Brain Stimulation

babysis1963
  • By babysis1963 · Posted April 21, 2014
  • Discussion in Treatment · 0 replies
  • Anyone with information on Deep Brain Stimulation for CP Adults with abnormal or spastic movements. Annie ...

Anyone have any experience of painful feet and toes when in a therapy chair

ElliotsNanna
  • By ElliotsNanna · New reply April 20, 2014
  • Discussion in Raising a child with cerebral palsy · 15 replies
  • Elliot has this lovely chair with a dynamic back and foot plate. This helps with his extension as it all 'gives' with him then springs back. He is in it for a fair bit of time in school. The only problem ...

PERCS/SPML: NEED REHAB TIPS, PROTOCOL...GETTING NERVOUS!

millersmomma
  • By millersmomma · New reply April 20, 2014
  • Discussion in Treatment · 6 replies
  • Good Morning! I would love to know your experiences with PERCS/SPML..My 7 yr old is scheduled with DR. Yngve in the beginning of May & then a little over a week later we'll go to Grand Rapids for a Conductive ...

PLEASE HELP MY DAUGHTER

samuel76
  • By samuel76 · New reply April 18, 2014
  • Discussion in Treatment · 7 replies
  • HI EVERYONE MY ONLY DAUGHTER IS NOW 5 YEARS OLD HAS BEEN DIAGNOSED OF CEREBRAL PALSY SINCE SHE WAS ABOUT 4 MONTHS.EVER SINCE WE HAVE BEEN ATTENDING NEUROLOGY AND PHYSIOTHERAPY SECTIONS OF THE UNIVERSITY ...

Second hand orthopaedic footwear

mrsflyboy
  • By mrsflyboy · New reply April 18, 2014
  • Journal · 4 replies
  • Hi there! My son is almost 13 months old and has been diagnosed with dyskinetic quadriplegia CP and all he wants to do is stand and be on his feet! I'm looking to buy him some decent orthopaedic footwear ...

my Robert Johnnys day

gmauclair
  • By gmauclair · New reply April 17, 2014
  • Journal · 1 reply
  • My son is 6 years old and has cerebral palsy, he is the youngest of my 3 sons, today they all spent time in the warm sand playing with their toys. I have noticed that lately he has become the bully towards ...

Even YOU Can Become Disabled - Why Visitability Is Necessary

mel106
  • By mel106 · New reply April 17, 2014
  • Journal · 14 replies
  • A Wheelchair Wonderland I remember vividly a point in time where I wished desperately that the whole world was in a wheelchair so that everyone could know what my daughter had to go through just to go ...

cp and sensory processing disorder

kimowen
  • By kimowen · New reply April 15, 2014
  • Journal · 6 replies
  • My almost 3yr old child was dx with cp around a year old. She has a mild version but affecting her slow development. She is in speech therapy and now in ot for spd. We have been in denial about her having ...

cp diagnoses

beena555
  • By beena555 · New reply April 13, 2014
  • Discussion in Raising a child with cerebral palsy · 11 replies
  • Hi all just said i would update you all so far ive found out that my little girl has spastic right sided hemiplegia involving predominantly her right side but her left foot also seems to have some increased ...

Selective Dorsal Rhizotomy (SDR)

MalissaD
  • By MalissaD · New reply April 12, 2014
  • Discussion in Raising a child with cerebral palsy · 4 replies
  • My son is 3 years old. He has spastic quad cp. We've done Botox which works great, but it only lasts for 2-3 months. His hamstrings, abductors and calves are horribly tight. Has anyone here had this procedure ...

cerebral palsy and adhd any connection

kimowen
  • By kimowen · New reply April 12, 2014
  • Discussion in Raising a child with cerebral palsy · 1 reply
  • My three year old in 2 weeks has mild cp and sensory processing disorder but developmental dr thinks it adhd. She wont dx until 4yrs old. I am confused and think daughter is slow with developmental issues ...

Anat Baniel Method?

cpenning
  • By cpenning · New reply April 11, 2014
  • Discussion in Raising a child with cerebral palsy · 7 replies
  • We have an 8 month old baby boy that was born at 28 weeks. He has been diagnosed with cerebral palsy and microcephaly along with other things. We go in two weeks for another hearing test and possibly ...

Botox tomorrow morning

LeahLynnsMommy
  • By LeahLynnsMommy · New reply April 10, 2014
  • Journal · 13 replies
  • Tomorrow morning is here. We are taking Leah in for her first round of Botox in her right leg, hamstring and ankle. I'm so nervous,and feel sick to my stomach. The whole idea has me feeling uneasy. I've ...

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