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How does it take until age 12 to be diagnosed?

stormymom02
  • By stormymom02 · New reply November 18, 2009
  • Discussion in Raising a child with cerebral palsy · 5 replies
  • My 12 yr old son was recently diagnosed after being sent to a "boot camp" for behavioral disorderd kids. I had been telling doctors for years that there was something very wrong with my son, and they ...

Info about stem cell therapy.....PLEASE

My_Angel
  • By My_Angel · New reply November 16, 2009
  • Discussion in Treatment · 28 replies
  • hi, i am a mother of a 2.5 year old adorable daughter wit CP. I have been hearing a lot about stem cell therapy these days . I have also contacted a doctor locally regarding te same. I want to get it ...

The News

JJG1023
  • By JJG1023 · New reply November 16, 2009
  • Journal · 8 replies
  • Jack has always been a little behind in his developmental milestones, and fussy to boot. But lately, around the time he turned 1, his fussiness really got bad. He was very, very needy and cried most of ...

Please help

JJG1023
  • By JJG1023 · New reply November 9, 2009
  • Discussion in Raising a child with cerebral palsy · 3 replies
  • My wife and I recently found out that our one year old has very mild cerebral palsy, centered around his right leg and hip. He has always been a little behind on some of his developmental milestones ...

cerebal palsy

ticha
  • By ticha · New reply November 5, 2009
  • Discussion in Treatment · 5 replies
  • my daughter is 18 years old and has cp. I have been researching stem cell therapy to see if it could help her. Sound like it might but would like some more information. Please help ...

Suddenly having trouble with leg

Bklynmom
  • By Bklynmom · Posted November 1, 2009
  • Discussion in Raising a child with cerebral palsy · 0 replies
  • Hi! I have been a member of the preemie inspire group for a while, now my daughter has been diagnosed with CP so I joined this group as well. It's so nice to talk to people who "get it"! Zoe has been ...

Riding horses

pepperann26
  • By pepperann26 · New reply October 26, 2009
  • Discussion in Raising a child with cerebral palsy · 12 replies
  • I wanted to let you know that riding horses is a good thing to strengthen leg muscles. Its what helped me to walk. I was born with mild cerebral palsy, I am 27 years old now ...

H1N1 and CP

lalacakes
  • By lalacakes · New reply October 20, 2009
  • Discussion in Raising a child with cerebral palsy · 5 replies
  • I just read an article about H1N1 and children with CP. Here is the link: http://www.kare11.com/news/health/takeka re/takekare_article.aspx?storyid=823638& catid=20 I don't really understand why there ...

H1N1 vaccine

halog
  • By halog · Posted October 19, 2009
  • Discussion in Raising a child with cerebral palsy · 0 replies
  • Where we live, the Nasal form of the H1N1 vaccine is available for my son. He is 12 with very mild CP. He can run, swim, rides his bike, etc. Just not as well as others. He has a shunt. I am conflicted ...

Speech development in children with CP

Dancie
  • By Dancie · New reply October 19, 2009
  • Discussion in Raising a child with cerebral palsy · 3 replies
  • Hi Guys I said I would never do this again!!! That I would just wait for the milestones and celebrate them when they came, but I find myself impatient to know about what my child's speech development ...

Parents with young C.P child..have a look

Mlissa
  • By Mlissa · New reply October 17, 2009
  • Discussion in Raising a child with cerebral palsy · 5 replies
  • Hi, here is a really good site i found. have a look http://www.dinf.ne.jp/doc/english/global /david/dwe002/dwe00211.html ...

Hippotherapy?

Mlissa
  • By Mlissa · New reply October 16, 2009
  • Discussion in Raising a child with cerebral palsy · 3 replies
  • Hi, I am just looking into this horse riding therapy for my daughter, does anyone have any info on this? Is it good if you have tried it ...

new to group

meggs2003
  • By meggs2003 · New reply October 16, 2009
  • Discussion in Raising a child with cerebral palsy · 5 replies
  • Hello everyone! My name is Megan, I had my son 5/31 at 30 weeks 3 days. He had a head ultrasound at 10 days and discovered a grade III IVH w/ hydrocephalus. He had a resirvoir placed, and a few weeks ...

Lokomat Therapy ...??

GavinsMama
  • By GavinsMama · New reply October 14, 2009
  • Discussion in Raising a child with cerebral palsy · 9 replies
  • Has anyone heard of this therapy? I just read about it on a forum from someone in Europe. Looks very interesting!! "The Lokomat provides "gait training" by moving the legs in a normal physiological pattern ...

Sweet baby boy

tmzizzle
  • By tmzizzle · New reply October 5, 2009
  • Journal · 3 replies
  • My beautiful 5 month old boy was just diagnosed with CP we are not sure to what extent yet. My heart is broken, I am feeling every negative emotion possible. Where do I turn to for support and knowledge ...

dorsal rhizotomy

Mlissa
  • By Mlissa · Posted October 3, 2009
  • Discussion in Raising a child with cerebral palsy · 0 replies
  • Hi everyone. I have been looking a up stuff as always trying to get more info on whats available and i came across this - SELECTED DORSAL RHIZOTOMY what is this... well here is some info on it.. What ...

Early Intervention Services

PrayElijah
  • By PrayElijah · New reply September 27, 2009
  • Journal · 1 reply
  • I have started the journey to fight for special education services for my son. I have located an advocate to help me navigate thru the special education maze. Today, we had a meeting concerning transition ...

Treatment for Spastic Diplegia

MSA
  • By MSA · New reply September 27, 2009
  • Discussion in Treatment · 7 replies
  • Hi, I am a 25 yr old , diagnosed with Mild CP during my Birth. As a result I have become spastic(spastic dipelegia), affecting my lower limbs,(more my right limb). Hence I walk on my toes, ever since ...

7 weeks corrected

meggs2003
  • By meggs2003 · New reply September 26, 2009
  • Journal · 1 reply
  • Yesterday Everest was 7 weeks corrected age, and Tuesday he was home for 6 weeks. We had him evaluated by EI on Monday, and he qualified for therapy. We chose to do therapy twice a month at this point ...

Feldenkrais Method

Mlissa
  • By Mlissa · New reply September 23, 2009
  • Discussion in Treatment · 2 replies
  • Hi, I have a 3 year old beauitful daughter who was diganosed with Spastic Diplegia C.P when she was 2 years old. We live in Ireland. And there is not much info given to parent about this. I had to find ...

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