Inspire connects patients, families, friends and caregivers for support and inspiration... More about this group

MNRI/Musgutova and/or QRI (Reflex Integration)

learningpreemiemom
  • By learningpreemiemom · New reply 1:15 pm
  • Discussion in Treatment · 2 replies
  • Any experiences with reflex integration? Anyone that has done this (or seen this done) with a child in the long run, say tried it for a period over 6 months? Any feedback is, of course, appreciated but ...

HBot Treatment in Chicago

CutieCookie
  • By CutieCookie · New reply 10:46 am
  • Discussion in Raising a child with cerebral palsy · 6 replies
  • I am wondering if anyone out there know a facility which offer HBot treatment in Chicago area. Also interested in knowing your experience ...

Brain/Sensory Integration

learningpreemiemom
  • By learningpreemiemom · New reply yesterday at 9:51 am
  • Discussion in Treatment · 23 replies
  • Any experiences with brain/sensory integration techniques for treatment/management of CP? Please share your experiences ...

Eating problems - suggestions/input needed

Acat800
  • By Acat800 · New reply yesterday at 9:30 am
  • Discussion in Raising a child with cerebral palsy · 8 replies
  • So my son is now 8 months old and he was gaining weight well up until about 6 months. He’s now floating around 15lbs but seemed to have lost a little weight in the last week. We think he struggles with ...

Why stay away from Stem Cell Hospital?

lbzimmerman1010
  • By lbzimmerman1010 · New reply May 22, 2013
  • Discussion in Treatment · 5 replies
  • This is a true story about Dr. Shroff's hospital in New Delhi, India, where, my son in law went for Embryonic Stem Cell Therapy two years in a row after suffering a stroke, from which he woke up BLIND ...

Pre -diagnosis advice

newsoundera
  • By newsoundera · New reply May 20, 2013
  • Discussion in Raising a child with cerebral palsy · 8 replies
  • Hi JUst joined this site and this is my first post, i hope some one can help me My daughter is yet to be diagnosed, but after researching,i believe she has cerebral palsy, we are awaiting a appointment ...

Sooooooo frustrated!

dancefreak4
  • By dancefreak4 · New reply May 20, 2013
  • Journal · 4 replies
  • Now that my daughter, Kelcie has turned 15 there is a whole different kind of discrimination being directed at her. It's like everyone around her is saying "That's far enough, you can't go any further ...

oh the stress the stress

LeahLynnsMommy
  • By LeahLynnsMommy · New reply May 19, 2013
  • Journal · 4 replies
  • Well we have started leah transition process and already it showing struggles and bumps in the road. We had our team meeting the second one so far this past friday.And i walked out of there more stressed ...

Five million

Brian
  • By Brian · New reply May 18, 2013
  • Journal · 205 replies
  • Dear members, Yesterday, Inspire reached a milestone: five million posts written by members! Each of these posts, and the 700 million words they contain, are a simple measure of how much we all do to ...

Amino acids and cerebral palsy

Petraa
  • By Petraa · New reply May 17, 2013
  • Discussion in Treatment · 3 replies
  • Hi, I have found an old topic here about treatment with amino acids http://www.inspire.com/groups/cerebral-p alsy/discussion/amino-acid-therapy/ I would like to share our experience, how it works. AA ...

Feeding help-lip closure

nspark
  • By nspark · Posted May 17, 2013
  • Discussion in Raising a child with cerebral palsy · 0 replies
  • My son is struggling with eating. He likes eating but does not chew and does not close his lips around the spoon. Has anyone experienced this and if so do you have any ideas of what I can try to get him ...

Stem cell Treatment - Cerebral Palsy

macii
  • By macii · New reply May 17, 2013
  • Discussion in Treatment · 2 replies
  • Has anyone heard of any sucess stories for stem cell treatments for severe Cerebral Palsy anywhere in the world ? I really need to know as i have been searching..have tried everything from vitamins to ...

Any tips on neck strength and sitting????

johnnita
  • By johnnita · New reply May 16, 2013
  • Journal · 29 replies
  • my son turned 1 years old on the 21/02/2013, he is still not sitting, and his neck strength is still very weak, however he has started to re gain eye sight and his more alert to his surroundings and emotions ...

We don't call it CP-what?!?

takeeling
  • By takeeling · New reply May 16, 2013
  • Discussion in Raising a child with cerebral palsy · 20 replies
  • This is a vent… My son is 3. It was just last Nov that we discovered he has cerebral palsy. And I say discovered, because I found out he had the diagnosis when I requested a copy of a referral from his ...

HAs anyine tried HBOT

KentM
  • By KentM · New reply May 16, 2013
  • Discussion in Treatment · 11 replies
  • There is a HBOT Clinic in south central Wisconsin that is offering 1.75ATA Hyperbaric Oxygen therapy for $75 per 1 hour treatment with some cost reduction for 2 or 3 children treated at the same time ...

problems with eating

bassentfisal
  • By bassentfisal · New reply May 14, 2013
  • Discussion in Raising a child with cerebral palsy · 6 replies
  • hey there , i am asking for advice in eating problems when you have a child with cerebral palsy , she always crying and screaming while she is eating or drinking , i don't know if she only has a reflux ...

potty trained at 10 yrs old

buk
  • By buk · New reply May 14, 2013
  • Discussion in Independent living · 10 replies
  • I want to share this maybe your child might have it. My child has mild cp uses a walker and just started using her canes. She is 10 and just got potty trained , she was continent on bowels she told me ...

Anyone familiar with Botox injections in the peck muscles?

MalissaD
  • By MalissaD · New reply May 13, 2013
  • Discussion in Treatment · 5 replies
  • Have any of your children been given Botox injections in the upper body? How were the results ...

Adapted bike giveaway

buk
  • By buk · New reply May 12, 2013
  • Discussion in Assistive technology and equipment · 2 replies
  • I got this today and thought you might be interested. Friendship circle is giving away adaptive bikes. Please share this with family and friends. They only have until May 12th to submit. https://friendshipcircle.org/bikes ...

BABY CP 13 YRS

sethiya104

Log in to see more

Don't have an Inspire account? Sign up now!

Forgot password?

Things you can do

Discussion topics

Community leaders

Inspire others

About this community

Inspire connects patients, families, friends and caregivers for support and inspiration.

Read more about our work