The Celiac Central Support Community connects patients, families, friends and caregivers for support and inspiration... More about this group

Brave little girl

BAMommy3
  • By BAMommy3 · New reply 1:36 pm
  • Journal · 4 replies
  • Can you please vote for my daughter Taylor in the "Battle of the Brave" contest on facebook? She's currently in 3rd place- trying to win a $25k donation for the hospital that saved her life. She would ...

Five million

Brian
  • By Brian · New reply yesterday at 4:06 pm
  • Journal · 205 replies
  • Dear members, Yesterday, Inspire reached a milestone: five million posts written by members! Each of these posts, and the 700 million words they contain, are a simple measure of how much we all do to ...

Mental Health & Celiac Disease

nogluten
  • By nogluten · Posted May 16, 2013
  • Discussion in Advocacy and awareness · 0 replies
  • Are there any good studies, books, papers, etc. that clearly explain the connection between CD & mental health ...

A new Inspire report in collaboration with Stanford Medical School

Brian
  • By Brian · New reply May 5, 2013
  • Journal · 84 replies
  • As many of you know, Inspire has a professional collaboration with the Stanford University School of Medicine. Inspire members have written personal stories for the Stanford Scope column. I am pleased ...

When you say nothing at all: Living with an invisible illness

John2
  • By John2 · Posted April 18, 2013
  • Journal · 0 replies
  • From: John Novack, communications director, Inspire Dear members, I'm writing to share with you a new column on the Stanford University School of Medicine "Scope" medical blog: "When you say nothing at ...

Organic and Gluten-Free Foods

NFCA_Alicia
  • By NFCA_Alicia · Posted April 17, 2013
  • Discussion in Gluten-free food · 0 replies
  • NFCA is having a Facebook chat with Mary Waldner, the founder of Mary's Gone Crackers on 4/22. We're going to be talking about the role of organic ingredients with Mary, so I'm curious to know how many ...

The Inspire Q&A: Inspire talks with Deanna Attai, MD

John2
  • By John2 · New reply April 16, 2013
  • Journal · 16 replies
  • Dear members, We at Inspire are pleased to bring you the latest in a series of Q&A interviews with people who are making contributions to helping patients and caregivers worldwide. The people in this ...

Experts by Experience

NFCA_Alicia
  • By NFCA_Alicia · Posted March 13, 2013
  • Discussion in Advocacy and awareness · 0 replies
  • Hi all! Inspire and the Stanford University blog teamed up to share patient stories of living with a chronic illness. They recently compiled stories from the blog featuring people who are "Experts by ...

Introduction

HawkFan1
  • By HawkFan1 · New reply March 11, 2013
  • Discussion in Living with celiac disease · 6 replies
  • Hi--my name is Kim and I was diagnosed in August of 2012. I had been sick for some time and the doctors I was seeing continued to tell me I had a digestive issue. I continued to be sick and lose weight ...

Baking Question: Need a flour to suit multiple allergies

NFCA_Alicia
  • By NFCA_Alicia · New reply March 10, 2013
  • Discussion in Gluten-free food · 4 replies
  • Hi Everyone, A community member has a question about gluten-free flours. In addition to being gluten intolerant, she cannot eat: sorghum flour potato rice soy buckwheat fava bean Does anyone have any ...

What causes celiac disease?

NFCA_Alicia
  • By NFCA_Alicia · New reply March 3, 2013
  • Discussion in Celiac disease in the news · 4 replies
  • There was a really fascinating article in the New York Times over the weekend that tackles the tough question: What really causes celiac disease? Take a look: http://www.nytimes.com/2013/02/24/opinio ...

Gluten Withdrawal?

CarenM
  • By CarenM · New reply February 17, 2013
  • Discussion in Gluten-free food · 6 replies
  • Hi, I joined this group hoping to get some input from people who have had to go gluten free. Long story short my husband (who tested negative for CD with biopsy) and I (no formal testing) have enough ...

Switching to the gluten-free diet

NFCA_Alicia
  • By NFCA_Alicia · New reply February 15, 2013
  • Discussion in Gluten-free food · 5 replies
  • I see so many different viewpoints on the gluten-free diet from reading blogs, forums and comments on Facebook. Some people say the switch to the gluten-free diet has been easy for them while others have ...

Getting sick AGAIN. Celiac or Crohn's ??????

1sharq
  • By 1sharq · New reply February 14, 2013
  • Journal · 13 replies
  • I must have eaten something which I was not suppose to eat that had Gluten in it. All ingredients where suppose to be GF but I feel so sick and feel like vomiting. I have diarrea and pain in my abdomen ...

The Inspire Q&A: Inspire talks with Lindsey Miller

John2
  • By John2 · New reply February 6, 2013
  • Journal · 13 replies
  • We at Inspire are pleased to bring you the latest in a series of Q&A interviews with people who are making contributions to helping patients and caregivers worldwide. The people featured in our Q&A series ...

Celiac, why me?

1sharq
  • By 1sharq · New reply February 2, 2013
  • Discussion in Getting a diagnosis · 5 replies
  • Hi, I've just been diagnosed with another disease this time it's celiac. Don't know much about this new condition. I also am lactose intolerant , have Crohn's disease and have an Ileostomy, osteoporosis ...

Bone spurs and gluten sensitivity?

efairbank
  • By efairbank · New reply January 31, 2013
  • Discussion in Living with celiac disease · 7 replies
  • I'm 27 and recently discovered I have gluten sensitivity. I've had a bone spur on the back of each hand and a bone spur on the top of each foot cause pain over the past 4 years. Has anyone ever heard ...

Survey for Gluten-Free College Students

NFCA_Alicia
  • By NFCA_Alicia · Posted January 29, 2013
  • Discussion in Gluten-free in college · 0 replies
  • Hey Everyone, The National Foundation for Celiac Awareness is hosting a survey of gluten-free students in college to learn more about their needs on campus. Check out the survey here: bit.ly/YBHjo3 You ...

Vacationing without your gluten-free kids?

NFCA_Alicia
  • By NFCA_Alicia · Posted January 29, 2013
  • Discussion in Raising a child with celiac disease · 0 replies
  • I just saw this article from Rudi's Gluten-Free Bakery on vacationing without your food allergic or gluten-free children. I'm curious- is this something anyone has ever done? What was your experience ...

Poll: What do you think of gluten-free baked goods?

NFCA_Alicia
  • By NFCA_Alicia · New reply January 26, 2013
  • Discussion in Gluten-free food · 13 replies
  • Shelley Case is a registered dietitian and she's looking for some feedback on the gluten-free options that are available. Comment here to give her your feedback to her poll question: Of that existing ...

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Discussion topics

Links and resources from NFCA

CeliacAwareness: Did you send your green photos in for the special #celiac awareness Facebook photo album yet? http://t.co/CMJn4ysd0V

CeliacAwareness: #Philly friends! Don’t miss out on #Celiac Awareness Night: http://t.co/MbAEgh89Fl

CeliacAwareness: Congrats to @SunHealthAZ on becoming the first #glutenfree senior living center in #AZ! #GoGREAT! http://t.co/Dg5WQwZd1r

CeliacAwareness: @USAToday Thanks for the mention! “Despite Study, Some Universities Cater to Gluten-Free Needs” http://t.co/Pb5Y1W5wGg

CeliacAwareness: Good info! RT @CureCeliac Huffington Post article dispels some of the myths people w/ #celiac encounter every day: http://t.co/kZ3zHsahAt

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About this community

The Celiac Central Support Community connects patients, families, friends and caregivers for support and inspiration. This community is sponsored by the National Foundation for Celiac Awareness, an Inspire trusted partner.