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- By krystel · Posted January 4, 2009
- Journal · 1 reply
- my son Evan has a rare bone disease called "Langerhans Cell Histiocytosis.and im trying to find other familys with children with the same disease.Evan is three years old,we fond out last january and i ...
- By CanadaNuse · Posted December 22, 2008
- Journal · 1 reply
- Well the year is soon to come to the end, and new year will bring us hope joy, and laughter. We have a lot of things to due before June 2009, that's when Provincial Summer Games are being held in St ...
- By debham57 · Posted December 19, 2008
- Journal · 0 replies
- Anyone out there with CAH I would like to hear from you ...
- By Brian · Posted December 4, 2008
- Journal · 14 replies
- I am pleased to announce that today we added a new group to Inspire: The National Body Challenge. nationalbodychallenge We created this group in partnership with Discovery Health. The group focuses on ...
- By Dante · Posted November 29, 2008
- Journal · 0 replies
- LIGNEOUS CONJUNCTIVITIS R. MEHTA* and A. D. SHAPIRO *Department of Clinical Medicine, Section of Hematology/Oncology, Indiana University School of Medicine, Indianapolis, IN; and Indiana Hemophilia and ...
- By Dante · Posted November 29, 2008
- Journal · 0 replies
- PLASMINOGEN DEFICIENCY R. MEHTA* and A. D. SHAPIRO *Department of Clinical Medicine, Section of Hematology/Oncology, Indiana University School of Medicine, Indianapolis, IN; and Indiana Hemophilia and ...
- By CanadaNuse · Posted November 17, 2008
- Journal · 3 replies
- A lot has been happening on the home front. Ash's medical team including mental health are changing her dosage of medications, times given etc. In hopes that the current combination of medications will ...
- By Brian · Posted August 27, 2008
- Journal · 48 replies
- At Inspire, we think about privacy all the time. Virtually every web site has a privacy policy; you can read ours here: http://www.inspire.com/about/privacy/. But simply following the letter of a privacy ...
- By namitabh · Posted August 22, 2008
- Discussion in Classical CAH · 0 replies
- hi friends, my wife, Archana, 33 yrs., is suffering from FSGS and AIHA. her S. CR. is 5.1 and doctors have advised transplant. can you all tell me if any international group which helps and supports kidney ...
- By CanadaNuse · Posted August 21, 2008
- Journal · 2 replies
- There has been alot going on, since our last post, and honestly I don't know where to start. We had over TEN doctor visits and still not closer to anything. But we keep on getting more clinical DX for ...
- By Walter · Posted June 20, 2008
- Journal · 35 replies
- Hi everyone. We added a new feature today that you can use to support your groups and the organizations that sponsor them, and get the word out about the causes that are important to you. If you visit ...
