About this community
The National Adrenal Diseases Foundation Support Community connects patients, families, friends and caregivers for support and inspiration. This community is sponsored by the National Adrenal Diseases Foundation, an Inspire trusted partner.
Contact
P.O. Box 95149
Newton, MA 02495
Phone: (847) 726-9010
nadfmail@nadf.us
www.nadf.us
Community Leaders
Estoy buscando un perro de alerta médica para Addison. Así como un medidor de cortisol en saliva, algo como el “soma cube”. Me pueden ayudar?
I was diagnosed with Addison’s at the beginning of December 2023, after the most awful few months of my life. In early 2023 my skin started to get really tan, I’m generally very fair skin in the winte ... Show more
Hello! My name is Steph Shuff, and I am a writer working here at Inspire. Every month, I help to write, edit, and publish our Monthly Dose newsletter, a monthly email that highlights articles from ac ... Show more
Is anyone dealing with Addison's disease and liver issues? Approximately 2 years ago I started getting pain in my upper abdomen, just to right and just under my rib. I was once buckled over in pain ... Show more
Recently I flew from Chicago to Addis Ababa, non-stop, and went into a crisis on deplaning. Since then I have required higher doses of hydrocortisone than at the lower, Chicago elevation. It is impos ... Show more
I had a positive Cologuard test & now need a full colonoscopy. How does it work for Addison’s people (primary adrenal insufficiency) like myself? I was told somewhere along the line we can’t do the tr ... Show more
Hi, I don’t quite know how this works, but here goes. It all started with knee surgery when my surgeon discovered salmonella in my knee. Unbelievable… then it turned into sepsis … and here I am four ... Show more
Any current updates on when an auto injector for Solu Cortef will be available?
I have had hypothyroidism for over 30 years and Addison's Disease for the past 5. Taking hydocortisone and Synthroid. My endocrinologist told me after a bone density test that I needed to start Proli ... Show more
I have been treated for Addison’s since 2005 when I almost died from hyponatremia. I have been taking hydro/fludro since then with zero problems. A family member needs a kidney? Could I donate?