The CARES Foundation Support Community connects patients, families, friends and caregivers for support and inspiration... More about this group

"A wake-up call from a young e-patient: 'I need to be heard'”

John2
  • By John2 · Posted yesterday at 3:22 pm
  • Journal · 0 replies
  • From: John Novack, Communications Director, Inspire 4/15/14 Dear members, I am writing to share with you a new guest column in "Scope," the Stanford University School of Medicine's medical blog: "A wake-up ...

The Inspire Q&A: Inspire talks with Don Dizon, MD

John2
  • By John2 · New reply March 19, 2014
  • Journal · 12 replies
  • The Inspire Q&A: Inspire talks with Don Dizon, MD Dear members, We at Inspire are pleased to bring you the latest in a series of Q&A interviews with people who are making contributions to helping patients ...

Our second annual report with Stanford Medical School

Brian
  • By Brian · Posted March 19, 2014
  • Journal · 0 replies
  • We just finished a brand new special report, “Experts by experience 2014: A compilation of patients’ stories”, in partnership with the Stanford University School of Medicine. It is a 31-page collection ...

Hitting a milestone -- 5,000 photos posted already

John2
  • By John2 · Posted March 18, 2014
  • Journal · 0 replies
  • From: John Novack, communications director, Inspire 3/18/14 Dear members, I'm writing to let you know that in a little more than a month, members here have posted more than 5,000 photos. Congratulations ...

Honoring my mom

Heartsickdaughter
  • By Heartsickdaughter · New reply March 2, 2014
  • Journal · 16 replies
  • I had this picture of a tattoo I wanted I showed it to my mom a few weeks ago she loved it. We laid her to rest yesterday and I got it done today. Never had one before but I felt I needed to honor my ...

Buried my mom today

Heartsickdaughter
  • By Heartsickdaughter · New reply March 1, 2014
  • Journal · 15 replies
  • The last three days have been very rough but today was even rougher, I had to say my final good bye today to my mom! She was my best friend. I will never see her again as long as I am still here. The ...

Mom passed away

Heartsickdaughter
  • By Heartsickdaughter · New reply February 28, 2014
  • Journal · 11 replies
  • Lost my mom to this awful disease called cancer She lost her battle 2/25/14 @12:54 am Admitted by anbulAnce under code red she had a urinary tract infection that really hit her hard went into the blood ...

The Inspire Q&A: Inspire talks with Kathy Nieder, MD

John2
  • By John2 · New reply February 23, 2014
  • Journal · 36 replies
  • The Inspire Q&A: Inspire talks with Kathy Nieder, MD By John Novack, Communications Director, Inspire Dear members, We at Inspire are pleased to bring you the latest in a series of interviews with people ...

Introducing Photos for Inspire

Walter
  • By Walter · New reply February 13, 2014
  • Journal · 180 replies
  • Hello everyone, Today at Inspire we’re excited to announce the launch of a new feature, and it’s one that many of you have requested -- the ability to upload photos to Inspire. You can now add photos ...

my 5 year old son linear sebaceous syndrome

chanelle6
  • By chanelle6 · New reply February 7, 2014
  • Journal · 2 replies
  • Hello all, i have a 5 year old son who has been displaying signs of a developmental delay since age 3, he would hideif guess came over to visit,he hid his entire birthday party, in school he displayed ...

New infographic: Inspire Rare Disease Health Communities at a Glance

John2
  • By John2 · Posted January 9, 2014
  • Journal · 0 replies
  • From: John Novack, Communications Director, Inspire 1/9//13 Dear members, I am writing to share with you a new infographic that Inspire published yesterday: Inspire Rare Disease Health Communities at ...

An Unstoppable Rare Disease Mom

all4CAID
  • By all4CAID · New reply December 13, 2013
  • Journal · 3 replies
  • Lisa Moreno-Dickinson may not have made Forbes’ list of the world’s most powerful people this year. But that is not going to stop her from changing the world for children who suffer unbearable pain from ...

Thank You, From Inspire

Walter
  • By Walter · New reply December 3, 2013
  • Journal · 108 replies
  • Hello everyone, As Thanksgiving approaches, all of us at Inspire would like to take a moment to thank you for being part of our community. While we wish no one had to deal with the serious health issues ...

Vibrations, Trembling, Shaking Inside

humanity111
  • By humanity111 · Posted November 27, 2013
  • Discussion in Non-classical CAH (NCAH) · 0 replies
  • This is in response to all the questions regarding trembling inside, shaking, vibrations. ANSWER – This is in response to all the questions regarding the trembling or vibrations running through your body ...

Life, Love, and the Pursuit of a Pain-free Night

Khatn
  • By Khatn · New reply November 19, 2013
  • Journal · 61 replies
  • This past week has given me a load of rows to hoe and think about. One week ago, my darling (and she truly is) 2-y-o Maine Coon kitten (don't care if she's 2, she's still my little kitten) came to me ...

Rex....

deducit
  • By deducit · New reply September 24, 2013
  • Journal · 3 replies
  • Just heard Rex is back in the hospital with two more seizures and i have not heard about Harry....keep praying...Love and Prayers, Diane ...

REX AND HARRY

deducit
  • By deducit · New reply September 18, 2013
  • Journal · 6 replies
  • I COULDN'T POSSIBLY ANSWER ALL YOUR POSTS FOR PRAYER FOR REX AND HARRY...BUT I AM AWE STRUCK AT HOW MANY POSTS I RECEIVED AND HAVE RELAYED THEM TO THEIR WIVES WHO ARE SOOOOOOOOO GRATEFUL!!!!!!! AS AM ...

I NEED PEOPLE TO PRAYER FOR MY FRIEND REX!!

deducit
  • By deducit · New reply August 29, 2013
  • Journal · 42 replies
  • I JUST FOUND OUT OUR FRIEND REX HAS MELANOMA LUNG CANCER THAT HAS SPREAD TO HIS BRAIN...THEY ARE TREATING HIM WITH RADIATION...PLEASE PUT HIM ON YOUR PRAYER LIST...HE IS A GOOD MAN...WITH A WONDERFUL ...

Five million

Brian
  • By Brian · New reply August 5, 2013
  • Journal · 261 replies
  • Dear members, Yesterday, Inspire reached a milestone: five million posts written by members! Each of these posts, and the 700 million words they contain, are a simple measure of how much we all do to ...

A new Inspire report in collaboration with Stanford Medical School

Brian
  • By Brian · New reply July 22, 2013
  • Journal · 116 replies
  • As many of you know, Inspire has a professional collaboration with the Stanford University School of Medicine. Inspire members have written personal stories for the Stanford Scope column. I am pleased ...

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About this community

The CARES Foundation Support Community connects patients, families, friends and caregivers for support and inspiration. This community is sponsored by CARES Foundation, an Inspire trusted partner.