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Again its' been a while since I last posted
- By CanadaNuse · Posted 1:48 pm
- Journal · 0 replies
- A lot has happened since we last posted. Current Up date from NIH isn't going to be clear cut and to the point. All it say's that my daughter Ashley case is more complex then they thought! Yesterday July ...
Share your story via video!
- By TeamInspire · New reply June 23, 2009
- Journal · 28 replies
- Sometimes the most powerful message each of us can share is our personal story -- our own experience. With upcoming healthcare legislation pending, one way we can be advocates is to share these stories ...
Support your group and raise awareness with badges
- By Walter · New reply June 22, 2009
- Journal · 39 replies
- Hi everyone. We added a new feature today that you can use to support your groups and the organizations that sponsor them, and get the word out about the causes that are important to you. If you visit ...
Follow Inspire on Twitter and Facebook!
- By TeamInspire · New reply June 12, 2009
- Journal · 32 replies
- We're happy to announce that you can now stay in touch with what's happening at Inspire by following us on both Twitter and Facebook. While Inspire communities are still the best places to connect with ...
Guestbooks - An exciting addition to Inspire
- By TeamInspire · New reply June 9, 2009
- Journal · 36 replies
- Hello everyone, We're writing to let you know about a great new feature we'll be adding to Inspire in the very near future: guestbooks. This is a feature that many of you have requested, and we're very ...
Guestbooks are now live!
- By TeamInspire · New reply June 3, 2009
- Journal · 3 replies
- Hello everyone, Last week we mentioned that we'd be adding guestbooks to Inspire in the near future, and they are now live! We're very excited about this feature and hope you enjoy it. To check out your ...
Moms, you rock!
- By TeamInspire · Posted May 1, 2009
- Journal · 0 replies
- Looking for a unique and extraordinary way to say "thank you" to your mom? In honor of Mother's Day, good friend of Inspire Dr. Gwenn (of http://www.PediatricsNow.com and http://www.DrGwennIsIn.com) will ...
My three year old Grandson with a brain injury..
- By mamaw4ever · Posted March 4, 2009
- Discussion in Classical CAH · 0 replies
- My Grandson was two and a half years old when he was viciously attacked by his caregiver.He is now three years old.He sustained severe head trauma when he was attacked by the babysitter. Even though he ...
Questions regrading Caudal Regression Sydrome
- By MsShawneal · Posted February 12, 2009
- Discussion in Non-classical CAH (NCAH) · 0 replies
- Hi, I am a 21 female with Caudal Regression Sydrome, I been looking for answers for years and than i came upon this site and which i hope can answer all or either some of my questions, I been curious ...
It's been a while since I last posted
- By CanadaNuse · New reply January 29, 2009
- Journal · 2 replies
- Well the year is soon to come to the end, and new year will bring us hope joy, and laughter. We have a lot of things to due before June 2009, that's when Provincial Summer Games are being held in St ...
New group in Inspire: The National Body Challenge
- By Brian · New reply January 12, 2009
- Journal · 25 replies
- I am pleased to announce that today we added a new group to Inspire: The National Body Challenge. nationalbodychallenge We created this group in partnership with Discovery Health. The group focuses on ...
my son,Evan Michael Stephens
- By krystel · New reply January 4, 2009
- Journal · 1 reply
- my son Evan has a rare bone disease called "Langerhans Cell Histiocytosis.and im trying to find other familys with children with the same disease.Evan is three years old,we fond out last january and i ...
Congenital Adrenal Hyperplasia
- By debham57 · Posted December 19, 2008
- Journal · 0 replies
- Anyone out there with CAH I would like to hear from you ...
Feeling more lost then ever! with medical and education
- By CanadaNuse · New reply December 13, 2008
- Journal · 3 replies
- A lot has been happening on the home front. Ash's medical team including mental health are changing her dosage of medications, times given etc. In hopes that the current combination of medications will ...
LIGNEOUS CONJUNCTIVITIS
- By Dante · Posted November 29, 2008
- Journal · 0 replies
- LIGNEOUS CONJUNCTIVITIS R. MEHTA* and A. D. SHAPIRO *Department of Clinical Medicine, Section of Hematology/Oncology, Indiana University School of Medicine, Indianapolis, IN; and Indiana Hemophilia and ...
PLASMINOGEN DEFICIENCY
- By Dante · Posted November 29, 2008
- Journal · 0 replies
- PLASMINOGEN DEFICIENCY R. MEHTA* and A. D. SHAPIRO *Department of Clinical Medicine, Section of Hematology/Oncology, Indiana University School of Medicine, Indianapolis, IN; and Indiana Hemophilia and ...
Its been a while since I last posted!
- By CanadaNuse · New reply November 17, 2008
- Journal · 2 replies
- There has been alot going on, since our last post, and honestly I don't know where to start. We had over TEN doctor visits and still not closer to anything. But we keep on getting more clinical DX for ...
Privacy and control
- By Brian · New reply September 1, 2008
- Journal · 48 replies
- At Inspire, we think about privacy all the time. Virtually every web site has a privacy policy; you can read ours here: http://www.inspire.com/about/privacy/. But simply following the letter of a privacy ...
Any support group for kidney patients ?
- By namitabh · Posted August 22, 2008
- Discussion in Classical CAH · 0 replies
- hi friends, my wife, Archana, 33 yrs., is suffering from FSGS and AIHA. her S. CR. is 5.1 and doctors have advised transplant. can you all tell me if any international group which helps and supports kidney ...
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The CARES Foundation Support Community connects patients, families, friends and caregivers for support and inspiration. The CARES Foundation Support Community is sponsored by CARES Foundation in partnership with Inspire.