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All new and active discussions & journals

Panhypopituitarism

jackfwms
  • By jackfwms · New reply 1:33 am
  • Journal · 24 replies
  • I've had this condition since 1988. The result of a brain injury. It feels as if my brain is slowly dying. I have no idea what to expect next. In Feb. 2009 I was diagnosed with type 2 diabetes. I'm taking ...

would like to talk with othercaregivers

kellyjoe
  • By kellyjoe · New reply February 5, 2010
  • Journal · 8 replies
  • my husband is 41 and recently had a chemical spill at work that left him with a brain injury causing a type of dementia we have a 20 month old daughter looking for other caregivers to talk with that might ...

Joannah

joannah
  • By joannah · New reply January 31, 2010
  • Discussion in Non-classical CAH (NCAH) · 11 replies
  • I am looking for people who have been diagnoised with Carney Compley or Cushings Syndrome t o share experiences and penpal ...

hello

kellyjoe
  • By kellyjoe · New reply January 29, 2010
  • Journal · 14 replies
  • hello new to site kellyjoe ...

my journey...

missportlandgurl
  • By missportlandgurl · New reply January 15, 2010
  • Journal · 7 replies
  • I found out I had familial polyposis and Gardner's Syndrome when I was 15 year old. I went on a camping trip with my family and my best friend. We got there and got everything at the camp ground set and ...

Caitlyn

mnelson
  • By mnelson · New reply January 2, 2010
  • Journal · 16 replies
  • Caitlyn passed on sept. 8 after a 3 year battle with brain cancer. The last days were difficult may god bless all those struggling with cancer ...

Angela Martinez- "That's Who I Am"

angelacountrystar
  • By angelacountrystar · New reply November 20, 2009
  • Journal · 1 reply
  • First of all I would like to introduce myself to everyone before I start telling you my story. Actually it's a continuing story because I am young and I have so much more to experience in life before ...

My three year old Grandson with a brain injury..

mamaw4ever
  • By mamaw4ever · New reply November 15, 2009
  • Discussion in Classical CAH · 2 replies
  • My Grandson was two and a half years old when he was viciously attacked by his caregiver.He is now three years old.He sustained severe head trauma when he was attacked by the babysitter. Even though he ...

Inspire members featured

Brian
  • By Brian · New reply November 4, 2009
  • Journal · 29 replies
  • Today Massachusetts General Hospital's Proto Magazine published a wonderful profile of nine Inspire members. Each of these stories underscores what we all know to be true -- that Inspire is a special ...

Clinical trial carbo/gemzar/avastin

godshome
  • By godshome · Posted October 29, 2009
  • Journal · 0 replies
  • I had my ct on monday--Tuesday got good news --No evidence of a recurrent or metastatic intra-abdominal malignancy is noted--The chemo makes me feel so bad I was just dreading the results of the scan--My ...

help

kellyjoe
  • By kellyjoe · New reply October 18, 2009
  • Journal · 4 replies
  • looking for help researching fahr's disease for loved one ...

hello

momma1996
  • By momma1996 · New reply October 18, 2009
  • Journal · 1 reply
  • hello my name is momma1996 i am new here i looking meet other people ...

Caitlyn

mnelson
  • By mnelson · New reply October 7, 2009
  • Journal · 10 replies
  • Caitlyn is not doing well today. Each day gets a little bit worse. I am glad that she does not seem to be in much pain. She is so much stronger than me ...

my son,Evan Michael Stephens

krystel
  • By krystel · New reply September 18, 2009
  • Journal · 2 replies
  • my son Evan has a rare bone disease called "Langerhans Cell Histiocytosis.and im trying to find other familys with children with the same disease.Evan is three years old,we fond out last january and i ...

Guestbooks are now live!

TeamInspire
  • By TeamInspire · New reply August 15, 2009
  • Journal · 6 replies
  • Hello everyone, Last week we mentioned that we'd be adding guestbooks to Inspire in the near future, and they are now live! We're very excited about this feature and hope you enjoy it. To check out your ...

Scheduled maintenance this evening

TeamInspire
  • By TeamInspire · New reply August 12, 2009
  • Journal · 13 replies
  • All, Inspire will be performing database updates this evening starting at 8:00 Eastern. We expect the updates to take no more than 2 hours and the site will be unavailable at this time. We thank you for ...

Congenital Adrenal Hyperplasia

debham57
  • By debham57 · New reply July 23, 2009
  • Journal · 3 replies
  • Anyone out there with CAH I would like to hear from you ...

New to this!

kate63
  • By kate63 · New reply July 14, 2009
  • Journal · 4 replies
  • What a great idea this is. I hope to find answers regarding insurance and doctors, and also for pain management; and in return to provide inspiration with my own experiences. The best medicine, in my ...

Again its' been a while since I last posted

CanadaNuse
  • By CanadaNuse · Posted July 4, 2009
  • Journal · 0 replies
  • A lot has happened since we last posted. Current Up date from NIH isn't going to be clear cut and to the point. All it say's that my daughter Ashley case is more complex then they thought! Yesterday July ...

Share your story via video!

TeamInspire
  • By TeamInspire · New reply June 23, 2009
  • Journal · 28 replies
  • Sometimes the most powerful message each of us can share is our personal story -- our own experience. With upcoming healthcare legislation pending, one way we can be advocates is to share these stories ...

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The CARES Foundation Support Community connects patients, families, friends and caregivers for support and inspiration. The CARES Foundation Support Community is sponsored by CARES Foundation in partnership with Inspire.