Already a member? Sign in
Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
How - Joining Inspire is completely free and usually takes less than a minute. Join now!
Help desk
Have a question about using the site? An idea for making it better? Post here and let us know how we can help.
Questions about multiple PVC's
- By Taterbug · New reply June 19, 2009
- 15 replies
- I have been diagnosed with PVC's. My doc says they are nothing to worry about, they're "normal". Ok, ok...maybe they are normal. I have had all the tests and the latest test was a heart cath to make sure ...
surgery for inappropriate sinus tachycardia
- By mereiriz · New reply May 27, 2009
- 1 reply
- 10 years ago I was diagnosed with Wolff-Parkinson-White Syndrome. After trying many meds I decided to go for an ablation for my accessory pathway. At that time I required 3 of them but they solved my ...
ATRIAL SEPTAL ANEURYSM
- By angelk · Posted April 18, 2009
- 0 replies
- After having a Transesophegal ecocardiogram, which was not fun, I have just heard that there is a whole in my septum in the atrias with a aneurysm, extra skin with holes, and a like a sponge. Does anyone ...
Long QT and ADD
- By Nessa · New reply March 30, 2009
- 20 replies
- Anyone have ADD with long QT? Need more info onit. Son has it Drs say no meds are safe to take ...
ICD coiled wires coming uncoiled
- By Jushag · New reply March 19, 2009
- 3 replies
- My husband's ICD is two months old. A few days ago we noticed a bump above the ICD. Yesterday it is bigger and feels like a bundle of something. No swelling. No red color or anything. No pain. I'm wondering ...
Life with Long QT after age 40
- By LQT2Wendy · New reply March 16, 2009
- 6 replies
- Hello Help Desk! I see that there is a topic/discussoin area for Teens wiht Long QT ....... Can there be a section for survivors/patients of Long QT who are OVER THE AGE OF 40 (faaaaar form being teenagers ...
looking for arrhythmia information for 7yr old
- By ivory · New reply January 15, 2009
- 4 replies
- I am hoping that someone may be able to help with some information. About 3 months ago my 7 year old daughter started complaining of feeling dizzy and having pain in her heart. She describes a flippy ...
arrhythmia in 7yr old
- By ivory · Posted January 12, 2009
- 0 replies
- sorry, I forgot to add that my daughter describes a pinching or squezzing pain in her chest and down her left arm. These times can last for several hours. Again, thank you ...
Long QT what now?
- By Corsin · New reply November 22, 2008
- 5 replies
- Hello everybody! I'm 20 years old and my sister, who's 17, had a hart attack this january. After 5 minutes without breathing the doctors were able to get her back to live. She's now recovering, but she's ...
Dealing with side effects of beta-blockers
- By Laylabug · New reply November 12, 2008
- 11 replies
- I am an advocate who works with students who have attention deficit disorder. One of my new students is 16 y/o. After starting a stimulant for the ADD, he started having chest pain and was subsequently ...
epicardial ICDS in kids???? Can you share expereinces?
- By Buly · Posted November 9, 2008
- 0 replies
- I have a 7 year old who was recently diagnosed with HCM-- because she has a severely large septum (4.0) she is being recommended for an ICD ASAP---but at this age/size it would have to be epicardial which ...
Anti-anxiety medication
- By briansutch · New reply November 8, 2008
- 2 replies
- Hi everyone, Earlier this week, my primary physician diagnosed generalized anxiety disorder and post-traumatic stress resulting from a series of inappropriate shocks and surgical complications I had when ...
Beta blockers and trouble in school?
- By mom2twinz · New reply November 8, 2008
- 12 replies
- Hi everyone! I have twin boys (fraternal) who are 9 years old. One son is LQT with Bradycardia (N), the other is borderline LQT (M). They were diagnosed after our pediatrician heard a heart murmur in ...
Diagnosed with CPVT aged 9
- By latteda · New reply November 3, 2008
- 2 replies
- I would be intersted to hear how common it is for people this age diagnosed with cpvt to get the ICD as our doctor is putting it off for the time being due to our sons age. Any help out there? Sarah ...
Long QT Syndrome and video games
- By crashgem · New reply June 23, 2008
- 6 replies
- I have a 7 year old grandson who was recently diagnosed with long qt syndrome. He has a pacemaker/defibrillator inmplated in him.Yesterday we brought our Wii game system to his house and my son-in-law ...
how much is too much - toprol XL
- By south127 · New reply June 1, 2008
- 5 replies
- I was released from the hospital yesterday after a two day bout of atrial tachycardia and off and on atrial fib. My Toprol XL was increased from 100mg to 150 mg. 100 mg in the morning and 50 mg at night ...
chronic asthma and arrhythmia
- By lily · New reply March 31, 2008
- 2 replies
- i am seeking help so that i can understand my current illness. i have been suffering from chronic asthma for more than 7 years. but it is only now that i have experienced arrhythmia. my doctor told me ...
To Parents of Young Children with Long QT
- By ncz727 · New reply March 6, 2008
- 4 replies
- My 9 year old has Long QT. I am wondering what other parents of Long QT children do when their child(ren) attend after school activities. My daughter is on a beta blocker and wears a Medic Alert bracelet ...
Sports
- By katiesoftball26 · New reply December 17, 2007
- 82 replies
- I'm 15 years old and sports, well softball, is my life. I play on a competitive travel team. We go all over. The varsity team at my high school just won state. Obviously, softball is a huge deal to me ...
symptoms in children
- By MeghanDA · New reply December 3, 2007
- 11 replies
- My 5 year old has recently had LQTS confirmed through genetic testing and is on beta blockers. He never had any symptoms before the test came back but in the last two weeks he has described "fluttering ...
