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Diagnosed with CPVT aged 9
- By latteda · New reply November 18, 2009
- 4 replies
- I would be intersted to hear how common it is for people this age diagnosed with cpvt to get the ICD as our doctor is putting it off for the time being due to our sons age. Any help out there? Sarah ...
the diagnosis is in
- By BrookesMom · Posted October 27, 2009
- 0 replies
- Well, Brooke went to see the pediatric cardiologist today and she felt that she does not have LQT. Her opinion was that Brooke's sodium is slightly low, still in the normal range but on the low side and ...
Ventricular Tachycardia
- By lyssies13_mom · New reply October 21, 2009
- 7 replies
- I have a 13yr old daughter who has been diagnosed with nonsustained Ventricular Tachycardia...I am looking for anyone who can give me any helpful information about this...she has had many tests (stress ...
What is a normal QTc in a child?
- By BrookesMom · New reply October 20, 2009
- 5 replies
- I've looked and looked, scoured the internet but I really am not finding much on what is considered a normal QTc in an 11-year-old girl. Do the values differ for children versus adults? My 11-year-old ...
Long QTc - possible new diagnosis
- By BrookesMom · New reply October 18, 2009
- 9 replies
- My 11-year-old daughter was being worked up for dizzy and lightheaded spells during and after sports, when she got overheated and even sometimes just when out shopping. She had one episode during class ...
Pocket revision surgery infection
- By AGW · New reply September 19, 2009
- 1 reply
- I need to find information about my wife's options regarding not replacing her icd. On aug 17, after her last icd had migrated into her breast, she had a pocket revision surgery and a new icd placed ...
Brugada Syndrome
- By traciefinn · New reply September 10, 2009
- 2 replies
- My son was diagnosed with Brugada 4 yrs ago when he was 17 years old. He has had an ICD since. Does any one know of any limitations as to careers that he can pursue due to his ICD? We have a family business ...
VT
- By sliderjmt · Posted September 8, 2009
- 0 replies
- Hi I had a ICD put in in July of this year does anyone have any suggestions ...
Questions about multiple PVC's
- By Taterbug · New reply June 19, 2009
- 15 replies
- I have been diagnosed with PVC's. My doc says they are nothing to worry about, they're "normal". Ok, ok...maybe they are normal. I have had all the tests and the latest test was a heart cath to make sure ...
surgery for inappropriate sinus tachycardia
- By mereiriz · New reply May 27, 2009
- 1 reply
- 10 years ago I was diagnosed with Wolff-Parkinson-White Syndrome. After trying many meds I decided to go for an ablation for my accessory pathway. At that time I required 3 of them but they solved my ...
ATRIAL SEPTAL ANEURYSM
- By angelk · Posted April 18, 2009
- 0 replies
- After having a Transesophegal ecocardiogram, which was not fun, I have just heard that there is a whole in my septum in the atrias with a aneurysm, extra skin with holes, and a like a sponge. Does anyone ...
Long QT and ADD
- By Nessa · New reply March 30, 2009
- 20 replies
- Anyone have ADD with long QT? Need more info onit. Son has it Drs say no meds are safe to take ...
ICD coiled wires coming uncoiled
- By Jushag · New reply March 19, 2009
- 3 replies
- My husband's ICD is two months old. A few days ago we noticed a bump above the ICD. Yesterday it is bigger and feels like a bundle of something. No swelling. No red color or anything. No pain. I'm wondering ...
Life with Long QT after age 40
- By LQT2Wendy · New reply March 16, 2009
- 6 replies
- Hello Help Desk! I see that there is a topic/discussoin area for Teens wiht Long QT ....... Can there be a section for survivors/patients of Long QT who are OVER THE AGE OF 40 (faaaaar form being teenagers ...
looking for arrhythmia information for 7yr old
- By ivory · New reply January 15, 2009
- 4 replies
- I am hoping that someone may be able to help with some information. About 3 months ago my 7 year old daughter started complaining of feeling dizzy and having pain in her heart. She describes a flippy ...
arrhythmia in 7yr old
- By ivory · Posted January 12, 2009
- 0 replies
- sorry, I forgot to add that my daughter describes a pinching or squezzing pain in her chest and down her left arm. These times can last for several hours. Again, thank you ...
Long QT what now?
- By Corsin · New reply November 22, 2008
- 5 replies
- Hello everybody! I'm 20 years old and my sister, who's 17, had a hart attack this january. After 5 minutes without breathing the doctors were able to get her back to live. She's now recovering, but she's ...
Dealing with side effects of beta-blockers
- By Laylabug · New reply November 12, 2008
- 11 replies
- I am an advocate who works with students who have attention deficit disorder. One of my new students is 16 y/o. After starting a stimulant for the ADD, he started having chest pain and was subsequently ...
epicardial ICDS in kids???? Can you share expereinces?
- By Buly · Posted November 9, 2008
- 0 replies
- I have a 7 year old who was recently diagnosed with HCM-- because she has a severely large septum (4.0) she is being recommended for an ICD ASAP---but at this age/size it would have to be epicardial which ...
Anti-anxiety medication
- By briansutch · New reply November 8, 2008
- 2 replies
- Hi everyone, Earlier this week, my primary physician diagnosed generalized anxiety disorder and post-traumatic stress resulting from a series of inappropriate shocks and surgical complications I had when ...
