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Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
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Building awareness
Congenital rhythm disorders are treatable. Children and young adults can live happy, productive lives if they are diagnosed and treated. Building awareness in your communities is essential. Discuss with others here, the ideas and experience you need or have experienced to educate your community, school nurses and coaches, medical professionals and local emergency teams.
13 year old girl dies from cardiac arrest
- By tdhssp · Posted January 1, 2009
- 0 replies
- Our little girl passed away in December 2006 from a cardiac event at the age of 13 years. Samantha had a rare chromosome disorder and a bicuspid aortic valve, however, no other similarly diagnosed persons ...
Defibrillators in vending machines
- By DrD11 · New reply December 1, 2008
- 3 replies
- In Japan,defibrillators are available in vending machines.("Japan Times",2006.Newspaper). What do you think ...
CATECHOLAMINERGIC POLYMORPHIC VENTRICULAR TACHYCARDIA
- By chrismarch03 · New reply November 14, 2008
- 7 replies
- OUR 14-YEAR OLD SON COLLAPSED AT SCHOOL AND WAS REVIVED WITH A IED. HE WAS DIAGNOSED WITH CPVT, PUT ON BETA-BLOCKERS AND IMPLANTED WITH A IED. HE IS CURRENTLY HAVING PROBLEMS WITH THE IED (UNDERCOUNTING ...
I feel great after 3 years.............
- By DaveB72 · New reply November 5, 2008
- 6 replies
- Just a quick note...I am 36, don't smoke, drink, drugs, etc. Avid gym user and used to run miles a day plus spent 9 years in the martial arts. I developed an arrhythmia 3 years ago out of nowhere. First ...
One other thing....
- By DaveB72 · New reply November 5, 2008
- 2 replies
- I also forgot to add that since I have returned to the gym I am watching my Vitamin D intake. Most vitamins have 400 iu of vitamin d in them already and then I drink milk throughout the day like crazy ...
P-R-T axes and Torsades de Pointes?
- By Alynna · New reply October 25, 2008
- 1 reply
- I'm trying to figure out what the P-R-T Axes values would be during Torsades de Pointes. Here are some real PRT values. Are they examples of Torsades de Pointes? P-R-T Axes: 070 063 -99 ...
Prolonged QT + Levaquin after AVR- Deadly combination?
- By Alynna · Posted October 11, 2008
- 0 replies
- My 46 yr old brother had aortice valve replacement on May 20th. On the 22nd, he was started on Levaquin because of an elevated white count. He went into renal failure and respitory failure, as well as ...
AICD
- By heir333 · New reply October 1, 2008
- 1 reply
- My 9 year old daughter got her AICD on August 25, 2008. The sugery went very well. She retured to school after one week. She can't do P.E. for 6 weeks. She only had to take pain medicine for two days ...
I need some advice please
- By AMA · New reply September 15, 2008
- 3 replies
- Hi. I'm 33 yrs old and currently undergoing testing with an EP and really need some affirmation from those of you that know what I am going through. Back in April while my husband and I were on vacation ...
Competitive sports and Long QT
- By hhoward545 · New reply September 1, 2008
- 3 replies
- My 14 year old son has LQTS type 1. He also loves to play ice hockey. This year he enters High School and has the chance to play for both the town team and the HS team. Clearly this would be in opposition ...
Looking for information and experiences with babies and toddlers
- By auntzz530 · New reply August 19, 2008
- 6 replies
- We would like to hear from members dealing with long qt in their babies and toddlers. Our 13 month old girl has just been diagnosed and any words of wisdom and support would be greatly appreciated ...
OOPS I meant LQT
- By samanthamr · Posted August 6, 2008
- 0 replies
- Yeah I am a little frazzled at the moment ...
mayo clinc exoeriences
- By heartfelt1 · Posted July 29, 2008
- 0 replies
- We are heading to the Mayo in MN soon for a second opinion with Dr. Ackerman - it is supposed to be a 4-5 day inpatient stay. Could anyone share their experiences, what to expect, etc. Also, can anyone ...
Peace of mind
- By heartfelt1 · New reply July 28, 2008
- 7 replies
- We just got the news that our 16 year old daughter has LQT. The 2 EPs we have been to have been more than able to tell us that she cannot compete in sports but they fall short on reassurance that beta ...
Does anyone know how to do heart monitoring at night??
- By auntzz530 · New reply July 24, 2008
- 5 replies
- We have a 13 month old sweetie with Long QT newly diagnosed. She is on beta blocker. We want to be able to monitor her at night using a heart monitor. We were told that this is NOT usually done and that ...
Social Soccer in Rochester
- By camsdad · New reply July 22, 2008
- 1 reply
- Just wondering if there would be interest in the Rochester area for kids with the restriction of no competitive/contact sports to start a social soccer league. It is my intention of having a regular "game ...
Upcoming Doctor Appointment
- By 08dude · New reply July 6, 2008
- 1 reply
- I have had a atrial Arrhythmia condition for almost ten years. I had an ablation in 1999 that was partially successful and have been on meds since then. The meds have controlled the arrhythmia fairly ...
Where to begin?
- By SaraBorgs · New reply May 18, 2008
- 7 replies
- I'm brand new to LQT and haven't stopped crying for the past couple days. I have a million questions so I appreciate any help that can be offered. I am a 34 year old female, very fit and healthy. I am ...
Schools and LQT Syndrome
- By MPA · New reply April 14, 2008
- 4 replies
- My son has LQT and had a ICD implanted in Nov. 2006. In January 2007 the device went off at school. My son is 8 years old. I have had to educate the nurse, teacher and principal by bringing in litureature ...
BETA-BLOCKERS
- By katcarn · New reply April 3, 2008
- 8 replies
- My son, who is 16 years old, was diagnosed with possibly having LQTS by exercise stress test at CHOP in Philadelphia (I say possibly because to know for sure genetic testing would need to be done). The ...
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