Already a member? Sign in
Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
How - Joining Inspire is completely free and usually takes less than a minute. Join now!
Building awareness
Congenital rhythm disorders are treatable. Children and young adults can live happy, productive lives if they are diagnosed and treated. Building awareness in your communities is essential. Discuss with others here, the ideas and experience you need or have experienced to educate your community, school nurses and coaches, medical professionals and local emergency teams.
ECG for newborns!
- By bortner · New reply August 4, 2009
- 1 reply
- My name is Brittany. I was diagnosed with LQTS at 2 yrs old. My mother had me tested (by ECG in 1987) due to the fact she had been diagnosed and implanted with an ICD after going into cardiac arrest 6 ...
Wolff-Parkinson-White and Long QT syndrome, coexisting.
- By BKirsch · New reply August 4, 2009
- 22 replies
- Hi my name is Bonnie and I have a 4 year old daughter who has been diagnosed with having both Wolff-Parkinson-White syndrome and Long QT syndrome. I have yet to come across another person who has both ...
Arrhythmias-Coffee and CoQ10
- By Eamenard · Posted July 14, 2009
- 0 replies
- I have had arrhymias for 20 years or so. I used to get washed out when the heart started skipping beats. About 4 years ago, I stopped drinking decaf coffee and tea and the resting arrhymias stopped and ...
Bleeding at lovenox injection site
- By DaytonaKaren · Posted July 11, 2009
- 0 replies
- Just out of hospital two weeks in a row, making it three admits in 7 weeks. May v-fib 315 bpm, icd saved me, admitted for 3 days. Late June went to Hospital for respiratory testing, heart rate dropped ...
any experiences with tacy brady syndrome
- By DaytonaKaren · Posted July 3, 2009
- 0 replies
- I have been dealing with cardiomyopathy as it relates to tachycardia and my icd for 3 years. In May I have a tachy episode 315 bpm, defibrillator saved me. Since then I felt awful. Even less energy than ...
How many Ablations can one heart take?
- By Tuffy · New reply June 24, 2009
- 7 replies
- Hi, I have been through 3 heart ablations for my IST. The last ablation lasted for almost a year and a half. I am having symptoms now, I am stuck with the issue of going back on heart MEDICATIONS {which ...
Will I know in advance when my ICD will fire?
- By Mazdathree · New reply June 16, 2009
- 12 replies
- My ICD was placed on 01/13/09 so I am new to all of this. Although I have been told an ICD firing feels "like a kick in the chest", I was wondering what others have experienced? Because I do some travel ...
NEW questions after cardiac arrest - lqt
- By Tch4fn · New reply June 14, 2009
- 2 replies
- Hello new friends, On April 4th at 4:00 a.m. I went into full cardiac arrest. My wonderful husband began CPR and saved my life. I was rushed to the ER and then flown to a bigger hospital in Birmingham ...
Does your ICD fire when your bpm get high or just when they get abnormal
- By tkidman · New reply June 14, 2009
- 12 replies
- Hello all. A gentleman on this sight brought something to my attention that I need your input on. I told him I got shocked 5 times in a row from rushing for work one morning. Docs told me my ICD was set ...
Questions about Long QT
- By mrsbrightside · New reply June 11, 2009
- 8 replies
- Hi everyone I'm new to this site and am really just looking for some info. I've read about long qt syndrome and how many people can just collapse and even die. The thought of this sends me into a panic ...
Atrial Fibrillation, Palpitations
- By jareeves4581 · New reply June 10, 2009
- 11 replies
- My story is kind of long so I will try and make it short and stick to the major points. I am a 27 yr old male that has been battling the thought of heart disease for quite sometime now. When I was 18 ...
VT ablation
- By fireryan · New reply May 31, 2009
- 6 replies
- I just got back yesterday from my ablation from Boston, MA. The procedure that was performed on 4/25/08 was not viewed by my specialists down in Miami as very promising, however it was worth a shot. They ...
Arrhythmia and Menopause
- By kbauhs · New reply April 25, 2009
- 16 replies
- My OB/GYN and I came to the conclusion that I am perimenopausal...and she indicated that this can cause heart palpitations, etc. I'm curious if anyone has experienced this. I have Long QT - and things ...
Medication Concerns
- By Great-gram · Posted April 20, 2009
- 0 replies
- Hi! I'm diagnosed with heart disease/problems - some probably related to sarcoidosis - the cardiologist suspects that some is related. I was diagnosed with pulmonary sarcoid back in 2005, but probably ...
Atrial tachycardia
- By south127 · New reply April 12, 2009
- 17 replies
- I have been on 150 mg (100mg in the am 50 in the pm) of Toprol XL since last October with no recurrence of arrhythmias. Then yesterday, one hour after my morning meds, my blood pressure started going ...
My inappropriate sinus tachycardia
- By Darline · New reply April 9, 2009
- 1 reply
- Hi everyone, My name is Darline and I and 28 years old with a 6 year old son. My heart issues started in febuary of this year. I woke up one night at 3:00am. I was feeling sick to my stomach, flushed ...
Could this be Long Qt Syndrome ? Should my siblings be tested also ?
- By sandync36 · New reply March 4, 2009
- 10 replies
- Hello , I am now currently 36 years old and my symptoms began when I was 12 years old . At age 12 , I began having episodes where I would get what felt like muscle spasms around my heart . When this would ...
New problem at the EP Docs office......
- By DaveB72 · New reply February 25, 2009
- 1 reply
- Was actually headed for the Dr. yesterday afternoon for a routine visit to check my implantable monitor. I was awoken at 4 30 yesterday morning by a heavy thumping in my chest. I recorded it and we discussed ...
Borderline Long QT-what activity should be allowed.
- By Myprecious3 · New reply February 14, 2009
- 19 replies
- Hello, My 7yr old daughter was diagnosed this past April with "Borderline" long qt. It has been the most overwhelming time in our lives learning, worrying over this etc etc. She had fainted out of no ...
Describe the Symptoms
- By miss720 · New reply January 11, 2009
- 5 replies
- I'm a 36 yo female and have experienced these crazy symptoms since I was a teen but no one has ever taken interest to find out why I am be experiencing them. My symptoms ALWAYS happen in the morning....how ...
- < Previous
- 1
- 2
- 3
- 4
- Next >
