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Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
How - Joining Inspire is completely free and usually takes less than a minute. Join now!
Building awareness
Congenital rhythm disorders are treatable. Children and young adults can live happy, productive lives if they are diagnosed and treated. Building awareness in your communities is essential. Discuss with others here, the ideas and experience you need or have experienced to educate your community, school nurses and coaches, medical professionals and local emergency teams.
WOULD LIKE TO TALK WITH SOMEONE WHO HAS ARVD
- By stibbetts · New reply yesterday at 4:19 pm
- 4 replies
- I was hoping to meet other people who have this disease. please email me, thanks stacy ...
LGT Syndrome and WPW
- By samanthamr · New reply November 14, 2009
- 3 replies
- Our daughter is a little over 3 months and what a 3 months it has been. We had an emergency c-section due to fluid in the abdomen, she had high direct jaundice, was treated for gall bladder blockage and ...
wish i had denial back
- By Jamesrochelle · New reply November 9, 2009
- 3 replies
- Until this week I had been going along in what I refer now to as denial. My SCA happened in July and within a week I had an ICD. It all happened so fast and without warning. I had a dream last night and ...
CPVT
- By jdm111 · New reply November 5, 2009
- 3 replies
- Hi Everyone....found this board through Google...been a tough 30 days or so...the short story is I found my 6 year old on the garage floor after he went to get his school bag after dinner....went through ...
ICD implanted
- By KierasMom · New reply October 28, 2009
- 16 replies
- I was wondering if anyone else has had a ICD implanted? And their experience... I was told in March I'm "suspiscious" of having Long QT Syndrome, once my 2 year old was confirmed with it. They did the ...
LQT question for everyone
- By bortner · New reply October 19, 2009
- 1 reply
- i am 24 years old and have known i had LQTS for quite some time. i was diagnosed by ekg in 1987 when i was 2. i was put on betas and have been taking them ever since. but, a week after i had my son (last ...
Beta Blockers
- By tones005 · New reply October 18, 2009
- 10 replies
- Hi All, Last tuesday I was diagnosed with LQTS. I'm not sure which number I have at this stage but was curious. As the specialist gave me a prescription for Beta Blockers Metoprolol (I think its called ...
CPVT
- By cgphall · New reply October 14, 2009
- 15 replies
- My daughter (aged 7) has just been diagnosed with CPVT. I would like to speak to anyone who has experience of the condition, so that I can learn more about it and to understand what limitations I need ...
No history diagnosis
- By satyampana · New reply October 3, 2009
- 12 replies
- Do you know of anyone who has been diagnosed without a family history or "event"? My daughter just happened to get a long qt picked up on an EKG when she was being treated for Leukemia. It has taken 2 ...
LQT Numbers- What do they mean?
- By CuriousDee · New reply October 3, 2009
- 4 replies
- I keep hearing about LQT numbers and that they influence diagonsis or treatment. My own numbers range from a low of 396 to 488, with a third test showing 483. Now people are throwing out things like Genetic ...
hi
- By cazza1961 · New reply October 2, 2009
- 21 replies
- hi I am new to this site but I have has tachycardia for years and years, though it is getting more frequent. My heart goes fast but I dont feel sick or anything so I have been told to live with it. But ...
what to eat if you have long qt syndrome
- By Pebs_Bonnie · New reply September 25, 2009
- 18 replies
- I have had Long qt syndrome for a year now and wondered if you have to watch what you eat. I love eating eggs, macaronni, fish, rice and beginning to eat spicy turkish foods mainly. Can anyone help me ...
Support Group
- By redhead4u777 · New reply September 24, 2009
- 2 replies
- There will be a support group for women with heart disease starting in Lower Westchester County, Ny at the end of October. It is sponsored by the National Coalition for Women with Heart Disease. Please ...
ICD lead pain
- By junimead · New reply September 20, 2009
- 3 replies
- I have had my ICD for over a year now and within the last 6 months or so I've been having some strange pain. I think it's where the leads enter the vein. I was wondering if anyone else has had this or ...
CPVT Anyone?
- By TRcyclist · New reply September 11, 2009
- 4 replies
- I would like to hear from anyone who has suspected or confirmed CPVT. What are your symptoms? How was your CPVT diagnosed? What is your treatment plan? I have symptoms of both CPVT and LQT, and would ...
my holter monitor results say a wandering pace maker
- By fairybell · New reply September 9, 2009
- 4 replies
- i have been having problems for a year now weird chest pains tachycardia passing out after walking far or up stairs with no answers my dr requested to see how my heart is going since on beta blockers ...
atrial tachycardia
- By cazza1961 · New reply September 4, 2009
- 2 replies
- Hi i have started discussions before about my tachycardia but I have never been able to get to the doctors when it happens. I live in the country and by the time I get to the hospital or the doctors it ...
LQTS and Exercise
- By ChristopherP · New reply August 20, 2009
- 7 replies
- I am a brand new member of the community and was hoping to get some feedback from current members. I hope this is the appropriate location for this post!? I have been told by my doctor that I most likely ...
LQTS Type 3
- By beaglegirl · New reply August 11, 2009
- 1 reply
- My daughter age 15 has been diagnosed with LQTS, her cardiologist is thinking that is going to be type 3, since her holter monitor showed significant numbers while she was sleeping (480-495). She has ...
Stopped lisinopil started Benicar - anyone experienced with benicar
- By Great-gram · New reply August 9, 2009
- 2 replies
- Hi! A lot has happened - was still coughing since the choking incident at the end of may; scheduled for a PFT next week. Started on the Benicar today. I am also taking Cardizem and Metoprolol. 100 mg ...
