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Recommended

Arrhythmias

redhead4u777
  • By redhead4u777 · Posted October 8, 2009
  • Journal · 2 recommendations
  • In my mind I was planning out my day, mindlessly performing my pre-work morning rituals. Make my lunch-check. Iron my shirt-check. Wake up on the kitchen floor. What? Did I just faint again? On the way ...

On the Jericho Road - In Need of Prayers

Great-gram
  • By Great-gram · Posted August 10, 2009
  • Journal · 2 recommendations
  • Hi! Just asking all of you to pray for my husband. He took ill last night; we went to the doctor this morning - he sent us to the ER because his blood pressure is so low, (systolic went down to 60 while ...

Long QT and ADD

Nessa
  • By Nessa · Posted March 8, 2009
  • Discussion in Help desk · 2 recommendations
  • Anyone have ADD with long QT? Need more info onit. Son has it Drs say no meds are safe to take ...

Our 13 year old girl passed away from a cardiac event

tdhssp
  • By tdhssp · Posted January 1, 2009
  • Journal · 2 recommendations
  • Our little girl passed away in December 2006 from a cardiac event at the age of 13 years. Samantha had a rare chromosome disorder and a bicuspid aortic valve, however, no other similarly diagnosed persons ...

Tetrasomy 18p: "Samantha's Syndrome"

tdhssp
  • By tdhssp · Posted November 28, 2008
  • Journal · 2 recommendations
  • In loving dedication to our beautiful ^j^ daughter, Samantha, a place for persons with all disabilities to gather and learn from each other: Rare chromosome issues such as Tetrasomy 18p, Autism and more ...

Irregular Heart Beats

JWNugent
  • By JWNugent · Posted September 22, 2008
  • Journal · 2 recommendations
  • They never have determined what was going on with me. I started passing out. They checked and were supposed to put me on a heart monitor for a week but didn't have the equipment available. I started timing ...

Happy Mother's Day!

junimead
  • By junimead · Posted May 11, 2008
  • Journal · 2 recommendations
  • This one is a gift. I never thought that I'd be here on this site, let alone here with an ICD and a syndrome that is still so unheard of that most doctors don't know of it. Today is my gift...and so is ...

VT ablation

fireryan
  • By fireryan · Posted April 28, 2008
  • Discussion in Building awareness · 2 recommendations
  • I just got back yesterday from my ablation from Boston, MA. The procedure that was performed on 4/25/08 was not viewed by my specialists down in Miami as very promising, however it was worth a shot. They ...

wish i had denial back

Jamesrochelle
  • By Jamesrochelle · Posted November 5, 2009
  • Discussion in Building awareness · 1 recommendation
  • Until this week I had been going along in what I refer now to as denial. My SCA happened in July and within a week I had an ICD. It all happened so fast and without warning. I had a dream last night and ...

ICD, LQT, low potassium

edmar
  • By edmar · Posted November 3, 2009
  • Journal · 1 recommendation
  • I'm a SCA survivor, and i'm lucky to be alive again. I fainted, April 23, 2009, the reason i was rushed to the hospital. I was admitted for 12 days, and after a series of tests and investigation, my doctor ...

28years old 66 shocks in 2 days

lester
  • By lester · Posted October 13, 2009
  • Journal · 1 recommendation
  • Hi Everyone I'm just going to start from the begining. On March 7 I was out for dinner ,I stood up and fainted. Taken to our little hospital and they sent me home. I kept having episodes so they finally ...

Ventricular Tachycardia

lyssies13_mom
  • By lyssies13_mom · Posted October 11, 2009
  • Discussion in Help desk · 1 recommendation
  • I have a 13yr old daughter who has been diagnosed with nonsustained Ventricular Tachycardia...I am looking for anyone who can give me any helpful information about this...she has had many tests (stress ...

ummm...my chest is beeping....

mery
  • By mery · Posted August 29, 2009
  • Journal · 1 recommendation
  • Ok, so I get up this morning and I'm sitting in the bathroom, just sitting, yawning and what not, ya know the regular morning bathroom stuff....and I'm hearing this beeping. So I look all around like ...

V tach and V fib with cardiac sarcoidosis?

mamayama
  • By mamayama · Posted August 24, 2009
  • Journal · 1 recommendation
  • Just checking to see if there's anyone out there experiencing arrythmias vtach and v fib due to scarring from the sarcoidosis? Really need to connect as iam very scared, hoping our lord will give me strength ...

Age Activated Attention Deficit Disorder..it has a name??

eviefor3
  • By eviefor3 · Posted June 29, 2009
  • Journal · 1 recommendation
  • finally........a name for what so many of us go through every day. now i have a LEGITIMATE excuse for what i do lol A. A. A. D. D.: Age Activated Attention Deficit Disorder. This is how it manifests ...

Heart Palps. and Allergy Meds

JulesAN
  • By JulesAN · Posted June 12, 2009
  • Journal · 1 recommendation
  • If anyone has any advice on this I would greatly appreciate it! I have allergies and at times get horrible sinus headaches. I also have a heart condition in which I get palpitations. The problem is… I ...

Life with Long QT after age 40

LQT2Wendy
  • By LQT2Wendy · Posted March 4, 2009
  • Discussion in Help desk · 1 recommendation
  • Hello Help Desk! I see that there is a topic/discussoin area for Teens wiht Long QT ....... Can there be a section for survivors/patients of Long QT who are OVER THE AGE OF 40 (faaaaar form being teenagers ...

Medic Alert Tags - Wording

LQT2Wendy
  • By LQT2Wendy · Posted February 14, 2009
  • Discussion in Health insurance experiences · 1 recommendation
  • Hello everyone! Do you wear a medic alert tag? What does it say? (I'm trying to make a new one and it is too wordy) Thank you! ~ Wendy ...

Atrial Fibrillation, Palpitations

jareeves4581
  • By jareeves4581 · Posted December 30, 2008
  • Discussion in Building awareness · 1 recommendation
  • My story is kind of long so I will try and make it short and stick to the major points. I am a 27 yr old male that has been battling the thought of heart disease for quite sometime now. When I was 18 ...

Continuing problems with VA Health-care

b52gflyer
  • By b52gflyer · Posted November 13, 2008
  • Discussion in Health insurance experiences · 1 recommendation
  • I am a 100% disabled veteran. I left the service long before the Gulf Wars. For the last 7 years I have at Arrhythmia attacks. At least that is what the VA Cardio Clinic told me. A new doctor came in ...

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