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Active

SO excited to share what I have found!

pwrsrg77
  • By pwrsrg77 · New reply yesterday at 2:14 pm
  • Journal · 42 replies
  • I have received TONS of wonderful support from this amazing community of people just like myself. All that struggle with debilitating symptoms, wrong diagnosis, less than quality doctors etc... I wish ...

Pediatric Electrophysiologist - Who is the best?

Jennifer11
  • By Jennifer11 · New reply November 20, 2009
  • Discussion in Clinical and scientific research · 9 replies
  • We're seeing at Pediatric Electrophysiologist at Children's Hospital in Seattle. We want a 2nd opinion. Does anyone know how we'd go about finding out who is considered to be the best in the country in ...

WOULD LIKE TO TALK WITH SOMEONE WHO HAS ARVD

stibbetts
  • By stibbetts · New reply November 19, 2009
  • Discussion in Building awareness · 4 replies
  • I was hoping to meet other people who have this disease. please email me, thanks stacy ...

Arrhythmias

redhead4u777
  • By redhead4u777 · New reply November 18, 2009
  • Journal · 11 replies
  • In my mind I was planning out my day, mindlessly performing my pre-work morning rituals. Make my lunch-check. Iron my shirt-check. Wake up on the kitchen floor. What? Did I just faint again? On the way ...

Diagnosed with CPVT aged 9

latteda
  • By latteda · New reply November 18, 2009
  • Discussion in Help desk · 4 replies
  • I would be intersted to hear how common it is for people this age diagnosed with cpvt to get the ICD as our doctor is putting it off for the time being due to our sons age. Any help out there? Sarah ...

LGT Syndrome and WPW

samanthamr
  • By samanthamr · New reply November 14, 2009
  • Discussion in Building awareness · 3 replies
  • Our daughter is a little over 3 months and what a 3 months it has been. We had an emergency c-section due to fluid in the abdomen, she had high direct jaundice, was treated for gall bladder blockage and ...

ICD, LQT, low potassium

edmar
  • By edmar · New reply November 14, 2009
  • Journal · 6 replies
  • I'm a SCA survivor, and i'm lucky to be alive again. I fainted, April 23, 2009, the reason i was rushed to the hospital. I was admitted for 12 days, and after a series of tests and investigation, my doctor ...

Somebody PLEASE HELP!!! ={

pwrsrg77
  • By pwrsrg77 · New reply November 13, 2009
  • Journal · 83 replies
  • Well, I'm now 2 years into a disease that is sucking the life out of me. If I had a nickel for every time I've balled my eyes out & said my famous quote "I can't take this anymore" I'd be a very rich ...

My little Dakota

daffygirl90
  • By daffygirl90 · Posted November 13, 2009
  • Journal · 0 replies
  • Dakota was born Jan 28 2009 in Elizabethtown Kentucky. He weighted 6 pounds and 13 1/2 ounces and was 19 1/2 inches. He was born with Wolff Parkinson White Sydrome. He was in Kosairs Childrens Hospital ...

wild ride

danhartman1959
  • By danhartman1959 · New reply November 10, 2009
  • Journal · 1 reply
  • it has been a hard summer for this guy , if you have an icd youl get this on the 4th july i had a 12 shock storm and the ride started frist a ablation , for afib then turnn off the defib cause ef was ...

Travelling on the King's Highway - one step at a time!

Great-gram
  • By Great-gram · New reply November 9, 2009
  • Journal · 1 reply
  • Hi Everybody! I haven't posted or written any journals because life has gotten pretty hectic. Our grand-daughter just turned 19 - we kept it simple and still she was happy, because it was our day off ...

wish i had denial back

Jamesrochelle
  • By Jamesrochelle · New reply November 9, 2009
  • Discussion in Building awareness · 3 replies
  • Until this week I had been going along in what I refer now to as denial. My SCA happened in July and within a week I had an ICD. It all happened so fast and without warning. I had a dream last night and ...

Applying for Disability

ConnieB
  • By ConnieB · New reply November 8, 2009
  • Journal · 24 replies
  • I live in Virginia I will 60 years old in Aug., I had a heart attack 5 years ago, I had a stent placed. Last year I had a difibillator implanted. I was layed off of my job in February, so I am not working ...

About Me

jaybee601
  • By jaybee601 · Posted November 8, 2009
  • Journal · 0 replies
  • 69 yrs male from India,happily married for 43 yrs,with two sons and a grand son.I am an Engineer turned Executive retired.Had rheumatic fever at 12.At 53 breathing problem,CABG,Aortic+Mitral heart valves ...

First time to reflect

RobbieT
  • By RobbieT · New reply November 6, 2009
  • Journal · 8 replies
  • I have had a crazy last few weeks.....months.....years. My wife collapsed and died suddenly 5th October 2000 while warming up to play basketball at age 38. The coroner put this down to "sudden unexplained ...

Hydroxychloroquine - Increased Pulse Rate

Elderly_Gentleman
  • By Elderly_Gentleman · Posted November 5, 2009
  • Discussion in Tales of the heart memorials and tributes · 0 replies
  • I have had palpatation issues for the last 20 years. Normaly about once a month my pulse rate doubles to about 150 and the experience lasts for approximatly 1 minute then the rate goes goes back to normal ...

CPVT

jdm111
  • By jdm111 · New reply November 5, 2009
  • Discussion in Building awareness · 3 replies
  • Hi Everyone....found this board through Google...been a tough 30 days or so...the short story is I found my 6 year old on the garage floor after he went to get his school bag after dinner....went through ...

Mad and thankful at the same time

sacarver
  • By sacarver · New reply November 5, 2009
  • Journal · 7 replies
  • I first have to say I am so thankful I don't have to have a Jtube like a lot of people on here. Was supposed to have one placed 3 years ago, but because of blood clotting reasons, I was not a candidate ...

Inspire members featured

Brian
  • By Brian · New reply November 4, 2009
  • Journal · 29 replies
  • Today Massachusetts General Hospital's Proto Magazine published a wonderful profile of nine Inspire members. Each of these stories underscores what we all know to be true -- that Inspire is a special ...

disease

baloney
  • By baloney · Posted November 4, 2009
  • Journal · 0 replies
  • Sounds like you may have psoriatic arthritis . it ishard to diagnose . I have it . It also sounds like you have rheumatioid arthritis along with it . psoriatic arthritis is an autoimmune disease and is ...

Group leaders

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