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Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
How - Joining Inspire is completely free and usually takes less than a minute. Join now!
Active
About Me
- By jaybee601 · Posted 1:03 am
- Journal · 0 replies
- 69 yrs male from India,happily married for 43 yrs,with two sons and a grand son.I am an Engineer turned Executive retired.Had rheumatic fever at 12.At 53 breathing problem,CABG,Aortic+Mitral heart valves ...
ICD, LQT, low potassium
- By edmar · New reply yesterday at 11:44 pm
- Journal · 1 reply
- I'm a SCA survivor, and i'm lucky to be alive again. I fainted, April 23, 2009, the reason i was rushed to the hospital. I was admitted for 12 days, and after a series of tests and investigation, my doctor ...
Somebody PLEASE HELP!!! ={
- By pwrsrg77 · New reply yesterday at 10:54 am
- Journal · 81 replies
- Well, I'm now 2 years into a disease that is sucking the life out of me. If I had a nickel for every time I've balled my eyes out & said my famous quote "I can't take this anymore" I'd be a very rich ...
First time to reflect
- By RobbieT · New reply November 6, 2009
- Journal · 8 replies
- I have had a crazy last few weeks.....months.....years. My wife collapsed and died suddenly 5th October 2000 while warming up to play basketball at age 38. The coroner put this down to "sudden unexplained ...
wild ride
- By danhartman1959 · Posted November 6, 2009
- Journal · 0 replies
- it has been a hard summer for this guy , if you have an icd youl get this on the 4th july i had a 12 shock storm and the ride started frist a ablation , for afib then turnn off the defib cause ef was ...
SO excited to share what I have found!
- By pwrsrg77 · New reply November 6, 2009
- Journal · 15 replies
- I have received TONS of wonderful support from this amazing community of people just like myself. All that struggle with debilitating symptoms, wrong diagnosis, less than quality doctors etc... I wish ...
wish i had denial back
- By Jamesrochelle · New reply November 6, 2009
- Discussion in Building awareness · 1 reply
- Until this week I had been going along in what I refer now to as denial. My SCA happened in July and within a week I had an ICD. It all happened so fast and without warning. I had a dream last night and ...
Diagnosed with CPVT aged 9
Hydroxychloroquine - Increased Pulse Rate
- By Elderly_Gentleman · Posted November 5, 2009
- Discussion in Tales of the heart memorials and tributes · 0 replies
- I have had palpatation issues for the last 20 years. Normaly about once a month my pulse rate doubles to about 150 and the experience lasts for approximatly 1 minute then the rate goes goes back to normal ...
CPVT
- By jdm111 · New reply November 5, 2009
- Discussion in Building awareness · 3 replies
- Hi Everyone....found this board through Google...been a tough 30 days or so...the short story is I found my 6 year old on the garage floor after he went to get his school bag after dinner....went through ...
Hello
Mad and thankful at the same time
- By sacarver · New reply November 5, 2009
- Journal · 7 replies
- I first have to say I am so thankful I don't have to have a Jtube like a lot of people on here. Was supposed to have one placed 3 years ago, but because of blood clotting reasons, I was not a candidate ...
Inspire members featured
- By Brian · New reply November 4, 2009
- Journal · 29 replies
- Today Massachusetts General Hospital's Proto Magazine published a wonderful profile of nine Inspire members. Each of these stories underscores what we all know to be true -- that Inspire is a special ...
disease
- By baloney · Posted November 4, 2009
- Journal · 0 replies
- Sounds like you may have psoriatic arthritis . it ishard to diagnose . I have it . It also sounds like you have rheumatioid arthritis along with it . psoriatic arthritis is an autoimmune disease and is ...
Applying for Disability
- By ConnieB · New reply November 4, 2009
- Journal · 23 replies
- I live in Virginia I will 60 years old in Aug., I had a heart attack 5 years ago, I had a stent placed. Last year I had a difibillator implanted. I was layed off of my job in February, so I am not working ...
How long does Billy have with an ef of 29??
- By sophianbilly · New reply November 3, 2009
- Journal · 10 replies
- his defib/pacemaker was implanted in June 2009 when he was still at UCH after a chronic heart happened on April 2009......He had anoxia to his brain and heart which is why they waited soooo long....He ...
Cost of ICD's
- By Twndd · New reply October 30, 2009
- Journal · 35 replies
- Hi all, I am curious as to how much your ICD has cost you. If your insurance picked up some of the cost and if you had a large balance. I just read that it could cost $45,000. WOW!! I know my life is ...
ICD implanted
- By KierasMom · New reply October 28, 2009
- Discussion in Building awareness · 16 replies
- I was wondering if anyone else has had a ICD implanted? And their experience... I was told in March I'm "suspiscious" of having Long QT Syndrome, once my 2 year old was confirmed with it. They did the ...
the diagnosis is in
- By BrookesMom · Posted October 27, 2009
- Discussion in Help desk · 0 replies
- Well, Brooke went to see the pediatric cardiologist today and she felt that she does not have LQT. Her opinion was that Brooke's sodium is slightly low, still in the normal range but on the low side and ...
ICD
- By sliderjmt · New reply October 26, 2009
- Journal · 10 replies
- Hi, I had a ICD put in in July of this year..Well that still did not resolve my problem of VT..So then I had to have a procedure called Ablation done.Well after the first one I was still having 600 episodes ...
