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Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
How - Joining Inspire is completely free and usually takes less than a minute. Join now!
New
wild ride
- By danhartman1959 · Posted yesterday at 7:42 pm
- Journal · 0 replies
- it has been a hard summer for this guy , if you have an icd youl get this on the 4th july i had a 12 shock storm and the ride started frist a ablation , for afib then turnn off the defib cause ef was ...
Hydroxychloroquine - Increased Pulse Rate
- By Elderly_Gentleman · Posted November 5, 2009
- Discussion in Tales of the heart memorials and tributes · 0 replies
- I have had palpatation issues for the last 20 years. Normaly about once a month my pulse rate doubles to about 150 and the experience lasts for approximatly 1 minute then the rate goes goes back to normal ...
Hello
wish i had denial back
- By Jamesrochelle · Posted November 5, 2009
- Discussion in Building awareness · 1 reply
- Until this week I had been going along in what I refer now to as denial. My SCA happened in July and within a week I had an ICD. It all happened so fast and without warning. I had a dream last night and ...
SO excited to share what I have found!
- By pwrsrg77 · Posted November 4, 2009
- Journal · 15 replies
- I have received TONS of wonderful support from this amazing community of people just like myself. All that struggle with debilitating symptoms, wrong diagnosis, less than quality doctors etc... I wish ...
disease
- By baloney · Posted November 4, 2009
- Journal · 0 replies
- Sounds like you may have psoriatic arthritis . it ishard to diagnose . I have it . It also sounds like you have rheumatioid arthritis along with it . psoriatic arthritis is an autoimmune disease and is ...
Mad and thankful at the same time
- By sacarver · Posted November 3, 2009
- Journal · 7 replies
- I first have to say I am so thankful I don't have to have a Jtube like a lot of people on here. Was supposed to have one placed 3 years ago, but because of blood clotting reasons, I was not a candidate ...
CPVT
- By jdm111 · Posted November 3, 2009
- Discussion in Building awareness · 3 replies
- Hi Everyone....found this board through Google...been a tough 30 days or so...the short story is I found my 6 year old on the garage floor after he went to get his school bag after dinner....went through ...
ICD, LQT, low potassium
- By edmar · Posted November 3, 2009
- Journal · 0 replies
- I'm a SCA survivor, and i'm lucky to be alive again. I fainted, April 23, 2009, the reason i was rushed to the hospital. I was admitted for 12 days, and after a series of tests and investigation, my doctor ...
How long does Billy have with an ef of 29??
- By sophianbilly · Posted October 31, 2009
- Journal · 10 replies
- his defib/pacemaker was implanted in June 2009 when he was still at UCH after a chronic heart happened on April 2009......He had anoxia to his brain and heart which is why they waited soooo long....He ...
Somebody PLEASE HELP!!! ={
- By pwrsrg77 · Posted October 29, 2009
- Journal · 81 replies
- Well, I'm now 2 years into a disease that is sucking the life out of me. If I had a nickel for every time I've balled my eyes out & said my famous quote "I can't take this anymore" I'd be a very rich ...
Inspire members featured
- By Brian · Posted October 28, 2009
- Journal · 29 replies
- Today Massachusetts General Hospital's Proto Magazine published a wonderful profile of nine Inspire members. Each of these stories underscores what we all know to be true -- that Inspire is a special ...
the diagnosis is in
- By BrookesMom · Posted October 27, 2009
- Discussion in Help desk · 0 replies
- Well, Brooke went to see the pediatric cardiologist today and she felt that she does not have LQT. Her opinion was that Brooke's sodium is slightly low, still in the normal range but on the low side and ...
Out of breath
- By careh · Posted October 25, 2009
- Journal · 2 replies
- I am SO short of breath today! I couldn't even make it through a line in the hymns at church without feeling out of breath, and everything I do today makes me SOB. I also feel a little dizzy at times ...
Never thought I'd get this news...
- By Brianne · Posted October 24, 2009
- Journal · 16 replies
- I got AMAZING news today!!!! I had another echocardiogram this week. It's been over 2 years since my cardiac arrest and diagnosis with: long qt, idiopathic nonischemic dilated cardiomyopathy with an ejection ...
Cost of ICD's
- By Twndd · Posted October 23, 2009
- Journal · 35 replies
- Hi all, I am curious as to how much your ICD has cost you. If your insurance picked up some of the cost and if you had a large balance. I just read that it could cost $45,000. WOW!! I know my life is ...
Sinking and Scared
- By WandaJ · Posted October 21, 2009
- Journal · 9 replies
- Yesterday I made an incredibly difficult and scary decision: to take a leave of absence so I can heal after the roller-coaster ride of the past year. A difficult decision for several reasons: I am a woman ...
LQT question for everyone
- By bortner · Posted October 18, 2009
- Discussion in Building awareness · 1 reply
- i am 24 years old and have known i had LQTS for quite some time. i was diagnosed by ekg in 1987 when i was 2. i was put on betas and have been taking them ever since. but, a week after i had my son (last ...
What is a normal QTc in a child?
- By BrookesMom · Posted October 16, 2009
- Discussion in Help desk · 5 replies
- I've looked and looked, scoured the internet but I really am not finding much on what is considered a normal QTc in an 11-year-old girl. Do the values differ for children versus adults? My 11-year-old ...
Long QTc - possible new diagnosis
- By BrookesMom · Posted October 15, 2009
- Discussion in Help desk · 9 replies
- My 11-year-old daughter was being worked up for dizzy and lightheaded spells during and after sports, when she got overheated and even sometimes just when out shopping. She had one episode during class ...
