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Active discussions
wish i had denial back
- By Jamesrochelle · New reply yesterday at 11:35 am
- In Building awareness · 1 reply
- Until this week I had been going along in what I refer now to as denial. My SCA happened in July and within a week I had an ICD. It all happened so fast and without warning. I had a dream last night and ...
Diagnosed with CPVT aged 9
Hydroxychloroquine - Increased Pulse Rate
- By Elderly_Gentleman · Posted November 5, 2009
- In Tales of the heart memorials and tributes · 0 replies
- I have had palpatation issues for the last 20 years. Normaly about once a month my pulse rate doubles to about 150 and the experience lasts for approximatly 1 minute then the rate goes goes back to normal ...
CPVT
- By jdm111 · New reply November 5, 2009
- In Building awareness · 3 replies
- Hi Everyone....found this board through Google...been a tough 30 days or so...the short story is I found my 6 year old on the garage floor after he went to get his school bag after dinner....went through ...
Hello
ICD implanted
- By KierasMom · New reply October 28, 2009
- In Building awareness · 16 replies
- I was wondering if anyone else has had a ICD implanted? And their experience... I was told in March I'm "suspiscious" of having Long QT Syndrome, once my 2 year old was confirmed with it. They did the ...
the diagnosis is in
- By BrookesMom · Posted October 27, 2009
- In Help desk · 0 replies
- Well, Brooke went to see the pediatric cardiologist today and she felt that she does not have LQT. Her opinion was that Brooke's sodium is slightly low, still in the normal range but on the low side and ...
Ventricular Tachycardia
- By lyssies13_mom · New reply October 21, 2009
- In Help desk · 7 replies
- I have a 13yr old daughter who has been diagnosed with nonsustained Ventricular Tachycardia...I am looking for anyone who can give me any helpful information about this...she has had many tests (stress ...
What is a normal QTc in a child?
- By BrookesMom · New reply October 20, 2009
- In Help desk · 5 replies
- I've looked and looked, scoured the internet but I really am not finding much on what is considered a normal QTc in an 11-year-old girl. Do the values differ for children versus adults? My 11-year-old ...
LQT question for everyone
- By bortner · New reply October 19, 2009
- In Building awareness · 1 reply
- i am 24 years old and have known i had LQTS for quite some time. i was diagnosed by ekg in 1987 when i was 2. i was put on betas and have been taking them ever since. but, a week after i had my son (last ...
Beta Blockers
- By tones005 · New reply October 18, 2009
- In Building awareness · 10 replies
- Hi All, Last tuesday I was diagnosed with LQTS. I'm not sure which number I have at this stage but was curious. As the specialist gave me a prescription for Beta Blockers Metoprolol (I think its called ...
Long QTc - possible new diagnosis
- By BrookesMom · New reply October 18, 2009
- In Help desk · 9 replies
- My 11-year-old daughter was being worked up for dizzy and lightheaded spells during and after sports, when she got overheated and even sometimes just when out shopping. She had one episode during class ...
CPVT
- By cgphall · New reply October 14, 2009
- In Building awareness · 15 replies
- My daughter (aged 7) has just been diagnosed with CPVT. I would like to speak to anyone who has experience of the condition, so that I can learn more about it and to understand what limitations I need ...
living
- By msplace · New reply October 14, 2009
- In Tales of the heart memorials and tributes · 1 reply
- Hello to all, At 19 my first son died, At 22 I lost 8 pts of blood with my second son , At 26 I broke my neck in a car reck , at 28 I had a blood clot in my right leg for 18 months and turned upside down ...
Innaproprate sinus Tachardia
- By Tuffy · New reply October 7, 2009
- In Clinical and scientific research · 3 replies
- I found on the NIH website that for anyone with IST they are doing research.(only until 2010) I have called. The doctor did call me back and we have set up an appointment for this saturday to talk about ...
No history diagnosis
- By satyampana · New reply October 3, 2009
- In Building awareness · 12 replies
- Do you know of anyone who has been diagnosed without a family history or "event"? My daughter just happened to get a long qt picked up on an EKG when she was being treated for Leukemia. It has taken 2 ...
LQT Numbers- What do they mean?
- By CuriousDee · New reply October 3, 2009
- In Building awareness · 4 replies
- I keep hearing about LQT numbers and that they influence diagonsis or treatment. My own numbers range from a low of 396 to 488, with a third test showing 483. Now people are throwing out things like Genetic ...
hi
- By cazza1961 · New reply October 2, 2009
- In Building awareness · 21 replies
- hi I am new to this site but I have has tachycardia for years and years, though it is getting more frequent. My heart goes fast but I dont feel sick or anything so I have been told to live with it. But ...
long qt's and antidepressants
- By weillfan · New reply September 30, 2009
- In Clinical and scientific research · 2 replies
- Lots of stuff out there about long QT's and various antidepressants. I am currently trying to figure out meds to alleviate this interaction. Others have ideas ...
what to eat if you have long qt syndrome
- By Pebs_Bonnie · New reply September 25, 2009
- In Building awareness · 18 replies
- I have had Long qt syndrome for a year now and wondered if you have to watch what you eat. I love eating eggs, macaronni, fish, rice and beginning to eat spicy turkish foods mainly. Can anyone help me ...
