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Discussions

any experiences with tacy brady syndrome

DaytonaKaren
  • By DaytonaKaren · Posted yesterday at 9:13 pm
  • In Building awareness · 0 replies
  • I have been dealing with cardiomyopathy as it relates to tachycardia and my icd for 3 years. In May I have a tachy episode 315 bpm, defibrillator saved me. Since then I felt awful. Even less energy than ...

My son, Mike...sudden death at age 23

azjh16
  • By azjh16 · Posted July 1, 2009
  • In Tales of the heart memorials and tributes · 3 replies
  • I am new to this site, but my son died in his sleep 2 years ago at age 23. A healthy, athletic young man with no previous health or heart issues. After months of testing, the M.E. declared his cause of ...

NEW questions after cardiac arrest - lqt

Tch4fn
  • By Tch4fn · Posted June 13, 2009
  • In Building awareness · 2 replies
  • Hello new friends, On April 4th at 4:00 a.m. I went into full cardiac arrest. My wonderful husband began CPR and saved my life. I was rushed to the ER and then flown to a bigger hospital in Birmingham ...

How many Ablations can one heart take?

Tuffy
  • By Tuffy · Posted June 13, 2009
  • In Building awareness · 7 replies
  • Hi, I have been through 3 heart ablations for my IST. The last ablation lasted for almost a year and a half. I am having symptoms now, I am stuck with the issue of going back on heart MEDICATIONS {which ...

Questions about Long QT

mrsbrightside
  • By mrsbrightside · Posted June 8, 2009
  • In Building awareness · 8 replies
  • Hi everyone I'm new to this site and am really just looking for some info. I've read about long qt syndrome and how many people can just collapse and even die. The thought of this sends me into a panic ...

CPVT Anyone?

TRcyclist
  • By TRcyclist · Posted May 27, 2009
  • In Building awareness · 1 reply
  • I would like to hear from anyone who has suspected or confirmed CPVT. What are your symptoms? How was your CPVT diagnosed? What is your treatment plan? I have symptoms of both CPVT and LQT, and would ...

surgery for inappropriate sinus tachycardia

mereiriz
  • By mereiriz · Posted April 25, 2009
  • In Help desk · 1 reply
  • 10 years ago I was diagnosed with Wolff-Parkinson-White Syndrome. After trying many meds I decided to go for an ablation for my accessory pathway. At that time I required 3 of them but they solved my ...

Will I know in advance when my ICD will fire?

Mazdathree
  • By Mazdathree · Posted April 24, 2009
  • In Building awareness · 12 replies
  • My ICD was placed on 01/13/09 so I am new to all of this. Although I have been told an ICD firing feels "like a kick in the chest", I was wondering what others have experienced? Because I do some travel ...

Update...on my PVC's

Taterbug
  • By Taterbug · Posted April 23, 2009
  • In Tales of the heart memorials and tributes · 5 replies
  • Hello all, I had to get on here today to tell you this. Quick overview first: 6-7 months ago I started having terrible chest pains with multiple PVC's. Was in the ER several times. They insisted that ...

Medication Concerns

Great-gram
  • By Great-gram · Posted April 20, 2009
  • In Building awareness · 0 replies
  • Hi! I'm diagnosed with heart disease/problems - some probably related to sarcoidosis - the cardiologist suspects that some is related. I was diagnosed with pulmonary sarcoid back in 2005, but probably ...

ATRIAL SEPTAL ANEURYSM

angelk
  • By angelk · Posted April 18, 2009
  • In Help desk · 0 replies
  • After having a Transesophegal ecocardiogram, which was not fun, I have just heard that there is a whole in my septum in the atrias with a aneurysm, extra skin with holes, and a like a sponge. Does anyone ...

Questions about multiple PVC's

Taterbug
  • By Taterbug · Posted March 23, 2009
  • In Help desk · 15 replies
  • I have been diagnosed with PVC's. My doc says they are nothing to worry about, they're "normal". Ok, ok...maybe they are normal. I have had all the tests and the latest test was a heart cath to make sure ...

Arrhythmia and Menopause

kbauhs
  • By kbauhs · Posted March 19, 2009
  • In Building awareness · 16 replies
  • My OB/GYN and I came to the conclusion that I am perimenopausal...and she indicated that this can cause heart palpitations, etc. I'm curious if anyone has experienced this. I have Long QT - and things ...

Virus-caused Arrythmia

Jushag
  • By Jushag · Posted March 19, 2009
  • In Tales of the heart memorials and tributes · 0 replies
  • New diagnosis from cardiologist 3 months out from initial cardiac arrest/defibrillator rescue = virus caused the damage to left bundle branch, which led to incorrect firing to left ventricle, which led ...

Does your ICD fire when your bpm get high or just when they get abnormal

tkidman
  • By tkidman · Posted March 15, 2009
  • In Building awareness · 12 replies
  • Hello all. A gentleman on this sight brought something to my attention that I need your input on. I told him I got shocked 5 times in a row from rushing for work one morning. Docs told me my ICD was set ...

SVt and Af {wwpw}

msplace
  • By msplace · Posted March 9, 2009
  • In Tales of the heart memorials and tributes · 0 replies
  • Hi. I am 56 yrs old and I had a small prob with fast heart when running as a chlid. A nurse give me a med about 12 yrs ago that sent me over the edge. Now I have bouts of SVT and AF all the time . I passout ...

ICD coiled wires coming uncoiled

Jushag
  • By Jushag · Posted March 9, 2009
  • In Help desk · 3 replies
  • My husband's ICD is two months old. A few days ago we noticed a bump above the ICD. Yesterday it is bigger and feels like a bundle of something. No swelling. No red color or anything. No pain. I'm wondering ...

Long QT and ADD

Nessa
  • By Nessa · Posted March 8, 2009
  • In Help desk · 20 replies
  • Anyone have ADD with long QT? Need more info onit. Son has it Drs say no meds are safe to take ...

Life with Long QT after age 40

LQT2Wendy
  • By LQT2Wendy · Posted March 4, 2009
  • In Help desk · 6 replies
  • Hello Help Desk! I see that there is a topic/discussoin area for Teens wiht Long QT ....... Can there be a section for survivors/patients of Long QT who are OVER THE AGE OF 40 (faaaaar form being teenagers ...

Atrial tachycardia

south127
  • By south127 · Posted March 3, 2009
  • In Building awareness · 17 replies
  • I have been on 150 mg (100mg in the am 50 in the pm) of Toprol XL since last October with no recurrence of arrhythmias. Then yesterday, one hour after my morning meds, my blood pressure started going ...

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