I have had VT since I was 17 years old. I have been back and forth in hospitals for the last 11 years. Ablation after ablation, medication after medication. Just when things seem to get better another episode knocks me down. I guess what i'm looking for from anyone is last September I had an epicardial ablation done in Philadelphia, PA by Dr. Frank Marchlinski. He deemed it a success and said I should be able to live a normal, active life with no restraints. To be honest the 1st six months where great. I had very very little pvc's and no runs of VT. I truly felt I was on my way. Over the years my exercising has been delayed and weight had built up, so now that I was feeling great I felt I needed to get back to my old selve. Then the walls came down. My heart started having pvc's like crazy. I ended up having VT in MArch and hospitalized. and since then it has been a constent struggle dealing with it. I had another episode while doing laundry. I went to the hospital again. I had a stress test down which didn't induce anything and my echo confirmed my reight ventricle to be enlarged further proving that they are 80% sure I have ARVD instead of just VT. I am currently taking toporol xl, sotolal, lisinprol, potassium, magnesium, rantinidine, water pill, a potassium pill to prevent potassium loss and zyrtec for allegeries. I also have xanax and ambien for sleep issues! He wants me to get tested for the genetics. I just want anyone who has experienced this to let me know what to expect.




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