10 years ago I was diagnosed with Wolff-Parkinson-White Syndrome. After trying many meds I decided to go for an ablation for my accessory pathway. At that time I required 3 of them but they solved my WPW. It appears that in one of the procedures the doctor ablated some fibers of the vagus nerve (which decreases heart rate) and since then I've been suffering from Inappropriate Sinus Tachycardia. I already had 2 Sinus Node Modifications but the doctors haven't been able to decrease my rate because of the proximity of my phrenic nerve. They say that if they burn there I would end up with paralysis of the diaphragm. On last April, I had a pacemaker implanted in anticipation of a Total Sinus Node Ablation, but it has been impossible to do it. I've seen 11 specialists already and been treated in different states. I'm from Puerto Rico and I've been traveling to the United States looking for the solution to this problem. My last EP doctor suggested doing a combined procedure with a cardiothoracic surgeon. She says that maybe the best approach is to do endocardial, epicardial and surgical ablation. The surgeon told me he would open the chest between the ribs, deflate a lung and then provoke scars over my heart to decrease impulses. I'm a little bit confused because I don't know anybody with this situation and don't know if it is the best choice. Have anyone heard about this? Do you know anyone who had this surgery? Any help would be really appreciated. I'm in my first year of Med School and this is really complicating my life. Please. help.
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surgery for inappropriate sinus tachycardia
1 reply
- By Tuffy
- Posted May 27, 2009 at 1:29 pm
- Report post
HI,
Boy, we have the SAME thing.. In Salt Lake City Utah. there is a doctor Kline. he was able to ablate around my phrenic nerve, iv'e had a modifaction. and a pacemaker implanted. it took 7 hours for him to do the ablation. look up University of Utah and see if you can get in to see him. I've seen 5 different docs about mine. they all said the same thing, But here i am. my issue is that it has only lasted a year and a half. I hope that i am not too late in contacting you. before you make that drastic choice PLEASE CALL Dr. Kline. his # is 1-801-581-7715 I hope this helps. I understand how this affects your life and for what its worth I am sorry.. I hope that i have helped. good luck
i will pray for you
Tufffy
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