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I am new to this site, but my son died in his sleep 2 years ago at age 23. A healthy, athletic young man with no previous health or heart issues. After months of testing, the M.E. declared his cause of death as cardiac arrhythmia, but no other information as to why. No one in our family has had any tests done on their heart, but after ready information on this site, I think we should. Where do we start?
Arrhythmia Long QT syndrome Pain Sudden cardiac arrest Seizures Stress
I am so sorry - such a tragic loss for you and your family.
I would advise you to see an electrophysiologist (a cardiologist specialising in arrhythmias) who will look at your family history and do the necessary tests.
First, like Anne, definitely see a electrophysiologist or a cardiologist who specializes in electrophysiology. Some of the tests would be an ekg, stress tests, holter monitoring and genetic testing if the other heart tests are positive for a heart condition.
Sorry about your son. I am 22 now, but was 14 when I was diagnosed with my long qt syndrome. Fortunately for me, my symptoms were seizures and chest pain during and after running.
Wishing you hope and success.
Two concerns, long QT or hypertrophic cardiomyopathy(HCM). A competent cardiologist can check for both. HCM has a website. My heart goes out to you.
I am sorry to hear of the death of your son. He may have had an arrthymia . You may want to consider genetic testing . THins such as wolff parkinson white and long qt syndrome can be passed down genetically and do not always show on ekg's especially if he had wpw with a concealed pathway . Its usually not found on autopsy either. these are usually a dominant gene and one parent or grandpareny unknowingly has the disease themslves .
Greetings! My heart goes out to you! It's good to follow up with genetic testing. God bless and bring you peace in the midst of your storm! Great-gram
So so sorry for your loss. My kids 2 of the 3 were diganosed 14 years ago. We had a very distant cousin age 9 suddenly pass away in his sleep, Uncle is a Dr he told everyone in family to be tested, I don"t have it or brother but my 2 and others in family were found to have it. EKG didn"t show it so you need more then that test. They had stress test show it, holter monitor showed it and were admitted. They are on beta blocker, well one is the other was just told might now not have it so she is having genetic test done to see it she now does not have it. I am not happy with her taking herself off meds because of Dr saying this, she is 29.
So sorry...
I, too, feel intensely your loss similarly as our only daughter succumbed to sudden cardiac arrest in December 2006 at the age of 13-1/2 years of age.
Physicians encouraged my husband and I and our sons to undergo intense cardiac examination. Thankfully, each of us received a clear record of health. I would definitely pursue this venue, if only for some peace of mind that you have done all that you can to avert further tragedy.
God Bless,
Velvet
Mom of Samantha ^j^
Administrator for Tetrasomy 18p Canada
http://www.tetrasomy18p.ca/
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