Our daughter is a little over 3 months and what a 3 months it has been. We had an emergency c-section due to fluid in the abdomen, she had high direct jaundice, was treated for gall bladder blockage and liver problems (phenobarbital and actecol) and then had her first SVT at 300 beats per min. for over 6 hours. We were transported to All Children's where they diagnosed her with WPW. Things had been going good but now our electrophysiologist is talking about prolonged QT syndrome. My husband and I have both been tested and have normal EKG. She is on amiodarone and has been since about 10 days of birth. Fortunately she is on propanonal for WPW so our doc seems pretty calm. In 2 months they will take her off the amiodarone and then once it is out of her system see how her EKG is at that time. Possibly do genetic testing.
Just looking for similar stories or suggestions.
Thanks.
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LGT Syndrome and WPW
- By samanthamr
- Posted August 6, 2008 at 6:15 pm · 1 reply
- In Building awareness
- Shared with the public
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- By angelgia
- Posted January 26, 2009 at 4:49 pm
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My son was a month old when he was sent to Arkansas Childrens Hospital for meningitis. When he arrived his heart beat was 316 bpm. We were there for 8 days, after all other beta blockers failed, they used flecinide, we have been svt free since, I think. I have not caught any, or seen any warning signs of it. It is very scary to me because I am afraid I will not catch one. I live in fear of this. The docs have advised what to look for, but I still feel worried. They did not diagnose him with wpw , they told me he was to small to say for sure. But my mom had wpw so I feel sure that is what he must have. I will be having my other 2 children tested soon. I pray they are healthy. I had genetic testing done before my first child was born and was told that WPW was not hereditary. But I don't think they know everything . Angel
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