Our daughter is a little over 3 months and what a 3 months it has been. We had an emergency c-section due to fluid in the abdomen, she had high direct jaundice, was treated for gall bladder blockage and liver problems (phenobarbital and actecol) and then had her first SVT at 300 beats per min. for over 6 hours. We were transported to All Children's where they diagnosed her with WPW. Things had been going good but now our electrophysiologist is talking about prolonged QT syndrome. My husband and I have both been tested and have normal EKG. She is on amiodarone and has been since about 10 days of birth. Fortunately she is on propanonal for WPW so our doc seems pretty calm. In 2 months they will take her off the amiodarone and then once it is out of her system see how her EKG is at that time. Possibly do genetic testing.
Just looking for similar stories or suggestions.
Thanks.
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LGT Syndrome and WPW
- By samanthamr
- Posted August 6, 2008 at 6:15 pm · 3 replies
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- By angelgia
- Posted January 26, 2009 at 4:49 pm
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My son was a month old when he was sent to Arkansas Childrens Hospital for meningitis. When he arrived his heart beat was 316 bpm. We were there for 8 days, after all other beta blockers failed, they used flecinide, we have been svt free since, I think. I have not caught any, or seen any warning signs of it. It is very scary to me because I am afraid I will not catch one. I live in fear of this. The docs have advised what to look for, but I still feel worried. They did not diagnose him with wpw , they told me he was to small to say for sure. But my mom had wpw so I feel sure that is what he must have. I will be having my other 2 children tested soon. I pray they are healthy. I had genetic testing done before my first child was born and was told that WPW was not hereditary. But I don't think they know everything . Angel
- By daffygirl90
- Posted November 13, 2009 at 8:41 am
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WPW is not hereditary. My 9 month old has it he was born Jan 28 2009 and we were in Kosair Childrens hospital from Feb 1 until Feb 27 2009. He has to have an ablation done because no meds were working but they did genetic testing. He had other problems among SVT why we were there he stopped breathing and was unconiuos for longer then he should of been. But his case of WPW was a little different. While I was pregnant with him he was having SVT they picked it up on the heart monitor when I went in to the hospital one night. They said that was very rare so before he was born I was aware of it and know what to watch for. We were at home after he was born when he went into SVT and we took him straight to the hospital his heart beat was way more then 300 at that time. But like I said WPW is not hereditary. I was told that by the cardiologist and also noone in my family or my sons daddys family has this nor has anyone ever heard of it before my little man was dianosed with it.
- By bortner
- Posted November 14, 2009 at 11:07 pm
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my son Jackson has LQTS and WPW. LQT is on my side of the family and his genetic test confirmed he has it also. everything i've read says WPW can be hereditary, but its rare. we were in and out of hospitals for the first 3 months of his life. finally a combination of propranolol and flecainide did the trick and he has been SVT free for a year now. he's 14 months old, and his EP is possibly going to drop the flecainide in about 4 more months (considering he has no more issues).
to daffygirl90 and angelgia:
what genetics tests did your doctors run? what is it they were looking for?
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