My name is Brittany. I was diagnosed with LQTS at 2 yrs old. My mother had me tested (by ECG in 1987) due to the fact she had been diagnosed and implanted with an ICD after going into cardiac arrest 6 weeks after I was born. In September of last year I had a pacemaker implanted one week after my son was born. When he was 3 weeks old, he was in congestive heart failure due to Wolff Parkinson White syndrome. A genetic test later confirmed that he also has LQTS. I am writing because I want to canvas for interest in a campaign that will encourage the medical community, in cooperation with insurance providers, to make ECG testing for newborns standardized. Does anyone know if such a campaign already exsists? If so, please inform me so that I may be of assistance to them. If not, then please consider the benefits of such a possibility. For relatively low costs, this simple procedure could save many families the heartache and struggle of losing their children. If ECGs for newborns were standard, then before mother and baby leave the hospital parents could be made aware of a number of potential problems identified by the ECG. In most of these cases the problems are completly treatable, if not curable! Please respond if you have any information for me or would be interested in pushing this forward.




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