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My OB/GYN and I came to the conclusion that I am perimenopausal...and she indicated that this can cause heart palpitations, etc. I'm curious if anyone has experienced this. I have Long QT - and things have been fairly well under control for 1.5 years. I'm just hoping that I don't have a new risk factor to worry about! :)
Exercise Arrhythmia Cancer Toprol XL Dizziness Surgery Hysterectomy GERD Seizures Paxil Anxiety Beta blockers Niacin Menopause Aortic aneurysm Stress
Hi,
I'm 44 and am per-menopausal too. I have been very irregular with often several months in between cycles.
I had an ICD implanted in January for LQTS and have been having hot flashes since. Not sure if the surgery triggered the hormonal change but it seems to have.
Some days the hot flashes are constant - every 15 minutes day and night - other days only a few. Along with these hot flashes I get a racing heart and palpitations.
I believe that hormonal changes are a problem for LQTS and I'm really happy that I have an ICD for backup right now.
Both my sister and I started fainting shortly after our periods started when we were kids.
There has to be a connection.
Hi, look to a nutritionalist. I had hot flashes and discovered that I needed adrenal support. Your Adrenals are part of the endocrine system. They do produce some of the hormones once you are in menpause. Also, think about your Thryoid. The thyroid helps control your weight and effects the heart and its' rythym
You might look up vitamin D3 and menopause.
See this article here:
http://www.womentowomen.com/nutritionandweightloss/vitamind.aspx
and the Vitamin D Council here:
http://www.vitamindcouncil.org/
I can not empasize to you more about the value
of Lipoproteins level in prevention of arrythmias.
Some of the partecipants in any of these forums are tellig us that they are taking Fish Oil(Per instruction
by their doctors).Why are they taking it?Because their
doctors told them so.(To avoid arrythmias).
How does it work?.Ask your doctor.
Other doctors suggest Soy Milk.How does it work?
Ask your doctor.
Some suggest Niacin.Again:Ask your doctor.
F.Y.I. The Lipid Profile change constantly,more so,
during the Menstrual Cycle.
There are sufficient publication in this matter.
I had a period at the beginning of January and haven't had another one since (they are usually every 3 weeks). Late in January I was diagnosed with atrial flutter and offerred and ablation. I checked the meds I was on and advair has the side effect of atrial flutter so I went off it. My Icd showed that I had been in flutter 3 times in the 2 weeks after going off the drug and then not again for the month between then and the interrogation. I am under a lot of stress right now but haven't noticed any flutter. I don't always feel flutter though. I think there may be a link. I wonder if I should go to my gynocologist? I'l be interrogated again in July - I think I will wait and see what turns up at that interrogation and then take action. Any comments?
You better check with your Cardiologist and/or
Electrophysiologists.
With all due respect,your Gynecologist is focus on
gynecologic problems such as missed cycle,etc,
Yes, I've had trouble with irregular hearbeats also, in about the last 5 years, where as before I didn't.
I also have LQTS.
I'm 59 now, and my 22 year old daughter died from longqt in her sleep. She was undiagnosed despite the fact she had seen two adult cardiologists for a history of fainting, "heart going crazy" during exercise, being found blue and having "seizures" in the newborn nursey at one day of age, etc.
I have been measured as high as 470 by my EP (by hand), even though I was in my early 50s when worked up for the LQTS. I have the LQT-2 gene.
My EP feels it is nothing to worry about. (about my irregular hear tbeats, unless there is an accompanying shortness of breath, dizziness, light-headedness, etc.
I told my husband I think we should both update our AED-CPR training (the latest available) and buy an AED for our home. My husband has the LQT-6 gene. Sometimes the irregular heart beats can be kind of scary, in view of our daughter's tragic death. It's really important to be taken care of by an excellent EP that is up on the latest on LQTS, and hopefully has taken care of LQTS families before.
Hope that helps. Contact me if I could be of assistance. I'm an RN by education, and was left to find out why our daughter died. It has been a long and lonely road getting to an answer. Her autopsy and toxicology were totally negative.
I don't understand what you are saying. Are you saying fish oil, soy, Niacin, etc. are valuable strategies for arrhythmias or are you saying there is insufficient evidence that they help?
I've read that in one study, the people on the fish oil actually had more arrhythmias. They don't know at this time I presume if this was just a fluke or not. I take Barleans Pure Flax Oil for an eye condition, and also have arrhythmias, the LQT-2 gene, a time of 470 (even in my early 50s) and my precious daughter died at age 22, in her sleep, from LQTS.
Do you think the flax will help the arrhythmias? I also heard that ground flax seed can raise your LDL, as can Vit. E, so I make sure and take the 100% flax oil softgels (4,000 mg./day).
All this is a bit confusing these days in medicine, wouldn't you say?
I'm an old RN by education (a 3 yr. diploma school--now Barnes-Jewish in St. Louis), but despite my efforts to research my own daughter's death, etc. I can't keep up with all this.
What do you feel would help arrhythmias given my background of LQTS, etc. Just curious--what field of medicine are you in?
Dear nomorelongQT: Are you or your husband on any treatment? Beta blockers, ICD, anything? I don't understand your docs "don't worry about it" stance. I have been diagnosed with LQT2 and never had any symptoms (or family history) prior to my cardiac arrest.
What are the odds of both you and your husband having LQTS? Wow, that's a lot to deal with.
My husband's gene supposedly is more associated with arrhythmias (but has been seen with LQTS deaths, in studies, etc.). His father was treated for arrhythmias for years--on Quinidine--probably a very bad drug for him if he also had the LQT-6 gene. He did live to be 84 though.
My husband is on no treatment. Has had the work-up, and so far so good with the LQTS issues. He may have the beginnings of PAD though, high BP, etc. like his Mom had at his age (62). She did lived to be 87 but died from complications of the PAD. She also had an abdominal aortic aneurysm in her old age that they were watching the size of at the time of her death.
I am on 150mg. of Toprol XL/day. When we tried to lower it to 100, my BP came up slightly. I get a different shot at the dentist, make sure they don't have epi in the local anesthetic (when they did surgery on me for a squamous cell cancer on my arm, etc.). Also I make sure and remind the doctor right before my colonoscopy starts about the LQTS, drugs to avoid, etc. as you lose lots of potassium when prepping for a colonoscopy.
My daughter has a borderline time also (about 470 hand measured), some fainting spells, gets woozy in the same types of situations as my daughter that died. She is only on 25mg. of Toprol XL. Her pulse got too low on more than that. We have been advised to only do moderate exercise. She has not had any fainting, light-headed spells, etc. in the past several years--thank God. She is terrified of dying like her sister (she's now 30) decided to run a half marathon last year. My son (now 32) had a 450 or 460, but refuses to take the beta blockers because he hates the way it lowers your exercise tolerance. I think they both think they can just "exercise away" the risk. They both had complete cardiac work-ups after Emilie died, as did my husband & I.
I know they are in a certain amount of denial, but they've had a huge burden to bear. They were 20 and 18 (mydaughter was just starting her first week of college when Emilie died). They both finished college, found great spouses, etc. So I'm really proud of them, but wish they would listen to Dr. Moss about the exercise in moderation only. He recommended that for all four of us--as my two surviving children have the LQT-6 gene like my husband. The circumstances surrounding Emilie's death--would suggest she had the LQT-2 gene that I have been found to have. It's been a long and lonely road. Do you know about Parent Heart Watch? You can go to: www.parentheartwatch.org and learn all about what we are trying to accomplish--protecting youth and young adults from SCA, etc. We would love to have you join. Contact me for more information on joining.
In order for all of us, to share a dialoge in the subject of, prevention of sudden cardiac death,we must lay open all the cards about, what do we know?
Known is the fact that some of us come to this world
with a certain cardiac defect.Some of us know about the defect.Many of us don't.
Many times,the first time,the defect is exposed is ,when a fatal arrythmia occur.
The question is not what to do,but how can we predict
it?Massive E.C.G. screening is one way.Individual
E.C.G. screening is another way.
Is it possible? Yes. The fact that some research in this direction shows favorable results(Europe and
Taiwan).This research is in opposit direction with
the prevailing policy that Mass Screening E.C.G. is
not possible due to lack of "Cost effectiveness"
(Too expensive,and not specific enough,i.e. confusing results).
As for the "Nutritional Aspect".
There must be a reason why H.D.L. is considered
the "Good Cholesterol".It is known that it has a triple
effect in reducing Cardiac Risk Factor(As compared with L.D.L.-Increasing Risk Factor).We think we know
why,but factualy we don't.
There must be a reason why inceasing the level of Omega 3 decreases the likelyhood of arrythmias.
We still have to think:Why.
Where do i get these ideas?;From textbooks of Medicine,Cardiology etc.You just have to read between the lines.
WOW - this is all new to me! I am 56 and have been in menopause for the last 5 years. Started with sickness, extreme tiredness - have always suffered with headaches whoch got worse then neuralgia that I was prescribed anti-depressants for. I couldn't even put my head on my pillow as it hurt so much but was just SO very tired! Eventually weaned myself off the AD. All this time I was having hot flushes and still am and constant aches and pains. I even get fed up with my moaning! Then the feeling low started and I wondered why I ever moaned about hot flushes etc as I could be just standing in a queue in a shop and could easily have just burst into tears. I still have those feelings but when I go to GP am too upset to even discuss it! Anyway I had a BP & cholestrol check - both high and then the flutters started (GOD WHATEVER NEXT?) - went to my GP and have now had ECG which confirmed arrhythmia (it is a constant abnormality) and am now awaiting cardiologist appointment. My GP says it's nothing to do with menopause but I have convinced myself (maybe to make me feel better and that it will eventually go) that it is. Am very interested in your views. I am taking Menopace Plus and Evening Primrose Oil and was taking Omega 3 til I read your views girls! Thanks for that.
Hi guys,
I am so sorry about your loss, NMLQT. This is my worst fear. I have always had a racing heart, panic attacks, pvcs, dizziness, anxiety, etc, Was diagnosed with MVP, then told I didn't have it, then with anxiety, then given Paxil, then had heart racing at 180 and was told I have SVT, went on beta blockers, made me suicidal, was told to see a shrink, couldn't be the meds, funny how when I went off it was like the sunshine coming out after a tornado. They didn't help me, still have bouts of waking up at night with it and with bouts of GERD. THEN, after NO problems at all, my 18 year old daughter gets blasted with pvc's, and A LOT of them. The doc said don't worry, it's teenage stress. They got WORSE. Went back, he said she needed to see a shrink too. Took her to cardiologist, he was concerned they were coming back to back, 6 or so in a row. They did an EKG and it did not show Long QT. I made sure to ask. But a part of me wonders if they are wrong? She is using an event monitor now and has not been able to catch the ones that come one after the other.
This has made me more worried, am having more episodes of racing heart, but I have gotten off my meds and am feeling better. I was told certain meds can cause acquired Long QT. This is so frightening!
Well, that's my story in a teeny nutshell. Hope I can help with my experiences and perhaps find some answers as well.
Try Parent Heart Watch for good information and references to experts in Long QT. Dr. Ackerman at Mayo, for instance.
parentheartwatch.org
I was also told by my GP several years ago--in my early 40's--that my heart palpitations and irregular beats were because I was perimenopausal. EKG didn't show anything. This went on for several years. As of this past September I am in surgical menopause at age 50 (I had a hysterectomey because of severe menstrual issues as well as fibroids and cysts), and the day after surgery, landed in the ER with severe AFib and tachycardia. They finally caught it on an EKG in the ER. I was admitted for monitoring after they got me converted. They ran a lot of tests, including an ECG. I was told then it was Lone AFib. Since then I have been in the ER several times and hospitalized once. The diagnosis was changed to paroxysmal AFib. I was told by more than one cardiologist that they don't know what caused it and I might have been born with a defect that only showed up later. I had been previously diagnosed with a benign heart murmer. My cholesterol numbers are all good and I have very low triglycerides, no blockages or plaque buildup, my thyroid is good, my Vitamin D levels are good. My mother's side of the family has a history of AFib and other heart problems, so I more than likely inherited it. Funny thing, though--I have 5 sisters, and none of them have had, to my knowledge, any problems with their hearts. My mom has had only two episodes of AFib, both after 70, and both following viral infections.
To Wyldeflower.
You are wondering how come that none of your 5 sisters do not have A-F,and you have it.You would expect otherwise if it is Genetics.
You are correct in your assumption.
In reply,let me remined you that:"You are,what you eat"..
Meaning:Anything that you import into your body can cause you harm.
This is food.
Food includes vitamins,minerals,medication,cigarets,
You have been sorting out, which one is good for
you.You have been rejecting those foods that cause you harm.keep sorting.
Why the sharp increase in A-F after hysterectomy?
Remember:Operation is a big trauma to the body.In the recovery,repair,the body required much more"Food".If it was not a "Good Food",this is the way
the body reacted.
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