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Why are we here?

Brian
  • By Brian · New reply 5:32 pm
  • Journal · 97 replies
  • When we started this community, each of us faced important health issues in our lives. Some of us have family members with medical conditions. Many of us have medical conditions of our own. All of us ...

Joy

martzj
  • By martzj · New reply September 5, 2008
  • Journal · 7 replies
  • I take profound wisdom wherever I find it. "Choose serenity over security" "Let nothing so disturb us, so fill us with sorrow or discouragement, as to make us fortit the joy. Joy is not simply a matter ...

Borderline Long QT-what activity should be allowed.

Myprecious3
  • By Myprecious3 · New reply September 4, 2008
  • Discussion in Building awareness · 16 replies
  • Hello, My 7yr old daughter was diagnosed this past April with "Borderline" long qt. It has been the most overwhelming time in our lives learning, worrying over this etc etc. She had fainted out of no ...

Describe the Symptoms

miss720
  • By miss720 · New reply September 4, 2008
  • Discussion in Building awareness · 3 replies
  • I'm a 36 yo female and have experienced these crazy symptoms since I was a teen but no one has ever taken interest to find out why I am be experiencing them. My symptoms ALWAYS happen in the morning....how ...

CATECHOLAMINERGIC POLYMORPHIC VENTRICULAR TACHYCARDIA

chrismarch03
  • By chrismarch03 · New reply September 4, 2008
  • Discussion in Building awareness · 5 replies
  • OUR 14-YEAR OLD SON COLLAPSED AT SCHOOL AND WAS REVIVED WITH A IED. HE WAS DIAGNOSED WITH CPVT, PUT ON BETA-BLOCKERS AND IMPLANTED WITH A IED. HE IS CURRENTLY HAVING PROBLEMS WITH THE IED (UNDERCOUNTING ...

Competitive sports and Long QT

hhoward545
  • By hhoward545 · New reply September 1, 2008
  • Discussion in Building awareness · 3 replies
  • My 14 year old son has LQTS type 1. He also loves to play ice hockey. This year he enters High School and has the chance to play for both the town team and the HS team. Clearly this would be in opposition ...

Privacy and control

Brian
  • By Brian · New reply September 1, 2008
  • Journal · 48 replies
  • At Inspire, we think about privacy all the time. Virtually every web site has a privacy policy; you can read ours here: http://www.inspire.com/about/privacy/. But simply following the letter of a privacy ...

Welcome!

Brian
  • By Brian · New reply August 31, 2008
  • Journal · 20 replies
  • I am pleased to present Inspire 2.0 -- the result of many months of fun and hard work. We have made numerous improvements to your community, the vast majority of which are ideas that came from you! We ...

what to eat if you have long qt syndrome

Pebs_Bonnie
  • By Pebs_Bonnie · New reply August 26, 2008
  • Discussion in Building awareness · 2 replies
  • I have had Long qt syndrome for a year now and wondered if you have to watch what you eat. I love eating eggs, macaronni, fish, rice and beginning to eat spicy turkish foods mainly. Can anyone help me ...

ICD in children

heir333
  • By heir333 · New reply August 23, 2008
  • Discussion in Clinical and scientific research · 2 replies
  • My daughter is getting an ICD. She is only nine years old. I am worried about her quality of life and the risks. I don't know if I am doing the right thing ...

How would you feel,if you could predict trouble.

DrD11
  • By DrD11 · Posted August 21, 2008
  • Journal · 0 replies
  • Reading and seeing the apprehension of indivduals before competitive sports,it occured to me that there are methods which are now becoming available. Telemedicine,is what I am refering to. Check with ...

What Could Be

martzj
  • By martzj · New reply August 20, 2008
  • Journal · 12 replies
  • The exciting world I inhabited for decades is one of infinite possibilities for discoveries that will ultimately change us forever. The links below are brief entries into the culture of pure research ...

UPDATE

huskylover
  • By huskylover · New reply August 20, 2008
  • Journal · 14 replies
  • I haven't posted in a while since I had my latest round of botox injection on July 10th. Here's the latest: -- the injection didn't work, even though I was given double the dosage. The pain that I feel ...

My Miracle Story

katiesoftball26
  • By katiesoftball26 · New reply August 19, 2008
  • Journal · 3 replies
  • Within the past two days, two area newspapers have done a story on a new friend and I. Its my story of Long QT success through two different writers and am told that it is very "heartwarming". (The links ...

Looking for information and experiences with babies and toddlers

auntzz530
  • By auntzz530 · New reply August 19, 2008
  • Discussion in Building awareness · 6 replies
  • We would like to hear from members dealing with long qt in their babies and toddlers. Our 13 month old girl has just been diagnosed and any words of wisdom and support would be greatly appreciated ...

CPVT

cgphall
  • By cgphall · New reply August 18, 2008
  • Discussion in Building awareness · 8 replies
  • My daughter (aged 7) has just been diagnosed with CPVT. I would like to speak to anyone who has experience of the condition, so that I can learn more about it and to understand what limitations I need ...

Why

heir333
  • By heir333 · New reply August 13, 2008
  • Journal · 8 replies
  • How can my three beautiful children have such a horrible disease. How can I live with the fact that I passed this deadly gene to them. I do not understand ...

Wolff-Parkinson-White and Long QT syndrome, coexisting.

BKirsch
  • By BKirsch · New reply August 12, 2008
  • Discussion in Building awareness · 6 replies
  • Hi my name is Bonnie and I have a 4 year old daughter who has been diagnosed with having both Wolff-Parkinson-White syndrome and Long QT syndrome. I have yet to come across another person who has both ...

where can i find educational materials?

brother_deacon804va
  • By brother_deacon804va · New reply August 10, 2008
  • Journal · 4 replies
  • I am interested in receiving some educational materials to distribute to local doctor offices and people intersted regarding ovarian cancer ...

OOPS I meant LQT

samanthamr

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About this group

The C.A.R.E. Cardiac Arrhythmias Support Community connects patients, families, friends and caregivers for support and inspiration. The C.A.R.E. Cardiac Arrhythmias Support Community is sponsored by the Cardiac Arrhythmias Research and Education Foundation in partnership with Inspire.