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All new and active discussions & journals

New to Group, having PM/ICD implanted Monday

HawaiiDiva
  • By HawaiiDiva · New reply 11:12 pm
  • Journal · 16 replies
  • Hello everyone. I'm a 47 year old woman who lives in Hawaii, and I found this site when searching for information on dual device pace makers and defibs. I am scheduled to undergo implantation on Monday ...

Any parents have children diagnoised with LQT?

TinaD123
  • By TinaD123 · Posted 8:51 pm
  • Journal · 0 replies
  • My three children have been recently diagnosed with LQT2. I am wondering what kind of beta blocker the physian perscribed, and how it is effecting your child. I am interested in any feed back that anyone ...

LQTS related to Hypothyroid?

TJplus3
  • By TJplus3 · Posted 8:39 pm
  • Discussion in Clinical and scientific research · 0 replies
  • My daughter has recently been diagnosed with LQTS. Hypothyroidism runs in my family, and she may have subclinical hypothyroidism. I've found small studies linking the two, but does anyone have any first ...

PRINZMETALS ANGINA SPASMS AND SHAKING/SHIVERING

harleytripper
  • By harleytripper · New reply 8:02 pm
  • Journal · 9 replies
  • I have a question regarding the shakiness and shivering that Yachtzee mentioned when she has her spasms. Until pretty much recently my coronary spasms were pretty much that, with severe center chest pain ...

TOTALLY~~~~Amazed, Confused, Angry ~~~ maybe CRAZY!!!!

MelissaShuford
  • By MelissaShuford · New reply 7:09 pm
  • Journal · 12 replies
  • Albert Einstein once said, "the definition of INSANITY is doing the same thing over and over again expecting different results." Okay I've reached the realization that insanity is within my reach~like ...

Lets Complicate Things a Little More~~~~~~

MelissaShuford
  • By MelissaShuford · New reply 5:17 pm
  • Journal · 4 replies
  • Yesterday i received a letter from the review of my sleuth heart recorder (implanted loop recorder)Stating that after review on 2/25/2010 they had attempted to contact me for several days to discuss findings ...

Support your group and raise awareness with badges

Walter
  • By Walter · New reply 4:04 pm
  • Journal · 53 replies
  • Hi everyone. We added a new feature today that you can use to support your groups and the organizations that sponsor them, and get the word out about the causes that are important to you. If you visit ...

New CPVT diagnosis

Marilyn1963
  • By Marilyn1963 · New reply 1:15 pm
  • Discussion in Tales of the heart memorials and tributes · 14 replies
  • I am 46 and just received my CPVT diagnosis today (dec 16, 2009). My mother tested positive in October 2009. Several of her cousins and their familes have also been testing positive. Our family journey ...

I met My Father today~~~~

MelissaShuford
  • By MelissaShuford · New reply yesterday at 5:58 pm
  • Journal · 9 replies
  • WOW !!!! What am I feeling.....God please embrace me and hold me close...tenderly remind me of your unconditional love that has carried me thru almost 47 years now....even when I didn't know it you were ...

Em.....Nerves ...... and the Gettysburg Address

MelissaShuford
  • By MelissaShuford · New reply yesterday at 5:41 pm
  • Journal · 3 replies
  • My precious Em, Bless her heart and may I request a prayer for her as we I post~~~~She has studied the Gettysburg address inside and out and knows it well and today is THE DAY to recite it in class ~as ...

LQT2

Baileigh
  • By Baileigh · New reply March 9, 2010
  • Discussion in Genetic testing · 1 reply
  • Well its been 3 weeks since I had my son's gentic test done and im dying to find out if he carries gene or not..... I'm so scared and wondering how im going to react,when i found out my daughter had LQT ...

So frustrated

blondeambition13
  • By blondeambition13 · New reply March 9, 2010
  • Discussion in Genetic testing · 3 replies
  • On 12/01, my husband suffered SCA and has been diagnosed with Brugada Syndrome and now has an ICD implanted. We know it can be inherited and we want to get genetic testing done for him to know what we're ...

A Special Blessing to Everyone~~~~~~

MelissaShuford
  • By MelissaShuford · New reply March 9, 2010
  • Journal · 9 replies
  • I hope EVERYONE finds themself with a special BLESSING today!!!! Seek and you will find it ~~~~in a smile, a flower, a song, a phone call, a post, a child, a friend, a dog, .......Open your heart and ...

Need help handling AV block

twopack
  • By twopack · New reply March 8, 2010
  • Discussion in Help desk · 2 replies
  • I went to my PCP when I started experiencing a feeling of fullness in my chest. I noticed my heartrate was in the 50s when I felt this way. I also carry a diagnosis of MS. I've had a chemical stress test ...

funny heart beats

sunsets
  • By sunsets · Posted March 7, 2010
  • Discussion in Building awareness · 0 replies
  • i have pvc and pac my pvc are almost every day, and i will have 29 amin and my blood preasure goes really high im onb rythma ,im in the er a lot any help on this proulem or advise i would like that thank ...

Every breathe I take~~~~~

MelissaShuford
  • By MelissaShuford · New reply March 7, 2010
  • Journal · 3 replies
  • I have had an absolutely beautiful evening with my angel Em~we took her dress from the consignment store to the seamstress~she is somewhat redesigning it and it is gonna be a dream for her next pageant ...

Time to Focus on the Sweeter Things in life~~~~~

MelissaShuford
  • By MelissaShuford · New reply March 7, 2010
  • Journal · 11 replies
  • and let go of this craziness!!!! My best medicine is and always has been God and my family~~~~I forget sometimes how precious and sweet they are~~~~Em enlightened me with her beautiful smile and sweet ...

Shake Weights

franklinmilford
  • By franklinmilford · New reply March 6, 2010
  • Journal · 11 replies
  • Yup, I am the one companies use advertising dollars for. I believe it all. Got the Skecher's Shape Ups and I love them. Now that I can walk in them, you actually want to walk more!!!Go figure! Now I went ...

Pulm. Dr appt~~~~just a little Nervous ????

MelissaShuford
  • By MelissaShuford · New reply March 5, 2010
  • Journal · 4 replies
  • Off to the Pulmonologist~~~~wish me luck maybe even a prayer!!!!! Have a Blessed and Happy Day!!!!! Melissa ...

Some unusual issues

Jennifer-Leigh
  • By Jennifer-Leigh · New reply March 5, 2010
  • Journal · 9 replies
  • Hi my name is Jennifer and I am searching for answers. While pregnant I was having premature labor alot due to being dehydrated from feeling so ill. To help the issue my dr. placed a pic line into my ...

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The C.A.R.E. Cardiac Arrhythmias Support Community connects patients, families, friends and caregivers for support and inspiration. The C.A.R.E. Cardiac Arrhythmias Support Community is sponsored by the Cardiac Arrhythmias Research and Education Foundation in partnership with Inspire.