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Welcome to Inspire!

What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.

Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.

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This month our little boy Ian will reach one year post transplant. I can hardly believe how far we've come. This month he has scans, a neuro psyche eval, oncology clinic visit, an audiology appt, and a one year follow up with the BMT team. I'm feeling a bit overwhelmed....I have mixed emotions. I feel incredibly optimistic and nervous at the same time. I want to be done with doctors, hospitals, and appts. Not going to happen for a VERY long time. Ian is doing so well. I almost feel guilty at how well he endured treatment and at the quality of life he currently enjoys. I know so many who are not as fortunate. I feel selfish for wanting him to continue thriving and doing well! I'm not sure I will ever know why some children do so well and why others seemingly struggle, suffer and then pass on. I do know and believe that God has a plan for all his children....maybe it's not important to know all the "why's" but rather accept his will. I'm just hoping and praying that all will go well this month and that he will continue in remission! After this month....I will have a four month break. YAY! This first year off treatment we have had to go in every three months....Does moving things out every four months mean that we are making progress towards decreasing the odds of his cancer coming back? Can't seem to get a straight answer from anyone and everyone seems to have a different opinion.

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