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I am amazed by the fact that there isn't anything out there for Childhood Cancer Awareness Month. We are currently living in a children's hospital and you still don't see any recognition. I even made some gold ribbons to wear, and other parents of cancer children had no clue what it was for.
I respect all of the pink out there, but I am just really wanting more recognition for the children.
Dear Tamfaye321,
thanks for your post. My son is a cancer survivor. he was diagnosed in 1999 when he was 5 years old. He is now 15 (going on 20) and doing great with the exception of the learning difficulties as a result of the chemo. As his Mother, I make it a point to make EVERY month "Childhood Cancer Awareness Month". Once their treatment is over, it just begins and is a battle for years to come. I am grateful he is here and don't know what I would do with out him. He lost his father May of 2008 to liver cancer, so he has had his share in his young 15 years. He is my hero and one heck of a kid!!! My hat is off to all these brave children going through the fight of their lives!
God Bless!
I agree! I even e-mailed one of the morning news people from the news station that I watch and STILL nothing! I made a ton of gold ribbons to hand out at the beginning of this month and the people I gave them to only wore them for that one day! What is wrong with these people?! Whew! sorry to vent in such a negative way. It just makes me crazy!
We are really trying in the Inland NW. We have a local chain of Shari's Restaurants selling gold ribbon placards in their 8.locations. Also a few coffee shops , this Friday, Shotzys in the Spokane valley ......and we have been passing out gold ribbons in the hospial cafeteria. we are also teaming up with a loal foundation this saturday for a 5K walk. If you are in the inland NW, join us. Find info at www.candlelightersinlandnw.org
thank you maryanne. you are terrific for letting us know about all the things you guys and the hospital are doing. I just get upset when the people I work with don't even take the time to do this for "a few of their own". Clay is not the only child in the school district fighting this horrid monster.
Hi Guys,
I don't know how I missed your posting last month. I feel the same way. How can these kids be ignored? Don't get me wrong, I love Candlelighters. They sponsor a parent support group at our hospital. But after my daughter was diagnosed I struggled to find a way to make a difference. There was a piece missing. I did a Light The Night Walk. And I read a ton. I am unhappy with the Leukemia and Lymphoma Society and the American Cancer Society; where is their funding for kids? I read more and realized that even if there are photos of kids, it doesn't mean that the monies raised actually goes to pediatric research. Our community seems so splintered with lots of wonderful families doing things in honor of their children. But I kept thinking, we need to be more organized and get the federal government to step up for these kids too. After that, I became involved in CureSearch. (If you don't know them, go to www.curesearch.org) Nationwide, this seems to be the group that is doing the real advocacy necessary for pediatric cancer. They help parents storm the capital every spring for Reach the Day but their efforts are year round. They finally got a bill passed last year that allows congress to really fund research. They help parents learn about the disease and becoming an advocate if you are interested. All monies raised go to pediatric cancer research. You can organize a MileStones Walk in your area - which not only raises money, but awareness. They also have lots of little projects that you can do. I feel like each time I do one of these projects, I am educating and helping other kids. I know this posting comes after the fact but perhaps if you read it, it might encourage you and you might find a way to help join in this fight.
God Bless,
Sherry (Fiona's Mom)
I have a 12 year old son who feels the same way. He just wants some recogintion about the cancer he is facing and other children out there are battling. By the end of October he is tired of hearing about breast cancer. He is sympathetic to those who have breast cancer but wonders why it seems that is the only cancer recognized.
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