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All new and active discussions & journals

Prayers Needed

curejamilia
  • By curejamilia · Posted 6:05 am
  • Journal · 0 replies
  • Well, I haven't been on and written in a while. There's been so much going on. My daughter was supposed to get a PET scan yesterday but the facility called and had to reschedule because the tech was taking ...

ALL newly diagnosed

AEWM
  • By AEWM · New reply July 2, 2009
  • Discussion in Newly diagnosed · 6 replies
  • My daughter, 7, was diagnosed with ALL on 4/3/09. We are looking for other families that are taking or have taken the pediatric cancer journey. We are in the consoldation phase right now and would love ...

Any ependymomas out there?

jenniferjean
  • By jenniferjean · Posted June 29, 2009
  • Discussion in Newly diagnosed · 0 replies
  • My oldest son is 14 and was diagnosed with myxopapillary ependymoma on June 11, 2009. He had spinal surgery to remove the tumors but they couldn't get all of the second one so he starts proton radiation ...

It's been a while. Update.

curejamilia
  • By curejamilia · Posted June 26, 2009
  • Journal · 0 replies
  • I know it's been a while since I've written. Just to update. Jamilia had chemo last Friday and has been having difficulty breathing and lots of heart palpitations since . This has been going on for quite ...

Rough start to the day! Chemo effects.

curejamilia
  • By curejamilia · New reply June 24, 2009
  • Journal · 3 replies
  • Chemo was Friday. Well, it's now 5 in the morning and the pain is easing up a bit after taking a pain pill. It's been a rough night for Jamilia. Her back is killing her. I remember those days. I didn't ...

Share your story via video!

TeamInspire
  • By TeamInspire · New reply June 23, 2009
  • Journal · 28 replies
  • Sometimes the most powerful message each of us can share is our personal story -- our own experience. With upcoming healthcare legislation pending, one way we can be advocates is to share these stories ...

acute lympocytic leukemia

mahe
  • By mahe · Posted June 23, 2009
  • Discussion in Financial and insurance issues · 0 replies
  • my brother son 4yrs he his suffering from acute lympocytic leukemia to give the treatment doctor has given estimated cost around 5 to 8 lakhs we were financialy poor we cant able to bare that much of ...

Raising Awareness and Funding for Pediatric Cancer

monahan1
  • By monahan1 · New reply June 21, 2009
  • Discussion in Happenings · 1 reply
  • Since my daughter was diagnosed 2+ years ago with ALL leukemia, I became involved with local efforts to bring awareness and do fund raising for pediatric cancer. I have learned in the process that certain ...

Sarcoma Alliance Fundraiser

bbohardt
  • By bbohardt · Posted June 16, 2009
  • Discussion in Happenings · 0 replies
  • My family has organized a 5k funraising event for the Sarcoma Alliance. Please visit sarcomaalliance.org and click on events. Our event is titled SueBo 5k. Please join us if you are able or consider contributing ...

Amazing Film

courtney82
  • By courtney82 · New reply June 15, 2009
  • Discussion in Emotional support for parents and caregivers · 1 reply
  • Hi, I've come across a trailer on Canada's Green Pages I thought I'd share. It's a powerful new documentary coming out on cancer. I recommend watching the trailer: www.youtube.com/jpsfilmsparis I was ...

Teenager with AML

momtotyler
  • By momtotyler · New reply June 15, 2009
  • Discussion in Emotional support for my child · 2 replies
  • My son is 16 and has AML. He is currently undergoing chemo. We are dealing with so many emotional issues. He keeps saying that God gave him cancer. He is more rebellious. He says that if it comes back ...

OstreaSarcoma

wigout111
  • By wigout111 · Posted June 14, 2009
  • Discussion in Emotional support for parents and caregivers · 0 replies
  • Hello My wife and I are raising our Grand-Daughter. She has recently been dianosed with OstreaSarcoma and has been having Chemo now for about 7 weeks. She is going to be losing her leg(above knee) in ...

Follow Inspire on Twitter and Facebook!

TeamInspire
  • By TeamInspire · New reply June 12, 2009
  • Journal · 32 replies
  • We're happy to announce that you can now stay in touch with what's happening at Inspire by following us on both Twitter and Facebook. While Inspire communities are still the best places to connect with ...

A suggestion

dleach
  • By dleach · New reply June 9, 2009
  • Journal · 8 replies
  • Someone suggested I write down my thoughts and tell my story for a couple of minutes each day. I am a mom, a friend, a caregiver. You name it I probably do it. I think it is important to share that my ...

Perfection

JLH1
  • By JLH1 · New reply June 9, 2009
  • Journal · 1 reply
  • The following is another "post" I copied from my daughter's hospital CarePage (www.carepages.com AshleyHendrick). I originally wrote this last December, but was reminded of it today while thinking about ...

Guestbooks - An exciting addition to Inspire

TeamInspire
  • By TeamInspire · New reply June 9, 2009
  • Journal · 36 replies
  • Hello everyone, We're writing to let you know about a great new feature we'll be adding to Inspire in the very near future: guestbooks. This is a feature that many of you have requested, and we're very ...

what do i do?

a_powerfully_mind
  • By a_powerfully_mind · New reply June 8, 2009
  • Journal · 7 replies
  • So on monday i had this sharp pain in my gut were my tumor was when i had cancer i told my dad on wednesday since it was getting worse and i also said that it is harder than it once was. He said to tell ...

My daughter had leukemia

Kerry_1
  • By Kerry_1 · New reply June 6, 2009
  • Discussion in Emotional support for parents and caregivers · 3 replies
  • I am wondering if anyone has lost a child to leukemia. We lost our angel girl Jess last year in March. Would like to connect with anyone who has lost a child and would like to chat ...

Relay 4 Life / Honoring my son, Thomas that died 11/08

rfoster
  • By rfoster · Posted June 5, 2009
  • Journal · 0 replies
  • This is my first participation with Relay for Life. I joined a team that will be walking tomorrow (6-6-09). This is your chance to participate in something huge. This year, hundreds of thousands of people ...

Been there as a mom.

Survivorsmom
  • By Survivorsmom · New reply June 5, 2009
  • Discussion in Emotional support for parents and caregivers · 12 replies
  • We were part of the Candlelighter's network in Salt Lake 11 years ago. We are greatful for their support during our time of need. My son had a meduloblastoma when he was 7 years old. He is now 19 and ...

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About this group

The Candlelighters Childhood Cancer Support Group connects patients, families, friends and caregivers for support and inspiration. The Candlelighters Childhood Cancer Support Group is sponsored by the Candlelighters Childhood Cancer Foundation in partnership with Inspire.