The Candlelighters Childhood Cancer Support Group connects patients, families, friends and caregivers for support and inspiration... More about this group

All new and active discussions & journals

The Beginning

fightnsmarts
  • By fightnsmarts · New reply November 15, 2009
  • Journal · 4 replies
  • Wow so today is day 6...seems like a lifetime. We were released from the hospital last night 3 days early. So were doing pretty good. We arrived at the Emergency on Tuesday November 3 at 11am. Moved to ...

6 Month Old Son With Neuroblastoma

PoeDunk
  • By PoeDunk · New reply November 15, 2009
  • Discussion in Raising a child with cancer · 7 replies
  • I have an amazing 6 month old son who was diagnosed with Neuroblastoma cancer at 3 months old. He is a tiny little guy barely 15lbs. But he is a TOUGH and FIESTY little guy! (He has a healthy twin brother ...

OSTEOSARCOMA/WHAT TO EXPECT

BJsmom
  • By BJsmom · New reply November 14, 2009
  • Discussion in Teens · 11 replies
  • My 14 year old son is newly diagnosed with osteo and alhough he wouldn't reach out himself, I know that he would feel better if he could talk to someone who is going or has gone through the chemo experience ...

what do i do?

a_powerfully_mind
  • By a_powerfully_mind · New reply November 14, 2009
  • Journal · 19 replies
  • i just found out that i can't play sports any more and i have nothing to focus all the bad energy on ...

A wonderful idea from the mind of a little girl

dleach
  • By dleach · New reply November 12, 2009
  • Journal · 4 replies
  • Watch this story about an amazing little girl who let the world know how she felt about them. http://abcnews.go.com/Health/CancerPreve ntionAndTreatment/child-brain-tumor-leav es-notes-family-death/story?id=8998612 ...

Curesearch and PAC2-2 questions

alclmom
  • By alclmom · Posted November 12, 2009
  • Discussion in Raising a child with cancer · 0 replies
  • Question 1 for anyone....I ordered holiday cards from Curesearch giftshop online, I could not find anywhere on the site information about what % of the proceeds go to the foundation. I assumed most of ...

Feeling like family is useless

KayEm
  • By KayEm · New reply November 9, 2009
  • Discussion in Emotional support for parents and caregivers · 8 replies
  • Hello all, this is my first post. My son (19) was diagnosed with ALL this last may. He went through several chemo treatments but then one day all of a sudden he was feeling pain in his side and was feverish ...

Day 17

Loviya
  • By Loviya · New reply November 9, 2009
  • Journal · 1 reply
  • Hello everyone, Today is a good day. My son bone marrow aspiration showed no leukemia cells. Praise Jah. The doctor says its very very early. So I continue to pray he remains cancer free. I'm very greatful ...

Mother of son with pre-b all

parkay
  • By parkay · New reply November 7, 2009
  • Journal · 1 reply
  • Wow, it has almost been two years since my son's diagnosis. I have been so terrified that it is coming back. Lately every sign and symptom that led up to the diagnosis of ALL seems to be creeping up ...

Day 16 after Transplant

Loviya
  • By Loviya · New reply November 7, 2009
  • Journal · 1 reply
  • Hello everyone my son Trevon is 10 yrs old and has AML (Acute Myeloid Leukemia) There has been several Bone Marrow Drives in honor of Trevon I would like to thank all who has donated there Time and prayers ...

Day 14 after Transplant

Loviya
  • By Loviya · New reply November 6, 2009
  • Journal · 2 replies
  • Today is Wednesday It's already been a busy morning. My Son Trevon had his Stem Cell Transplant 13 days ago today is WBC is 3.3 and his ANC is over 1000. counts look good but he still has 2% cancer or ...

No recognition of Childhood Cancer Awareness Month

tamfaye321
  • By tamfaye321 · New reply November 6, 2009
  • Discussion in Happenings · 6 replies
  • I am amazed by the fact that there isn't anything out there for Childhood Cancer Awareness Month. We are currently living in a children's hospital and you still don't see any recognition. I even made ...

TinglyToes.com

tinglytoes
  • By tinglytoes · Posted November 5, 2009
  • Discussion in Treatment · 0 replies
  • I'm the founder of a newly created non-profit organization, TinglyToes.com, and we offer a lending library of carriers to carry children and siblings in families of children fighting cancer. Holding your ...

Inspire members featured

Brian
  • By Brian · New reply November 4, 2009
  • Journal · 29 replies
  • Today Massachusetts General Hospital's Proto Magazine published a wonderful profile of nine Inspire members. Each of these stories underscores what we all know to be true -- that Inspire is a special ...

My mother is doing my head in

KayEm
  • By KayEm · New reply November 1, 2009
  • Discussion in Emotional support for parents and caregivers · 2 replies
  • Anybody else out there who have parents who can sometimes be the most helpful people out there, but then other times be the biggest pains in the asses ? I know that if me and Max didn't live with my mother ...

communicating what you need

dleach
  • By dleach · New reply October 29, 2009
  • Journal · 4 replies
  • I think the hardest thing to do is ask for specific help. I think when everyone asks "what can I do" we often say nothing or say don't worry about it. Why are we so shy to admit we may need someone to ...

pediatric melanoma

melissacrn
  • By melissacrn · New reply October 29, 2009
  • Discussion in Newly diagnosed · 1 reply
  • Anyone else have a child with melanoma? My child has recently dx, had excision and lymph node bx, which are positive. Now waiting for doc to present our plan which sounds like complete lymph node dissection ...

Going crazy

wigout111
  • By wigout111 · New reply October 28, 2009
  • Discussion in Emotional support for parents and caregivers · 2 replies
  • Tomorrow, I will take my Grand-daughter to the hospital for another round of chemo. We are on our 6 month of treatment. Which doesn't really sound like very long compared to other who are 2, 3, or even ...

LATE TERM EFFECT HELP

KMele
  • By KMele · New reply October 28, 2009
  • Discussion in Emotional support for my child · 5 replies
  • We are celebrating my Son's 10th year out of treatment. He was diagnosed in June 1999 with Burkitt's lymphoma when he was 5 years old. He is a sophomore in high school now and physically doing great ...

ALL - managing constipation question

cadmom
  • By cadmom · New reply October 28, 2009
  • Discussion in Treatment · 10 replies
  • My son is 2 yrs, 5 mos, and tomorrow is day 15 of his 42 day delayed intensification phase of therapy. Last week he was on steroids for the first time since induction, and we had a miserable time managing ...

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About this group

The Candlelighters Childhood Cancer Support Group connects patients, families, friends and caregivers for support and inspiration. The Candlelighters Childhood Cancer Support Group is sponsored by the Candlelighters Childhood Cancer Foundation in partnership with Inspire.