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A project I am thinking about
- By dleach · New reply yesterday at 11:29 am
- Journal · 3 replies
- I am thinking of collecting photos and stories of people who have died from all different types of illnesses. We have an event every year in Mason's memory and it could be an exhibit at the event. It ...
The Parents Cry Alone
- By JLH1 · New reply February 6, 2010
- Journal · 4 replies
- There is a family we met through CarePages around the same time my daughter Ashley's illness was first diagnosed. This family includes a teenage girl who like Ashley, was also diagnosed with osteo sarcoma ...
Aveolar Rhabdomyosarcoma
- By Sheri23 · Posted February 5, 2010
- Discussion in Newly diagnosed · 0 replies
- I have a 12 year old daughter who was recently diagnosed. Looking for any information, personal stories, etc. from other parents. I would also like to find a teen for her to communicate with ...
Been there as a mom.
- By Survivorsmom · New reply February 5, 2010
- Discussion in Emotional support for parents and caregivers · 19 replies
- We were part of the Candlelighter's network in Salt Lake 11 years ago. We are greatful for their support during our time of need. My son had a meduloblastoma when he was 7 years old. He is now 19 and ...
Medulloblastoma: 5 year old boy
- By Guendy · New reply February 4, 2010
- Discussion in Newly diagnosed · 11 replies
- My nephew Nicola, aged 5, was diagnosed with medulloblastoma 10 days ago. We live in Italy and Nicola is now at Gaslini hospital, in Genoa. The surgeon (Dr. A. Cama) removed the tumor and we are now waiting ...
a caregiver of a needy 10yr old with Leukemia
- By moto-x-princess23 · New reply February 4, 2010
- Discussion in Emotional support for parents and caregivers · 5 replies
- Hi everyone, im new to this site and just wanted to know if anyone knew what I was going through. I am 21 yrs old and have the pleasure of taking care of Jordan a ten year old that was just diagnosed ...
Looking for parent of AML patient
- By amlparent · Posted February 4, 2010
- Discussion in Emotional support for parents and caregivers · 0 replies
- My now 11 yr old son was diagnosed in November with AML. He has since undergone 2 rounds of chemo (he didn't respond to the first round), now we're about to do a stem cell transplant. I'm wondering if ...
Dental issues
- By alclmom · New reply January 30, 2010
- Discussion in Raising a child with cancer · 5 replies
- I did not take my daughter to the dentist the whole time of her treatment (1 yr)(I get mom of the yr) Prior to that she had been to the dentist about 6 months before dx. Last week I took her and she has ...
Medulloblastoma: when did your child start to speak again after surgery?
- By Guendy · New reply January 30, 2010
- Discussion in Newly diagnosed · 2 replies
- My nephew Nicola underwent a 9-hour surgery two weeks ago to remove a medulloblastoma. We were told that he would not speak for a long time. But how long? Did you experience the same? Right after his ...
When the cancer returns
- By BelovedbyGod1 · New reply January 30, 2010
- Journal · 2 replies
- My now 9yr old daughter was diagnosed with medullo in 08. She under went surgery and the Dr's were able to remove 100% of the tumor plus 6wks of intensive radiation (on the brain and spine) and chemo ...
VERY CLINGY SIX YEAR OLD ALL PATIENT
- By LoriJean · New reply January 29, 2010
- Discussion in Raising a child with cancer · 13 replies
- My son was diagnosed with ALL when he was three and a half, he is now six and a half and on maintenence until May 2010. He is extremely clingy with me, and I am not sure why, or what to do. I am sure ...
Read this on a blog today
- By dleach · New reply January 27, 2010
- Journal · 3 replies
- This young woman my age died yesterday from a battle with cancer- this was from her blog "Life doesn't keep a score card-if you feel you've had your share of problems you should somehow be safe from any ...
Mono and EBV
- By alclmom · New reply January 27, 2010
- Discussion in Raising a child with cancer · 4 replies
- I am ticked off about mono...seems that many articles I read in the cancer world and in many other diseases reference EBV. I am particularly annoyed now about it because my 17 yr. old has just been dx ...
Newly Diagnosed
- By CONNYR74 · Posted January 27, 2010
- Journal · 0 replies
- My son it's 7 yrs. old, on Dec. 1, 2004 he had a split liver transplant, 5 yrs. later on Dec. 11, 2009 he was diagnosed with Burkitt's Leukemia/PTLD. His had 2 rounds of chemo and will have a bone marrow ...
You Will Be In Our Heart And Mind Forever
- By Cherime · New reply January 26, 2010
- Journal · 3 replies
- Hi! Everyone, my only son, Charles Gabriel, passed away Nov. 30, 1999, age 7 years old, a strong in faith, courage...I missed Him so much... the fun and happy days, those embracing moments that we had ...
Being your own advocate/making sure you have help
- By dleach · New reply January 26, 2010
- Journal · 28 replies
- I was in the ER yesterday and again was frustrated/horrified at how helpless I felt. My husband could not come with me and it was a long 9 hours to get out of here. They were not answering the call button ...
low counts
- By mcfadden · New reply January 24, 2010
- Discussion in Raising a child with cancer · 2 replies
- My son has been off therapy for ALL for 6 months and each month his counts keep going down. December they did go up some, but then went down again this month. His doctor says it is fine because his numbers ...
KB STRONG
- By KBSTRONG · New reply January 23, 2010
- Journal · 3 replies
- I just lost my 13 year old daughter. We was told she had AML Leukemia on November 20,2008 and she did many rounds of chemo and had two bone marrow transplants in six months. She bet the cancer but eaned ...
R.I.P. Nina
- By kristina_dunn · New reply January 23, 2010
- Journal · 2 replies
- Well my baby passed away on December 13, 2009. That was hard and it still is hard. I will write more later ...
Contradictions
- By JLH1 · New reply January 21, 2010
- Journal · 2 replies
- I wrote the folllowing "post" for my daughter's CarePage (www.carepages.com AshleyHendrick). I thought others might also relate so I decided to post it here as well. Have you ever wondered what thoughts ...
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The Candlelighters Childhood Cancer Support Group connects patients, families, friends and caregivers for support and inspiration. The Candlelighters Childhood Cancer Support Group is sponsored by the Candlelighters Childhood Cancer Foundation in partnership with Inspire.