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Mother of son with pre-b all
- By parkay · New reply 12:07 pm
- Journal · 1 reply
- Wow, it has almost been two years since my son's diagnosis. I have been so terrified that it is coming back. Lately every sign and symptom that led up to the diagnosis of ALL seems to be creeping up ...
Day 16 after Transplant
- By Loviya · New reply 1:05 am
- Journal · 1 reply
- Hello everyone my son Trevon is 10 yrs old and has AML (Acute Myeloid Leukemia) There has been several Bone Marrow Drives in honor of Trevon I would like to thank all who has donated there Time and prayers ...
Day 14 after Transplant
- By Loviya · New reply yesterday at 11:13 pm
- Journal · 2 replies
- Today is Wednesday It's already been a busy morning. My Son Trevon had his Stem Cell Transplant 13 days ago today is WBC is 3.3 and his ANC is over 1000. counts look good but he still has 2% cancer or ...
No recognition of Childhood Cancer Awareness Month
- By tamfaye321 · New reply yesterday at 12:47 pm
- Discussion in Happenings · 6 replies
- I am amazed by the fact that there isn't anything out there for Childhood Cancer Awareness Month. We are currently living in a children's hospital and you still don't see any recognition. I even made ...
6 Month Old Son With Neuroblastoma
- By PoeDunk · New reply November 5, 2009
- Discussion in Raising a child with cancer · 5 replies
- I have an amazing 6 month old son who was diagnosed with Neuroblastoma cancer at 3 months old. He is a tiny little guy barely 15lbs. But he is a TOUGH and FIESTY little guy! (He has a healthy twin brother ...
TinglyToes.com
- By tinglytoes · Posted November 5, 2009
- Discussion in Treatment · 0 replies
- I'm the founder of a newly created non-profit organization, TinglyToes.com, and we offer a lending library of carriers to carry children and siblings in families of children fighting cancer. Holding your ...
Inspire members featured
- By Brian · New reply November 4, 2009
- Journal · 29 replies
- Today Massachusetts General Hospital's Proto Magazine published a wonderful profile of nine Inspire members. Each of these stories underscores what we all know to be true -- that Inspire is a special ...
Feeling like family is useless
- By KayEm · New reply November 3, 2009
- Discussion in Emotional support for parents and caregivers · 7 replies
- Hello all, this is my first post. My son (19) was diagnosed with ALL this last may. He went through several chemo treatments but then one day all of a sudden he was feeling pain in his side and was feverish ...
My mother is doing my head in
- By KayEm · New reply November 1, 2009
- Discussion in Emotional support for parents and caregivers · 2 replies
- Anybody else out there who have parents who can sometimes be the most helpful people out there, but then other times be the biggest pains in the asses ? I know that if me and Max didn't live with my mother ...
communicating what you need
- By dleach · New reply October 29, 2009
- Journal · 4 replies
- I think the hardest thing to do is ask for specific help. I think when everyone asks "what can I do" we often say nothing or say don't worry about it. Why are we so shy to admit we may need someone to ...
pediatric melanoma
- By melissacrn · New reply October 29, 2009
- Discussion in Newly diagnosed · 1 reply
- Anyone else have a child with melanoma? My child has recently dx, had excision and lymph node bx, which are positive. Now waiting for doc to present our plan which sounds like complete lymph node dissection ...
Going crazy
- By wigout111 · New reply October 28, 2009
- Discussion in Emotional support for parents and caregivers · 2 replies
- Tomorrow, I will take my Grand-daughter to the hospital for another round of chemo. We are on our 6 month of treatment. Which doesn't really sound like very long compared to other who are 2, 3, or even ...
LATE TERM EFFECT HELP
- By KMele · New reply October 28, 2009
- Discussion in Emotional support for my child · 5 replies
- We are celebrating my Son's 10th year out of treatment. He was diagnosed in June 1999 with Burkitt's lymphoma when he was 5 years old. He is a sophomore in high school now and physically doing great ...
ALL - managing constipation question
OSTEOSARCOMA/WHAT TO EXPECT
Is anyone familiar with Embryonal Undifferentiated Sarcoma?
- By rhenry3 · New reply October 27, 2009
- Discussion in Raising a child with cancer · 1 reply
- Looking for anyone who has been diagnosed or has knowledge of Embryonal Undifferentiated Sarcoma. My son was dx 2-6-09 with an 11cm mass in the middle of his liver. Liver transplant 5-29-09. Waiting for ...
Going to school during radiation treatment
- By lilmissy76 · Posted October 26, 2009
- Discussion in Newly diagnosed · 0 replies
- My 6 year old son was diagnosed with Medulloblastoma on 9/19/09. He was in his second week of 1st grade. He is starting his second week of Radiation Therapy (he will have it M-F for 6 weeks) this week ...
NG Feeding tube -- expereinces?
- By nmm2112 · New reply October 25, 2009
- Discussion in Raising a child with cancer · 5 replies
- My 3yr old has lost some weight and the Dr is wanting to try an NG tube for him. I should say, that he was diagnosed the day after he turned 1yr and has struggled to gain weight... he is currently not ...
Do I keep them in school or out?
- By Saraannesmom · New reply October 24, 2009
- Discussion in Brothers and sisters · 5 replies
- My 7 year old daughter, Sara, who was diagnosed with ALL this past January, is coming home in November. She had a cord blood transplant in May at MD Anderson Cancer Hospital in Houston, TX. Post 142 days ...
Medulloblastoma Diagnosis - Johnathon - 3 yr old
- By sweetsurprisesbyteri · New reply October 22, 2009
- Discussion in Newly diagnosed · 14 replies
- Hi. I'm Teri, mom to Johnathon who was diagnosed with Medulloblastoma 3 days after his 3rd birthday. He had surgery the next day at Cooks Children's Hospital in Fort Worth, TX and started his first chemo ...
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The Candlelighters Childhood Cancer Support Group connects patients, families, friends and caregivers for support and inspiration. The Candlelighters Childhood Cancer Support Group is sponsored by the Candlelighters Childhood Cancer Foundation in partnership with Inspire.