Hi my name is Carol and i am a stage 3 colon cancer surviour. My 1 year mark is in June. I lost 2/3rds of my colon, 63 lympth knodes, piece of my stomach wall. I wear an Ileostmy bag near my navel. I am writing because so many people dread wearing the appliance.
Why worry about a bag your alive. Why risk the cancer spreading and losing your life. With mine being so high it often shows a bulge and I do empty it alot but there is very little pain and I am able to eat anything I want. Sure i have accidents but I would rather poop my tummy than not be here. I even named the stoma stewie he is just part of who i am now. Please do not turn down a chance to be cancer free just because you may have to wear a bag. They often can reverse it after treatments. I choose not to because I can eat whatever I want. Besides I would rather have an accident on my tummy than in my pants. I do want to wear a diaper or take a bunch more meds.
I watched Farrah's documentary of her anal cancer and she in the beginning turned down wearing a bag.... all I can do is think why on earth did she worry about that. How sad, it breaks my heart to think about it.
The appliance is not hard to take care of at all. You can empty as often as you like and there is deodrant for it. You can do all the things you used to do before except contact sports and you have to replenish yourself with extra fluids. I tube with my grandkids out on the boat. thanks for listening