• By jpappas · Posted yesterday at 10:55 pm
  • 2 replies
  • Well here it is in less than 3 days I will be having surgery. Feeling kinda anxious. Just ready to get this done and over with. Can anyone give me some info on their experience with surgery and the days ...

"A wake-up call from a young e-patient: 'I need to be heard'”

  • By John2 · Posted yesterday at 3:22 pm
  • 0 replies
  • From: John Novack, Communications Director, Inspire 4/15/14 Dear members, I am writing to share with you a new guest column in "Scope," the Stanford University School of Medicine's medical blog: "A wake-up ...

Maybe I want to stay positive...

  • By Trishyff · Posted yesterday at 1:57 pm
  • 13 replies
  • I know I can call my ONC and get the results from my CT scan but I have an appointment on Thursday. I know it sounds silly but I know on Thursday when I find out the scan will be clean ...


  • By zenker · Posted April 14, 2014
  • 0 replies
  • Has anyone ever considered going for "Neurobalancing ...

Caring for lymphedema

  • By dribrook · Posted April 13, 2014
  • 3 replies
  • Lymphedema, is a common complication of radiation and surgery for head and neck cancer as well as breast cancer. It is an abnormal accumulation of protein-rich fluid in the space between cells which causes ...

The Wait Begins .....

  • By Trishyff · Posted April 12, 2014
  • 19 replies
  • I had my CT scan yesterday to find out where this cough is coming from and made a decision to not tell anyone in my family (only my husband). Wow, was that a huge mistake, my daughter came to the house ...


  • By midtn · Posted April 12, 2014
  • 14 replies
  • Many of us have gone through really difficult and dark periods in our life that have tested our resolve, and our ability to simply hang in there and get through this. I pray that you all find strength ...

Yucky cough....

  • By Trishyff · Posted April 10, 2014
  • 10 replies
  • So i have been experiencing a dry cough for the last few weeks and my oncologist decided today he wanted a CT scan scheduled for tomorrow. I have to say I am pretty nervous about this and in fact it pretty ...

RIP daddy

  • By Carol_L · Posted April 9, 2014
  • 15 replies
  • After 1yr 7mth.. my dad's battle is finally over on 1st april. Rest in peace daddy. Love you. Thanks all for your advice and support during this period ...

finished radiation, started chemo side effects small cell

  • By naty2018 · Posted April 9, 2014
  • 2 replies
  • My father did pretty good with whole radiation only aide effect for now is that he lost all his hair, started chemo a week ago three days and the a shot two days after, the first day he felt nausea slept ...

Thoughts on what to do when treatments end...

  • By Chenbaaxal · Posted April 8, 2014
  • 11 replies
  • As for me, I am always trying to figure out ways to surprise my oncologist with my longevity. As I was collating and rounding out my lists of clinical studies regarding supplements, I also decided to ...

Force Feeding

  • By SeeGirlLive · Posted April 7, 2014
  • 23 replies
  • Today is Chemo 5 Day 1 My WBCs were still low, but higher than they were last week. My RBCs were almost normal. I did have some random bruising. I'm still having some electrolyte imbalance issues which ...

One Year Annivesary

  • By FMiller · Posted April 7, 2014
  • 5 replies
  • Rest in Peace, Hilda Reese “Love you around the world and back ...

Update on my New Normal...

  • By Trishyff · Posted April 6, 2014
  • 9 replies
  • First let me get this out...LUNG CANCER SUCKS!! ( I feel better already) BUT I started my week trying to find my New Normal which was a little interrupted by a little drama at work but I was still able ...

3 years later

  • By amckane · Posted April 5, 2014
  • 2 replies
  • Dad has started chemo treatment this week. They have him on something that starts with an a....I know what it is called but fear I will butcher the spelling. Anyways he had targeted radiation almost a ...

Home Hospice

  • By Varya · Posted April 5, 2014
  • 20 replies
  • Yesterday I set up my home hospice care, to the shock of friends and family. But at 79 plus and stuck with a very difficult living situation I don't want any more chemo. Very scary decision, of course ...

Eating Dusty Socks

  • By SeeGirlLive · Posted April 4, 2014
  • 29 replies
  • My calcium is extremely low. That may be why the tingly feelings and not neuropathy? That's an easier fix. I guess I will find out once this calcium is done. If anyone knows a way to make food taste less ...

1st line of treatment chemo Alimta, Carboplatinum, & Avastin

  • By ScooterLu · Posted April 3, 2014
  • 13 replies
  • Hi, MY husband was diagnosed with stage 4 adenocarcioma with pleural effusion 1/20/14 and had successful pleurodesis 2/11/14. As of February the cancer had not spread outside of the lung. He will be starting ...

A lecture about medical errors and their prevention

  • By dribrook · Posted April 1, 2014
  • 18 replies
  • You can watch my lecture on Youtube at the University Hospitals, Case Western University entitled “Preventing medical errors: a physician personal experience as a cancer patient.” Cleveland, Ohio, March ...


  • By Trishyff · Posted March 31, 2014
  • 8 replies
  • Okay so I have a silly question....I was born with 2 birthmarks both of which was on my leg. Since going through my chemo treatments they have both disappeared. Is this common? Will they come back? Kinda ...

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