Inspire connects patients, families, friends and caregivers for support and inspiration... More about this group

Home Hospice

  • By Varya · New reply 1:27 am
  • Journal · 26 replies
  • Yesterday I set up my home hospice care, to the shock of friends and family. But at 79 plus and stuck with a very difficult living situation I don't want any more chemo. Very scary decision, of course ...

Family can be really stupid

  • By Trishyff · New reply 12:20 am
  • Journal · 56 replies
  • Lets see where do I begin....It's 5am and I feel blessed to be here. I havent felt any symptoms except fatigue from the treatment (#3) which I think is a good thing. But it does make me wonder if its ...

Force Feeding

  • By SeeGirlLive · New reply yesterday at 11:11 pm
  • Journal · 26 replies
  • Today is Chemo 5 Day 1 My WBCs were still low, but higher than they were last week. My RBCs were almost normal. I did have some random bruising. I'm still having some electrolyte imbalance issues which ...

New Bump in the Road

  • By Mikesgal · New reply yesterday at 10:14 pm
  • Journal · 15 replies
  • Mike is in the hospital; Yesterday morning he fell asleep in the shower chair and passed out, got to the hospital and he has a tumor in the brain. No more details yet, but I've been suspecting this was ...

Dont mean to be a fraud but i really need help .

  • By kala · New reply yesterday at 7:59 pm
  • Discussion in Radiation therapy · 1 reply
  • I'm sorry to join this group when I thankfully don't have cancer but I really need help and couldn't find it anywhere else . I have schwannomatosis which causes schwannoma tumours to grow all over my ...

This Girl kicked Cancers Ass !!!

  • By Trishyff · New reply yesterday at 3:32 pm
  • Journal · 53 replies
  • I did it, I did it....Today I got the results of my CT scan, NED baby !!! I am so freaking happy, I cant control my emotions. One second I am laughing then I am crying. This has been the craziest, most ...

Completely Drained

  • By SeeGirlLive · New reply yesterday at 2:07 pm
  • Journal · 86 replies
  • I am extremely tired. Impossibly exhausted. I haven't been online much because of it, so if I haven't replied to you, communicated with you, or updated anyone on something, I swear I'm not ignoring you ...

Checking In

  • By SeeGirlLive · New reply yesterday at 12:47 pm
  • Journal · 19 replies
  • 4/17: I tried just now to stand up and walk to the lamp so that I could turn it off. I got dizzy and started seeing flashing lights in front of my eyes. It’s like in Speed Racer! Now I’m laying back down ...

Avastin - the good and the bad

  • By kazzole · New reply yesterday at 8:03 am
  • Discussion in Side effects of treatment · 2 replies
  • For those of us who use chemo containing Avastin, there can be good results and some bad side effects, both of which I experienced in the last few weeks. In my case, the good results were very good indeed ...

Far Infrared Detox sauna

  • By cancancer · Posted April 18, 2014
  • Discussion in Alternative therapies · 0 replies
  • Anybody tried Far Infrared Sauna for detoxing? If so, what were the benefits you noticed? Do you think it shrinks tumors or maybe detoxes the body so it can fight them? Has anyone tried it for pain relief ...

Astrocytoma Grade 2 - Age 70 - From Diagnosis Diary

  • By Karen1966 · New reply April 18, 2014
  • Journal · 14 replies
  • I see and hear so many wanting to know what is going to happen next and I have actually kept a "diary" of sorts since my husband's diagnosis. I thought I would post my diary of what has happened with ...


  • By suekell · New reply April 18, 2014
  • Discussion in Chemotherapy · 7 replies
  • I had my second chemo last Friday, and yesterday i had the most awful diarrhoea and stomach cramps. It was like water gushing out and the anti-diarrhoea tablets did not work. Has anyone else experienced ...

another day and trying to move forward

  • By reflection571 · New reply April 17, 2014
  • Journal · 6 replies
  • I have been here working and asking myself why??? Why am I even here? But know I have a purpose in life...If only I wasnt filled with such insecurities...I know I am strong but the weight I feel is so ...

Maybe I want to stay positive...

  • By Trishyff · New reply April 17, 2014
  • Journal · 14 replies
  • I know I can call my ONC and get the results from my CT scan but I have an appointment on Thursday. I know it sounds silly but I know on Thursday when I find out the scan will be clean ...

3 month scan results on Tarceva

  • By cin298 · New reply April 16, 2014
  • Journal · 4 replies
  • My husband with stage 4 extensive got his first scan since being on Tarceva for 3 month. The results were amazing, showing a 53% reduction in the main tumor in his lung! Brain and Adrenal Glands are now ...


  • By jpappas · New reply April 16, 2014
  • Journal · 5 replies
  • Well here it is in less than 3 days I will be having surgery. Feeling kinda anxious. Just ready to get this done and over with. Can anyone give me some info on their experience with surgery and the days ...

Caring for lymphedema

  • By dribrook · New reply April 16, 2014
  • Journal · 3 replies
  • Lymphedema, is a common complication of radiation and surgery for head and neck cancer as well as breast cancer. It is an abnormal accumulation of protein-rich fluid in the space between cells which causes ...


  • By midtn · New reply April 15, 2014
  • Journal · 14 replies
  • Many of us have gone through really difficult and dark periods in our life that have tested our resolve, and our ability to simply hang in there and get through this. I pray that you all find strength ...

Boost VHC Drink - 530 Calories

  • By Duvie · New reply April 15, 2014
  • Journal · 67 replies
  • Thanks to a lovely lady battling ALS, I have found out about this new Boost high- calorie drink to pass on to those struggling to maintain or to gain weight. Check it out online. Take special notice to ...

"A wake-up call from a young e-patient: 'I need to be heard'”

  • By John2 · Posted April 15, 2014
  • Journal · 0 replies
  • From: John Novack, Communications Director, Inspire 4/15/14 Dear members, I am writing to share with you a new guest column in "Scope," the Stanford University School of Medicine's medical blog: "A wake-up ...

Log in to see more

Don't have an Inspire account? Sign up now!

Forgot password?

Things you can do

Join our PNET patient community today!

Discussion topics

Community leaders

Inspire others

About this community

Inspire connects patients, families, friends and caregivers for support and inspiration.

Read more about our work