Already a member? Sign in
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
How - Joining Inspire is completely free and usually takes less than a minute. Join now!
has anyone had any results with temodar? Do you take only it or in conjunction with another drug? I have just started and am so nervous! I was diagnosed with melanoma in 2004 and it has now spread and there are multiple tumors in my lungs!
my dad, dx of ED-sclc, mets to liver, was in a clinical trial using just temador. We were told it is successful with melanomas and another cancer (escapes me right now).
wishing you success!
maria
I was put on Temodar in September of 1999 due metastazied melanoma in the brain (8 tumors). The highest dose I took was 160mg, but always had to stop because of low WBC I finally was put on Temodar 100mg seven days on seven days off since the end of 2001. This will be my 10th year since being diagnosed with the brain tumors and I have been NED since, other than 8/2000 ( a very, very small tumor was found and had gamma knife). I am still on the Temodar but the oncologist is considering taking me off very soon. I am not sure how I feel about going off, but I know eventually I should. I have had little or no problems with the Temodar other than recently nausea and had to take the Zofran at different times. I take one Zofran about 1/2 hour before the Temodar at night and then one about 4:00am which seems to help the nausea. The only other drug I take is Fragmin (similar to Heprin) which my oncologist thinks help detire (sp) the cancer. I also take a Neupogen injection every other week to bring the WBC back up. Something is working!!! I wish you good luck!!!! Fight hard!!!!
Thank you! That is reassuring to know! I am praying for the best!
My husband Jim was diagnosed with melanoma in January 2007, after removal of tumor and clean sentinel node biopsy he was staged as 2b. December 2008 his quarterly ct scan showed very small tumors in his right lung and 2 enlarged axillary lymph nodes. The enlarged nodes were removed along with some extras and only the two were metastic. His VA physician recommended IL-2, after consulting with a private oncologist he did have 2 - 5 day treatments of IL-2, results were mixed with 2 of the 4 lung tumors gone and 2 others shrank considerably, but, he also had 2 new enlarged lymph nodes in his chest, and now the VA is recommending Temodar. We are wondering if anyone has had more than the prescribed 2-5day treatments of IL-2 and what the recommended protocol is for IL-2. The VA oncologist seems to think that since the results were mixed we should move on to standard chemo but I feel like we haven't given the IL-2 enough time to get any substantial data. We will be seeing our oncologist locally for a second opinion. Any info is greatly appreciated. For now Jim is very healthy, except for the cancer. Thanks Myrna
JUDYB1
I am intrigued by your use of Temodar in 1999 due to metastasized melanoma in the brain. Methotrexate was traditionally used for that, with dire consequences. My wife was given Methotrexate for leptomeningeal metastasis to the central nervous system (CNS) in 1999. During my research years later, I found they were using Temodar for LC to the CNS with success. I'd be interested to know if you were given Temodar in a clinical study from a NCI-designated institution or in a community hospital setting?
Add to the discussion