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ovarian cancer survior

mz
  • By mz
  • Posted November 25, 2007 at 1:23 pm · 15 replies
  • In Ovarian cancer
  • Shared with the public
0 Recommendations

I would like to hear from stage lllc ovarian cancer surviors.
Did you do anything special with diet or natural medicine?
Has anyone heard of or used Avemar
Thank you,
MZ

Explore topics in this discussion:

Exercise Cancer Pain Endometrial cancer Acupuncture Ovarian cancer

15 replies

suzy1

Ironic MZ as I was about to send the same question. Though I have never heard of Avemar.What is it? I am in my second recurrence but was diagnosed in 2000, so I have done quite well. I was a skeptic re natural medicine but figure it can't hurt! I am trying Essiac tea (look it up on the net) I am getting mine from a person that my contact person told me about as I think there are many out there just trying to make money. I also consulted with a naturalpath and am taking maitke mushroom supplements, a ph balance supplement, good multivitamin from health food store (still have to get one more mushroom supplement). I am currently on tamoxifen to see if it works, find out Dec 7th when I have a ct scan.
I do believe that the tea gives me a feeling of well being. I have been on it for over a month, the others only for a week. I also do 10 min hot shower followed by 1 min cold water (supposed to stimulate the immune system...hydrotherapy). We'll see.
Interested in hearing about Avemar.
Warm regards,
Suzy

mz

Hi Suzy,

Thank you for your reply. Avemar is Fermented Wheat Germ Extract developed in Hungry, widely use in Europe a friend from Hungry told me about it. You can look it up at avemar.com. The one thing I read from Sloane Ketting Hospital was to use caution with Hormone related cancers.
I will look into the tea. I just read Dr.Oz (are you familiar with him) recommending mushrooms. I was just going to increase eating them. I have to go 12/12/07 for a repeat ct scan, something
showed up on my last test and my Ca 125 has gone up to 34.
Good Luck on you test.
Mary

suzy1

Hi Mary,
I did look up the avemar. I too know that one must be careful with hormone related cancers. We should stay away from flaxseed and soy products.
When were you diagnosed?
Good luck to you too on your tests.
Suzy

gloriahouse

Hi there MZ. Y ou can read my blog for my history with ovarian cancer.I have accepted the fact that I will always have this but it does not have to be in control of my life.I have never really did any special diets other than cut back on most of my junk foods.The only suppliments I use are a product called Mannatech, Do they help who knows? I have found that many people come out of the woodwork with things I should be doing.Their intentions are good but if I don't seem to be responsive to their advise they give me the feeling as if I am not doing my best to get better.For me I believe God is the only one in control of this and so I let Him guide me in what to do and who to listen too.I have a very positive attitude as well and refuse to let this get me down.I am very active with teens in my community and they have also been very good for me-keeps me from focusing on my illness.So I intend to get on with living the life I want while I am still ableand I want to enjoy any food I wish to eat.

Martha5

Hi, gloriahouse,

You know, your comments and feelings are exactly the way I feel. I, too, have to accept this endometrial cancer as something I'll always have and will have to go off and on treatment for a long time. I need to learn how to not let it control my life, as I just have recently been told that it's not "curable". I also have been given the feeling by certain folks when they ask "Well, have you tried (whatever they've read about or heard about.....?"), as if they know better than the doctors and all I have to do is try it. The truth is, I'm feeling pretty lucky to still be alive, as it is, and I know it's because God is keeping me alive still. It IS in His hands, totally. I've also been told I "must" go down to San Diego to the Optimum Health Institute (at $1,000 a week, and which you have to be prepared to basically become a vegetarian and eat mostly raw foods). So, I relate totally to you about listening to God and giving it all to Him.

It's also great that you're giving of yourself. That is something I need to put back in my life now. No more sitting around feeling sorry for myself.

Thanks for your message!

Martha

gloriahouse

Hi Martha Yes it is simething we will have to live with always. Not curable but hopefully controlable.Clinical trials are usually the best way to go for us. I see them as a way to help someone if not me .The best we can hope for is long breaks between treatments.I have not had a full year yet between reoccurences, but close last time 11 months,But I am determined to enjoy myself when I am off treatments as well as when I am in treatments. When I feel the most depressed about this I go and do something to make another happy and that boosts me.So what is your story-how long , how family is coping etc.I did not find your blog.Do you have one done? I would like to communicate with you more if your okay with this.I will look forward to your next message.

joycepots

Hi MZ,
I was dx with IIIc ovarian 7/03. I have had no recurrances to date (grateful for this). I don't think there is a magic pill. I have tried all kinds of things including mushrooms, organic diet, juiced organic carrots, etc etc etc. The bottom line is to really develop a sense of the quality of life. If you can get organic foods, prefere those, if you can rest, do that, if you can meditate, do it, Ditto with acupuncture, yoga, exercise, good friends, etc. There is an art to living with cancer, no matter where you are in terms of overall health. To accept what is, to live each day and to follow the daily choices that feel right for you. I take one day at a time, make the best choices I can and get on with life! Join a support group of some type so you can hear from others dealing with similar issues. Attend the Camp Mak a Dream camp in Montana, early Sept each year. You will learn from 60+ women who are survivors of ovarian cancer. Rich experience. Take care, Joyce

mz

Hi Suzy,

You wrote me that your Dr. put you on Tamoxifen. When you had your next CT scan on 12/07/07 you would see if it helped. My Dr. just put me on 20mg of Tamoxifen to see if is slows down my recurance. How did you make out? I am 54 years old and finished my Chemo in Oct of 2006 and I am still tired all the time is this normal. I hope you had good results.
Mary

Martha5

Hi, Gloriahouse,

So sorry it's taken me this long to reply back to you. Alot of decisions, etc., that keep one from living life the way I want to live it. I am now on two new drugs, Gemzar and Cisplatin. They are doozers...for me, anyway. I have them on Day 1, Day 8, then start again on Day 21. Since it takes about 6 days to get over each one, where does that leave enjoying life? If the doctors could say, "This will work and you will go into remission after this hell,", then I probably could endure it better. But, to endure it without any assurance of it working...I'm having trouble with that right now. So far, it has brought the CA-125 level down somewhat, so it is working for the short term while I'm on it, but who knows when I stop? Anyway, this is where I'm at right now, and sometimes you just have to vent. Thanks for being there. Would love to hear back from you to find out how you're doing.

Martha

zircons

I had IIIC ovarian cancer June 2006. I have decided to eat well, but am not going into the "health" foods. My doctor feels that if you take care of yourself you don't have to go to unproven alternative things. I agree. The main thing is your outlook on life and living and believing. Your cup has to be half full. You have to be positive.

gloriahouse

Hi Martha I just got back to the sight the other dasy.I didn't realise it changed and I was deleteling them for a week.So I finally checked it out and realized what I had done so hear I am again. It is okay to have these blah days. We are allowed BUT do not stay there okay.Are you over it yet and looking at the positve things happening, Now get back into living after all as saying goes it could be worse.My update is this round is going pretty good.Just started cycle 3 .My recent cat scan showed it is working so we keep on trucking through. Please realize I have bad days too but that is when I push myself to think of something nice to do for someone else.Bring candy bouquet to nurses , take a friend out for lunch etc anything to keep me from feeling sorry for myself cause life is to short to stay there.Keep in touch cause I care.

Martha5

Hi, Gloriahouse,

Yes, it was tricky to find the way through this new system, but, I've found you again! Well, through the bad days, there is a positive feeling emerging...a feeling that God is healing me through these current treatments; i.e., the pain has gone away from the first treatment on. That must mean something. Also, after I'm through the "hell" part of the treatment, I have a peace at the other end. I believe that God is telling me that after all this, that He will heal me, and this is all for a purpose. I just have to trust Him. So, that's a lifter-upper! I also need to add in doing good things for other people more (as you are doing), as that has always been a lifter-upper for me. It's just that with these treatments there is a tendency to go inside and "cocoon" with oneself until you feel better. But, when I do feel better, then I'm out and about seeing what good I can do. So, there's the balance.

Anyway, I hope God is blessing your journey with peace as you trust Him, too. Nothing we are going through is a surprise to Him. Give it all to Him every day, and at least He can give you His joy through it, if not complete healing YET. But, I have faith that God is healing you, Gloriahouse. He's kept you alive for a purpose. Just know that. He loves you.

...and so do I.

Martha

gloriahouse

Thanks for the uplift.I also believe God brings people into our lives to encourage usd as well.I fully believe God is using this experience in my life for the better.I would not wish anyone to go through this hell BUT it may seem strange to say but I feel this has been a great journey of discovery.I remember years ago telling God that I wanted to die instantly not slowly and drfinitely noit cancer.Boy how things have changed. I do like the fact that I can plan for this eventuality.Peace is definitely a good word to describe what God is giving me. Talk at you soon and remember we are allowed those down days.

gerili

I am an ovarian stage 3 survivor too! I happened to come across an article about this "avemar" which is fermented wheatgerm< I am going to contact my nutritionist on this and get back to you. I just bought a book which is very informative about diet-proper foods to eat and exercise as well-especially yoga, mediation. called-"ANTI-CANCER - A NEW WAY OF LIFE''-BY DAVID SERVAN-SCHREIBER, MD-Hope you are doing well!

quacker

Dear MZ,
I was diagnosed stage IV ovarian cancer just before Christmas 2007. Had 6 months of chemo and recurred 4 months later. Had a round of topotecan, which didn't work. My tumor was growing and spreading rapidly and had developed resistance to everything except Gemzar, which is what I am on now.
I started taking Avemar and Immpower, two products that work together against cancer. I am delighted to say that my CA 125 is now normal after only one month of chemo. Is it the Avemar, or a miracle of God? All I can say is I will continue my mostly vegan diet, vitamins, Avemar, Immpower and daily prayer and Bible reading. I'm a firm believer in alternative medicine and the most important thing is to cut way down on sugar and white carbs, cut down on meat, wheat and dairy, get plenty of rest, and do something you really enjoy every day. The side effects of the chemo have been getting less and less, maybe because I've been praying more for other people. Good luck to you and may God bless you.

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