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Welcome to Inspire!
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New
Thankful
- By dizzybee · Posted yesterday at 11:40 pm
- Journal · 4 replies
- Just wanted to say that despite all the troubles in my life and all the ills in the world, I am still thankful. Thankful, that my husband has a job and we can pay our bills and put food on the table ...
Day to day Living
- By LizardmyOli · Posted November 19, 2009
- Journal · 1 reply
- Got to roll with it I suppose? I woke up and took the kids to school, came home and sat in bed to watch the today show for a bit and make a list of "to do's" for the day, next thing I knew I woke up at ...
finally a small glimmer of hope!
- By dizzybee · Posted November 17, 2009
- Journal · 7 replies
- went to new neurologist monday -- he specializes in vascular issues. after talking w/me & hubster, and doing all the neuro tests, he went out to review my pictures. he came back with a very puzzled look ...
Sleepy all the Time now!
- By LizardmyOli · Posted November 17, 2009
- Journal · 8 replies
- Who knows what is up with me?? I just feel like I need to take naps all the time now, could be meds? Could be chemo? It is definitely not me feeling like this, I am usually bouncing off the walls or swinging ...
Cellphones!
- By LizardmyOli · Posted November 15, 2009
- Discussion in In the news · 0 replies
- I recieved an email from the braintrust group and they said that I should share this widely for those interested. I do not watch this show myself, but it is good that the topic is being addressed. http://www.doctoroz.com/videos/tuesday-d ...
Woke up today!!
- By LizardmyOli · Posted November 9, 2009
- Journal · 5 replies
- Felt like I was in someone elses house for a few minutes! It is crazy to wake up that way, to not know where you will wake up? Crazy siezures. I was hanging my lower body off the side of the bed, bulldog ...
Ulnar nerve decompression
- By LizardmyOli · Posted November 8, 2009
- Journal · 8 replies
- Had the surgery last friday, in and out kind of thing. So far all is well and I can feelmy three fingers on my left hand now!!! If all stays as planned, March should be my last surgery to put my skull ...
42 year old brother with NF1 has a brainstem tumor
- By Mountain · Posted November 5, 2009
- Discussion in Newly diagnosed · 4 replies
- My brother has NF1 and MRI on 9-29-09 showed low grade tumor (probably - no one can know for sure) in brainstem. They say he needs a biopsy. What Neurosurgeon has the expertise to do a brainstem biopsy ...
New website!
- By LizardmyOli · Posted November 3, 2009
- Journal · 4 replies
- I found a website called Mednotes ( I posted the link on my favorites). I was a bit impressed by a quick response they gave me overnight. It lets you enter your meds, conditions, allergies, etc...., then ...
Back to reality
- By LizardmyOli · Posted October 31, 2009
- Journal · 1 reply
- It was about this time last year that my brain tumor symptoms really started hitting me full on with serious symptoms such as things that made me think I was riding the crazy train!! I was losing sleep ...
Out Damn Spot!
- By dizzybee · Posted October 31, 2009
- Journal · 6 replies
- have been having trigeminal neuralgia (fancy word for pain from Hades) since around Sept. 23 -- been to ER twice one shot of dilaudel and next time a shot of morphine. Finally got an MRI -- i basically ...
Continuing headaches
- By LizardmyOli · Posted October 29, 2009
- Discussion in Living with a brain tumor · 0 replies
- I am still having headaches every evening or ones that wake me up at night, I thought these would go away once I had the craniotomy, once the swelling went down and I still have them? I still have an ...
OK, some good news then!
- By LizardmyOli · Posted October 29, 2009
- Journal · 5 replies
- I saw my infectious disease doctor today and he said my counts and stuff he looks at are doing very well and he did not expect them to go up that fast! He said that i do not need to see him anymore unless ...
Silent Screaming
- By LizardmyOli · Posted October 27, 2009
- Journal · 11 replies
- I have been scheduling and getting labwork done for my upcoming Ulnar Nerve decompression surgery and have had to deal with the reality of my insurance that I thought is very good and has good coverage ...
Interesting mix up!
- By LizardmyOli · Posted October 21, 2009
- Journal · 0 replies
- I saw the nuerologist the other day, last thursday and he said to stop 2 meds and one of those was trazadone and switch to another med. So thursday night I did just that and wham, I had this interesting ...
B12 deficit? Anyone familiar with this?
- By LizardmyOli · Posted October 17, 2009
- Discussion in Living with a brain tumor · 2 replies
- I never realized that I had this tested back in January, had a nurologist appt yesterday, switched some meds around and the nurologist gave me a lab slip for B12 testing and Iron levels ...
Sore, tired and MAD!
- By LizardmyOli · Posted October 17, 2009
- Journal · 3 replies
- Fridays are not good days to have medical problems in our town, Today I had some very strange symptoms from either an infection or the flu going around? One docs office called me back and told me to go ...
Nice to know I'm missed
- By MMB · Posted October 10, 2009
- Journal · 21 replies
- Saw a post from Stacy that she hadn't heard from me and wanted to make sure I was okay. Just want to say thank you for your concern, I miss all of you too!!!! I do bounce in and out to try and keep a ...
true life
- By theyrethere24 · Posted October 8, 2009
- Journal · 1 reply
- true life called today. i dont care if i get on it. just the facty people need to know what we go threw. good luck to anyone that got the good threw ...
Confusion can lead to anger!
- By LizardmyOli · Posted October 3, 2009
- Journal · 7 replies
- I went to the neurophysc yesterday and I realized how out of it my brain is!!! Now I am mad, but at who? I could not complete some simple block puzzles, and word tests and other things. I filled out a ...
