Already a member? Sign in
Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
How - Joining Inspire is completely free and usually takes less than a minute. Join now!
Journals
Thankful
- By dizzybee · Posted yesterday at 11:40 pm
- 3 replies
- Just wanted to say that despite all the troubles in my life and all the ills in the world, I am still thankful. Thankful, that my husband has a job and we can pay our bills and put food on the table ...
Day to day Living
- By LizardmyOli · Posted November 19, 2009
- 1 reply
- Got to roll with it I suppose? I woke up and took the kids to school, came home and sat in bed to watch the today show for a bit and make a list of "to do's" for the day, next thing I knew I woke up at ...
finally a small glimmer of hope!
- By dizzybee · Posted November 17, 2009
- 7 replies
- went to new neurologist monday -- he specializes in vascular issues. after talking w/me & hubster, and doing all the neuro tests, he went out to review my pictures. he came back with a very puzzled look ...
Sleepy all the Time now!
- By LizardmyOli · Posted November 17, 2009
- 8 replies
- Who knows what is up with me?? I just feel like I need to take naps all the time now, could be meds? Could be chemo? It is definitely not me feeling like this, I am usually bouncing off the walls or swinging ...
Woke up today!!
- By LizardmyOli · Posted November 9, 2009
- 5 replies
- Felt like I was in someone elses house for a few minutes! It is crazy to wake up that way, to not know where you will wake up? Crazy siezures. I was hanging my lower body off the side of the bed, bulldog ...
Ulnar nerve decompression
- By LizardmyOli · Posted November 8, 2009
- 8 replies
- Had the surgery last friday, in and out kind of thing. So far all is well and I can feelmy three fingers on my left hand now!!! If all stays as planned, March should be my last surgery to put my skull ...
New website!
- By LizardmyOli · Posted November 3, 2009
- 4 replies
- I found a website called Mednotes ( I posted the link on my favorites). I was a bit impressed by a quick response they gave me overnight. It lets you enter your meds, conditions, allergies, etc...., then ...
Back to reality
- By LizardmyOli · Posted October 31, 2009
- 1 reply
- It was about this time last year that my brain tumor symptoms really started hitting me full on with serious symptoms such as things that made me think I was riding the crazy train!! I was losing sleep ...
Out Damn Spot!
- By dizzybee · Posted October 31, 2009
- 6 replies
- have been having trigeminal neuralgia (fancy word for pain from Hades) since around Sept. 23 -- been to ER twice one shot of dilaudel and next time a shot of morphine. Finally got an MRI -- i basically ...
OK, some good news then!
- By LizardmyOli · Posted October 29, 2009
- 5 replies
- I saw my infectious disease doctor today and he said my counts and stuff he looks at are doing very well and he did not expect them to go up that fast! He said that i do not need to see him anymore unless ...
Silent Screaming
- By LizardmyOli · Posted October 27, 2009
- 11 replies
- I have been scheduling and getting labwork done for my upcoming Ulnar Nerve decompression surgery and have had to deal with the reality of my insurance that I thought is very good and has good coverage ...
Interesting mix up!
- By LizardmyOli · Posted October 21, 2009
- 0 replies
- I saw the nuerologist the other day, last thursday and he said to stop 2 meds and one of those was trazadone and switch to another med. So thursday night I did just that and wham, I had this interesting ...
Sore, tired and MAD!
- By LizardmyOli · Posted October 17, 2009
- 3 replies
- Fridays are not good days to have medical problems in our town, Today I had some very strange symptoms from either an infection or the flu going around? One docs office called me back and told me to go ...
Nice to know I'm missed
- By MMB · Posted October 10, 2009
- 21 replies
- Saw a post from Stacy that she hadn't heard from me and wanted to make sure I was okay. Just want to say thank you for your concern, I miss all of you too!!!! I do bounce in and out to try and keep a ...
true life
- By theyrethere24 · Posted October 8, 2009
- 1 reply
- true life called today. i dont care if i get on it. just the facty people need to know what we go threw. good luck to anyone that got the good threw ...
Confusion can lead to anger!
- By LizardmyOli · Posted October 3, 2009
- 7 replies
- I went to the neurophysc yesterday and I realized how out of it my brain is!!! Now I am mad, but at who? I could not complete some simple block puzzles, and word tests and other things. I filled out a ...
my NIH experience
- By dizzybee · Posted October 2, 2009
- 40 replies
- THIS IS MY EXPERIENCE -- I HAVE TRIED TO LEAVE THE DOCTORS' INVOLVED NAMES OUT SO AS NOT TO CAUSE ISSUES -- AGAIN, THIS IS WHAT HAPPENED TO ME. Well, where to start--nurse took my vitals and some allergy ...
Oncologist Appt
- By LizardmyOli · Posted September 28, 2009
- 0 replies
- I have an oncologist appt today,, for some reason I am not into going again....... Maybe only 7 more months of treatments? My doctors are all real nice and all that, I just get tired of seeing doctors ...
MRI Today
- By LizardmyOli · Posted September 24, 2009
- 6 replies
- I have my monthly MRI today at 1220! Hopefully nothing has changed for the worse, maybe better? I have to be there an hour early to take medication to make me relax or I get "twitchy" as they say ...
September 22nd 2009
- By Chuckr37 · Posted September 22, 2009
- 4 replies
- My surgery has been pushed back from 8am to 10:30am, I can handle that. I will head down and have a CAT scan on the way to surgery and before theu start hacking and cutting they will do the biopsy and ...
