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Buldozers
  • By Buldozers · Posted yesterday at 8:38 am
  • Journal · 5 replies
  • May the Lord give me wisdom and strength. Some days are harder than others. May the Lord give me patience and grace for those around me, Some days are harder than others Lately I have have felt so frustrated ...

Ambien (sleeping pill) used to "awaken" individuals in a PVS

formybro
  • By formybro · Posted November 19, 2009
  • Discussion in Brain injuries · 12 replies
  • I need to read more about it. I just wanted to put this out there. Google-- Ambien and persistant vegetative state. It is amazing. My brother is receiving this 2x a day. I played music for him the other ...

It will happen in Gods time

formybro
  • By formybro · Posted November 19, 2009
  • Journal · 1 reply
  • I'm not giving up. I know he will respond. God hears our prayers. He is my only sibling. He stares into my soul. What is he thinking?? I'm scared but strong and above all I believe in the power of God ...

Why meds and not HBOT

aNewBob
  • By aNewBob · Posted November 17, 2009
  • Journal · 3 replies
  • Today seemed a little better. He is still very tired. He kept wanting to go back to bed. i have read that sleep is good for a brain injury. But if he sleeps all day then he won't sleep at night. Wished ...

finally a small glimmer of hope!

dizzybee
  • By dizzybee · Posted November 17, 2009
  • Journal · 7 replies
  • went to new neurologist monday -- he specializes in vascular issues. after talking w/me & hubster, and doing all the neuro tests, he went out to review my pictures. he came back with a very puzzled look ...

Gracie, daddy loves you

aNewBob
  • By aNewBob · Posted November 16, 2009
  • Journal · 2 replies
  • Went and sat with Bob today. Can not even do puzzles or anything cause of the meds. All he wants to do is sleep. I miss him so much. It is so hard to think about what the future holds. I remember when ...

The Day My Life Changed Forever

aNewBob
  • By aNewBob · Posted November 15, 2009
  • Journal · 7 replies
  • On Dec 17, 2008 my life changed forever. My boyfriend suffered an anoxic brain injury. He had gotten hooked back on meth. To this day I do not know what happened because he was doing so good. He had even ...

Head Injury and SCA our story

Buldozers
  • By Buldozers · Posted November 15, 2009
  • Journal · 3 replies
  • In 1995 my husband went four wheeling with his buddies out at the desert, they rolled 70 feet end over end, the result was 6 concussions and TBI(traumatic brain injury). At the time we were just friends ...

My Stepfather

hayley4
  • By hayley4 · Posted November 14, 2009
  • Discussion in Brain injuries · 0 replies
  • Hi to all the brave people whos storys ive read so far on here! this web site has given me alot of hope! my stepfather suffered chest pains whilst on an emirates aeroplane travelling back from Afganistan ...

Meet the medic: a real shocker!

rturri
  • By rturri · Posted November 11, 2009
  • Journal · 4 replies
  • When I woke up this morning, Nov. 11, I remembered two things.Today is my birthday and I still hadn't met the last one of the paramedics who came to my rescue when I had my sca on April 6, 2008. So, I ...

So confused

worried4dad
  • By worried4dad · Posted November 10, 2009
  • Journal · 4 replies
  • My father caught the swine flu and it damaged his lungs and his kidneys. He coded twice but I still do not know how long his brain went without oxygen. The doctors in ICU advised us to pull the plug because ...

36 year old brother OD now has ABI----HELP

formybro
  • By formybro · Posted November 5, 2009
  • Discussion in Brain injuries · 7 replies
  • My only brother has been in the ICU for over 1 month. I don't know how long he was down for. I was told that his oxygen level was 72 when they found him. The ct scan reveals many infarcs to the brain ...

There is hope, there is help.

Aaron-Pennsylvania
  • By Aaron-Pennsylvania · Posted November 5, 2009
  • Journal · 3 replies
  • At times I felt alone and no one understood what I was going through. Well, that was true regarding the people around me. Other than Samantha's family and myself, the people in our circle could not understand ...

Billy' s cortico blindness

sophianbilly
  • By sophianbilly · Posted November 1, 2009
  • Discussion in Brain injuries · 2 replies
  • Cortico Blindness /Visual disturbances. The person may have trouble processing visual information. They may find it difficult to focus or they may reach for an object, but not be able to touch it because ...

Out Damn Spot!

dizzybee
  • By dizzybee · Posted October 31, 2009
  • Journal · 6 replies
  • have been having trigeminal neuralgia (fancy word for pain from Hades) since around Sept. 23 -- been to ER twice one shot of dilaudel and next time a shot of morphine. Finally got an MRI -- i basically ...

How long does Billy have with an ef of 29??

sophianbilly
  • By sophianbilly · Posted October 31, 2009
  • Journal · 10 replies
  • his defib/pacemaker was implanted in June 2009 when he was still at UCH after a chronic heart happened on April 2009......He had anoxia to his brain and heart which is why they waited soooo long....He ...

Support for Survivors

Aaron-Pennsylvania
  • By Aaron-Pennsylvania · Posted October 25, 2009
  • Discussion in Living with a brain or nervous system disease · 6 replies
  • This site is such a great resource for survivors of ABI and their family members. In reality, the family members are survivors too. Sometimes the family needs help and insight from others who have been ...

Why are we so hesitant to call ourselves brain injury 'survivors'?

QuintBy
  • By QuintBy · Posted October 24, 2009
  • Discussion in Brain injuries · 1 reply
  • It is impossible to read about someone who has had cancer who is not referred to as a 'cancer survivor'. Yet I rarely see those who have survived anoxic brain damage, or have awoken from a 10-day coma ...

Has anyone ever tried a rehabilation for severe brain injuries?

cheriffic
  • By cheriffic · Posted October 22, 2009
  • Journal · 7 replies
  • If so, can you let me if insurance covers it? And most importantly, did it help ...

Knowing when it's time to let go...

cheriffic
  • By cheriffic · Posted October 16, 2009
  • Journal · 6 replies
  • My mom is yelling day & night & she is clearly going backwards mentally. She was doing so well in July. I remember one of the kind nurses told me that I would know when it would be time to let go, and ...

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