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Active journals
The Day My Life Changed Forever
- By aNewBob · New reply 4:01 am
- 7 replies
- On Dec 17, 2008 my life changed forever. My boyfriend suffered an anoxic brain injury. He had gotten hooked back on meth. To this day I do not know what happened because he was doing so good. He had even ...
finally a small glimmer of hope!
- By dizzybee · New reply yesterday at 2:19 pm
- 7 replies
- went to new neurologist monday -- he specializes in vascular issues. after talking w/me & hubster, and doing all the neuro tests, he went out to review my pictures. he came back with a very puzzled look ...
Head Injury and SCA our story
- By Buldozers · New reply November 20, 2009
- 3 replies
- In 1995 my husband went four wheeling with his buddies out at the desert, they rolled 70 feet end over end, the result was 6 concussions and TBI(traumatic brain injury). At the time we were just friends ...
Why meds and not HBOT
- By aNewBob · New reply November 19, 2009
- 2 replies
- Today seemed a little better. He is still very tired. He kept wanting to go back to bed. i have read that sleep is good for a brain injury. But if he sleeps all day then he won't sleep at night. Wished ...
It will happen in Gods time
- By formybro · New reply November 19, 2009
- 1 reply
- I'm not giving up. I know he will respond. God hears our prayers. He is my only sibling. He stares into my soul. What is he thinking?? I'm scared but strong and above all I believe in the power of God ...
There is hope, there is help.
- By Aaron-Pennsylvania · New reply November 18, 2009
- 3 replies
- At times I felt alone and no one understood what I was going through. Well, that was true regarding the people around me. Other than Samantha's family and myself, the people in our circle could not understand ...
my NIH experience
- By dizzybee · New reply November 17, 2009
- 40 replies
- THIS IS MY EXPERIENCE -- I HAVE TRIED TO LEAVE THE DOCTORS' INVOLVED NAMES OUT SO AS NOT TO CAUSE ISSUES -- AGAIN, THIS IS WHAT HAPPENED TO ME. Well, where to start--nurse took my vitals and some allergy ...
Gracie, daddy loves you
- By aNewBob · New reply November 17, 2009
- 2 replies
- Went and sat with Bob today. Can not even do puzzles or anything cause of the meds. All he wants to do is sleep. I miss him so much. It is so hard to think about what the future holds. I remember when ...
So confused
- By worried4dad · New reply November 13, 2009
- 4 replies
- My father caught the swine flu and it damaged his lungs and his kidneys. He coded twice but I still do not know how long his brain went without oxygen. The doctors in ICU advised us to pull the plug because ...
Meet the medic: a real shocker!
- By rturri · New reply November 12, 2009
- 4 replies
- When I woke up this morning, Nov. 11, I remembered two things.Today is my birthday and I still hadn't met the last one of the paramedics who came to my rescue when I had my sca on April 6, 2008. So, I ...
Has anyone ever tried a rehabilation for severe brain injuries?
- By cheriffic · New reply November 5, 2009
- 7 replies
- If so, can you let me if insurance covers it? And most importantly, did it help ...
Out Damn Spot!
- By dizzybee · New reply November 4, 2009
- 6 replies
- have been having trigeminal neuralgia (fancy word for pain from Hades) since around Sept. 23 -- been to ER twice one shot of dilaudel and next time a shot of morphine. Finally got an MRI -- i basically ...
How long does Billy have with an ef of 29??
- By sophianbilly · New reply November 3, 2009
- 10 replies
- his defib/pacemaker was implanted in June 2009 when he was still at UCH after a chronic heart happened on April 2009......He had anoxia to his brain and heart which is why they waited soooo long....He ...
myson
- By myson · New reply October 31, 2009
- 3 replies
- My son has Landau-Kleffner syndrome, and it is killing me that I cant make it better. I am mommy and I am suppose to make it all better. If there are any going through this please talk to me ...
Knowing when it's time to let go...
- By cheriffic · New reply October 25, 2009
- 6 replies
- My mom is yelling day & night & she is clearly going backwards mentally. She was doing so well in July. I remember one of the kind nurses told me that I would know when it would be time to let go, and ...
www.powercatcharters.com/Billy
- By sophianbilly · New reply October 23, 2009
- 4 replies
- I look for information all the time.....My Billy had a chronic heart attack with anoxia to the brain and to the heart on April 10, 2009....I was alone in the morning with him when he complained of chest ...
My mother is a fighter...
- By cheriffic · New reply October 17, 2009
- 6 replies
- On June 28th, 2009, my sweet mom went into SCA one day prior to her defib/pacemaker surgery right after Church. She has an ABI. She was w/o oxygen for 20+ minutes. She went into a coma, came out of after ...
Disinhibition
- By NWWriter · New reply October 15, 2009
- 5 replies
- After my sca I was constantly blurting out the first thought that came to my mind. I didn't realize it was unusual, nor did I see anything wrong with it. I liked being "open" and "frank"!! We should ALL ...
SICK WITH SICK CHILDREN
- By pie830s · New reply October 14, 2009
- 6 replies
- IT ALL STARED WHEN MY DAUGHTER WAS BORN. SHE WAS BORN AT 35 WEEKS OLD, 7LB 2 OZ. SHE WAS BIG TO BE A SO EARLY. SHE WASN'T BREATHING, SHE HAD FUILD IN HER LUNGS. THEY GOT HER BREATHING AND SINCE HER OFF ...
11 months ago today...
- By Aaron-Pennsylvania · New reply October 14, 2009
- 10 replies
- was the beginning of our journey to places we never knew existed. No, this is not a fairy tale or happy story, this is a nightmare lived by many, whose lives are changed forever. Some may have happy endings ...
